Literature DB >> 21574069

Editorial: genetic and genomic research-changing patterns of accountability.

Jeantine E Lunshof, Ruth Chadwick.   

Abstract

Debates about genomic science have raised questions about the implications for ethics and accountability. Accountability has external and internal aspects. Whereas ethical review, including attention to appropriate consent procedures, has been central to 'giving an account' externally, there are also issues internal to the practice of science itself. The pursuit of truth is central to the scientific endeavour, but truths can sometimes be 'inconvenient', leading to complex questions of accountability that go beyond the issues of consent. This is illustrated by the case of the Havasupai.

Mesh:

Year:  2011        PMID: 21574069     DOI: 10.1080/08989621.2011.575031

Source DB:  PubMed          Journal:  Account Res        ISSN: 0898-9621            Impact factor:   2.622


  2 in total

1.  Translational Science, DNA Commercialization, and Informed Consent: The Need for Specific Terminology, Insights from a Review of H3Africa Projects.

Authors:  Patricia Marshall; Charmaine D M Royal; Ruth Chadwick
Journal:  Public Health Genomics       Date:  2022-01-25       Impact factor: 2.132

2.  Implementing Qualitative Data Management Plans to Ensure Ethical Standards in Multi-Partner Centers.

Authors:  Lisa J Hardy; Amy Hughes; Elizabeth Hulen; Anna L Schwartz
Journal:  J Empir Res Hum Res Ethics       Date:  2016-04-13       Impact factor: 1.742

  2 in total

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