Literature DB >> 21700814

Parents of children newly diagnosed with type 1 diabetes: experiences with social support and family management.

Ellen M Rearick1, Susan Sullivan-Bolyai2, Carol Bova2, Kathleen A Knafl3.   

Abstract

PURPOSE: The purpose of this mixed-methods descriptive study with parents of children newly diagnosed with type 1 diabetes was to explore their experiences with peer social support following the Social Support to Empower Parents (STEP) intervention and the usefulness of the Family Management Measure (FaMM) in this population.
METHODS: Parents who were in the experimental arm of STEP were recruited. Qualitative interviews were conducted (n = 21), and 11 parents completed the FaMM, a quantitative family-functioning measure. Qualitative content data analysis was conducted and compared to the descriptive measure analysis. Findings Three themes were identified: availability, practical tips, and common ground. Five FaMM subscales were reliable (α > .80) in this small sample.
CONCLUSIONS: The findings illustrate that the STEP intervention is helpful, providing the participants with emotional, affirmational, and informational social support. The use of the FaMM is a first step in assessing family management in families with children with type 1 diabetes.

Entities:  

Mesh:

Year:  2011        PMID: 21700814     DOI: 10.1177/0145721711412979

Source DB:  PubMed          Journal:  Diabetes Educ        ISSN: 0145-7217            Impact factor:   2.140


  19 in total

1.  Feasibility and Preliminary Efficacy of an Internet Support Group for Parents of a Child with Neurofibromatosis Type 1: a Pilot Study.

Authors:  S Martin; M C Roderick; R Lockridge; M A Toledo-Tamula; A Baldwin; P Knight; P Wolters
Journal:  J Genet Couns       Date:  2016-11-07       Impact factor: 2.537

2.  Family perceptions of shared decision-making with health care providers: results of the National Survey of Children With Special Health Care Needs, 2009-2010.

Authors:  LaQuanta P Smalley; Mary Kay Kenney; Diana Denboba; Bonnie Strickland
Journal:  Matern Child Health J       Date:  2014-08

3.  Design and development of a stepped-care behavioral intervention to support parents of young children newly diagnosed with type 1 diabetes.

Authors:  Marisa E Hilliard; Carrie Tully; Maureen Monaghan; Jichuan Wang; Randi Streisand
Journal:  Contemp Clin Trials       Date:  2017-08-15       Impact factor: 2.226

4.  Sleep in Caregivers of Children With Type 1 Diabetes.

Authors:  Christine A Feeley; Marilyn Clougherty; Linda Siminerio; Denise Charron-Prochownik; Anna L Allende; Eileen R Chasens
Journal:  Diabetes Educ       Date:  2018-11-22       Impact factor: 2.140

5.  The Feasibility of a Pilot Intervention for Parents of Young Children Newly Diagnosed with Type 1 Diabetes.

Authors:  Eleanor Race Mackey; Linda Herbert; Maureen Monaghan; Fran Cogen; Jichuan Wang; Randi Streisand
Journal:  Clin Pract Pediatr Psychol       Date:  2016-03-01

6.  Peer support preferences among African-American breast cancer survivors and caregivers.

Authors:  Lindsey Haynes-Maslow; Marlyn Allicock; La-Shell Johnson
Journal:  Support Care Cancer       Date:  2016-12-28       Impact factor: 3.603

Review 7.  Peer Coaching Interventions for Parents of Children with Type 1 Diabetes.

Authors:  Carrie Tully; Caitlin Shneider; Maureen Monaghan; Marisa E Hilliard; Randi Streisand
Journal:  Curr Diab Rep       Date:  2017-06       Impact factor: 4.810

8.  Attitudes about internet support groups among adolescents and young adults with neurofibromatosis type 1 and their parents.

Authors:  Staci Martin; Pamela L Wolters; Andrea Baldwin; Marie Claire Roderick; Mary Anne Toledo-Tamula; Andrea Gillespie; Brigitte Widemann
Journal:  J Genet Couns       Date:  2014-01-28       Impact factor: 2.537

9.  Parent Coping and the Behavioural and Social Outcomes of Children Diagnosed with Inherited Metabolic Disorders.

Authors:  Amy Brown; Louise Crowe; Avihu Boneh; Vicki Anderson
Journal:  JIMD Rep       Date:  2016-03-24

10.  Revisiting a non-significant findings study: a parent mentor intervention trial as exemplar.

Authors:  Susan Sullivan-Bolyai; Carol Bova; Lesley Lowes; Sue Channon
Journal:  Appl Nurs Res       Date:  2014-02-10       Impact factor: 2.257

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