Literature DB >> 21571744

Internet portal use in an academic multiple sclerosis center.

A Scott Nielsen1, John D Halamka, R Philip Kinkel.   

Abstract

OBJECTIVE: To evaluate the use of a secure internet portal in an academic Multiple Sclerosis (MS) Center.
MATERIALS AND METHODS: Retrospective case-control chart review of 240 patients during the years 2008 and 2009. Patient demographic and clinical information was extracted from our online medical records, and portal use metrics were provided by Information Systems. Descriptive statistics were utilized to explore characteristics of portal users, how the portal is used, and what associations exist between medical resource utilization and active portal use. Logistic regression identified independent patient predictors and barriers to portal use.
RESULTS: Portal users tended to be young professionals with minimal physical disability. The most frequently used portal feature was secure patient-physician messaging. Message content largely consisted of requests for medications or refills in addition to self-reported side effects. Independent predictors and barriers of portal use include the number of medications prescribed by our staff (OR 1.69, p<0.0001), Caucasian ethnicity (OR 5.04, p=0.007), arm and hand disability (OR 0.23, p=0.01), and impaired vision (OR 0.31, p=0.01). Discussion MS patients use the internet in a greater proportion than the general US population, yet physical disability limits their access. Technological adaptations such as voice-activated commands and easy font-size adjustment may help patients overcome these barriers.
CONCLUSION: Future research should explore the influence of portal technology on healthcare resource utilization and cost. Additional emedicine applications could be linked to the patient portal for disease monitoring and prospective investigation.

Entities:  

Mesh:

Year:  2011        PMID: 21571744      PMCID: PMC3240754          DOI: 10.1136/amiajnl-2011-000177

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  19 in total

1.  The development of a "reduced logMAR" visual acuity chart for use in routine clinical practice.

Authors:  D A Rosser; D A Laidlaw; I E Murdoch
Journal:  Br J Ophthalmol       Date:  2001-04       Impact factor: 4.638

2.  One size does not fit all: using qualitative methods to inform the development of an Internet portal for multiple sclerosis patients.

Authors:  Ashish Atreja; Neil Mehta; Deborah Miller; Shirley Moore; Karen Nichols; Holly Miller; C Martin Harris
Journal:  AMIA Annu Symp Proc       Date:  2005

3.  Web-based self-management for patients with multiple sclerosis: a practical, randomized trial.

Authors:  Deborah M Miller; Shirley M Moore; Robert J Fox; Ashish Atreja; Alex Z Fu; Jar-Chi Lee; Welf Saupe; Maria Stadtler; Swati Chakraborty; C M Harris; Richard A Rudick
Journal:  Telemed J E Health       Date:  2011-01-09       Impact factor: 3.536

4.  Who uses the patient internet portal? The PatientSite experience.

Authors:  Saul N Weingart; David Rind; Zachary Tofias; Daniel Z Sands
Journal:  J Am Med Inform Assoc       Date:  2005-10-12       Impact factor: 4.497

5.  A comprehensive assessment of the cost of multiple sclerosis in the United States.

Authors:  K Whetten-Goldstein; F A Sloan; L B Goldstein; E D Kulas
Journal:  Mult Scler       Date:  1998-10       Impact factor: 6.312

6.  The significance of brain magnetic resonance imaging abnormalities at presentation with clinically isolated syndromes suggestive of multiple sclerosis. A 5-year follow-up study.

Authors:  S P Morrissey; D H Miller; B E Kendall; D P Kingsley; M A Kelly; D A Francis; D G MacManus; W I McDonald
Journal:  Brain       Date:  1993-02       Impact factor: 13.501

7.  Rating neurologic impairment in multiple sclerosis: an expanded disability status scale (EDSS).

Authors:  J F Kurtzke
Journal:  Neurology       Date:  1983-11       Impact factor: 9.910

Review 8.  Natural history of multiple sclerosis.

