Literature DB >> 21606124

Free-text comments: understanding the value in family member descriptions of hospice caregiver relationships.

Grady S York1, Richard Churchman, Beth Woodard, Charles Wainright, Mary Rau-Foster.   

Abstract

Invitations for free-text comments on surveys provide family members of hospice patients an opportunity to "tell" their story of the hospice experience and caregiver relationships during the last months of life. These comments are a rich source of data for understanding the complex interpersonal relationships that influence patient/family perceptions of both quality of care and quality of life. Analysis of 438 free-text comments provided by 243 hospice family members revealed 5 emergent caregiver relationship themes: knowledge, skills, and abilities; empathy and compassion; trust and acceptance; communication experience and time spent with caregiver. Findings support the value of free-text comments to explain or add depth to quality assessments, modify therapeutic interventions, and identify strategies for process improvement that advance hospice quality of care.

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Year:  2011        PMID: 21606124     DOI: 10.1177/1049909111409564

Source DB:  PubMed          Journal:  Am J Hosp Palliat Care        ISSN: 1049-9091            Impact factor:   2.500


  4 in total

Review 1.  Informal caregiving of hospice patients.

Authors:  Colin G Pottie; Karen A Burch; Lori P Montross Thomas; Scott A Irwin
Journal:  J Palliat Med       Date:  2014-07       Impact factor: 2.947

2.  Six versus 12 months' adjuvant trastuzumab in patients with HER2-positive early breast cancer: the PERSEPHONE non-inferiority RCT.

Authors:  Helena Earl; Louise Hiller; Anne-Laure Vallier; Shrushma Loi; Karen McAdam; Luke Hughes-Davies; Daniel Rea; Donna Howe; Kerry Raynes; Helen B Higgins; Maggie Wilcox; Chris Plummer; Betania Mahler-Araujo; Elena Provenzano; Anita Chhabra; Sophie Gasson; Claire Balmer; Jean E Abraham; Carlos Caldas; Peter Hall; Bethany Shinkins; Christopher McCabe; Claire Hulme; David Miles; Andrew M Wardley; David A Cameron; Janet A Dunn
Journal:  Health Technol Assess       Date:  2020-08       Impact factor: 4.014

3.  What relatives of older medical patients want us to know - a mixed-methods study.

Authors:  Ditte Maria Sivertsen; Louise Lawson-Smith; Tove Lindhardt
Journal:  BMC Nurs       Date:  2018-07-28

4.  Quality, rigour and usefulness of free-text comments collected by a large population based longitudinal study - ALSWH.

Authors:  Jane Louise Rich; Catherine Chojenta; Deborah Loxton
Journal:  PLoS One       Date:  2013-07-11       Impact factor: 3.240

  4 in total

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