Authors:  B G Weinshenker
Journal:  Ann Neurol       Date:  1994       Impact factor: 10.422

Review 9.  Diagnostic criteria for multiple sclerosis: 2005 revisions to the "McDonald Criteria".

Authors:  Chris H Polman; Stephen C Reingold; Gilles Edan; Massimo Filippi; Hans-Peter Hartung; Ludwig Kappos; Fred D Lublin; Luanne M Metz; Henry F McFarland; Paul W O'Connor; Magnhild Sandberg-Wollheim; Alan J Thompson; Brian G Weinshenker; Jerry S Wolinsky
Journal:  Ann Neurol       Date:  2005-12       Impact factor: 10.422

10.  Monitoring of symptoms and interventions associated with multiple sclerosis.

Authors:  Andrea Lowe-Strong; Paul J McCullagh
Journal:  Stud Health Technol Inform       Date:  2005
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  20 in total

Review 1.  How outcomes are achieved through patient portals: a realist review.

Authors:  Terese Otte-Trojel; Antoinette de Bont; Thomas G Rundall; Joris van de Klundert
Journal:  J Am Med Inform Assoc       Date:  2014-02-06       Impact factor: 4.497

2.  Patient-centered communication in digital medical encounters.

Authors:  Jordan M Alpert; Karen E Dyer; Jennifer Elston Lafata
Journal:  Patient Educ Couns       Date:  2017-05-02

3.  Patient-to-physician messaging: volume nearly tripled as more patients joined system, but per capita rate plateaued.

Authors:  Bradley H Crotty; Yonas Tamrat; Arash Mostaghimi; Charles Safran; Bruce E Landon
Journal:  Health Aff (Millwood)       Date:  2014-10       Impact factor: 6.301

4.  A patient-driven adaptive prediction technique to improve personalized risk estimation for clinical decision support.

Authors:  Xiaoqian Jiang; Aziz A Boxwala; Robert El-Kareh; Jihoon Kim; Lucila Ohno-Machado
Journal:  J Am Med Inform Assoc       Date:  2012-04-04       Impact factor: 4.497

Review 5.  Patient Portals and Patient Engagement: A State of the Science Review.

Authors:  Taya Irizarry; Annette DeVito Dabbs; Christine R Curran
Journal:  J Med Internet Res       Date:  2015-06-23       Impact factor: 5.428

6.  Characteristics of patient portals developed in the context of health information exchanges: early policy effects of incentives in the meaningful use program in the United States.

Authors:  Terese Otte-Trojel; Antoinette de Bont; Joris van de Klundert; Thomas G Rundall
Journal:  J Med Internet Res       Date:  2014-11-21       Impact factor: 5.428

7.  Barriers to the use of personal health records by patients: a structured review.

Authors:  Chris Showell
Journal:  PeerJ       Date:  2017-04-27       Impact factor: 2.984

8.  Use and acceptance of electronic communication by patients with multiple sclerosis: a multicenter questionnaire study.

Authors:  Rocco Haase; Thorsten Schultheiss; Raimar Kempcke; Katja Thomas; Tjalf Ziemssen
Journal:  J Med Internet Res       Date:  2012-10-15       Impact factor: 5.428

9.  Adherence to monthly online self-assessments for short-term monitoring: a 1-year study in relapsing-remitting multiple sclerosis patients after start of disease modifying treatment.

Authors:  Peter Joseph Jongen; Evert Sanders; Cees Zwanikken; Jan Koeman; Leo H Visser; Petra Koopmans; Dirk Lehnick
Journal:  Patient Prefer Adherence       Date:  2013-04-09       Impact factor: 2.711

10.  Designing an Electronic Patient Management System for Multiple Sclerosis: Building a Next Generation Multiple Sclerosis Documentation System.

Authors:  Raimar Kern; Rocco Haase; Judith Christina Eisele; Katja Thomas; Tjalf Ziemssen
Journal:  Interact J Med Res       Date:  2016-01-08
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