Literature DB >> 21512954

Living with lupus: a qualitative report.

Nancy L Beckerman1.   

Abstract

This article reports on the findings of a qualitative study based on three focus-groups of individuals (N = 32) living with Systemic Lupus Erythematosus (SLE). The themes that emerged indicated a high vulnerability for self-reported feelings of depression. The four key challenges included: (1) feeling depressed that they are not who they used to be, (2) feelings of depression and anxiety related to coping with the uncertainty of the illness, (3) physical and emotional fatigue of living with a chronic illness, and (4) coping with the financial strain of the illness. These psychosocial challenges should be considered in screening, assessment, and treatment planning for social work service with this population.

Entities:  

Mesh:

Year:  2011        PMID: 21512954     DOI: 10.1080/00981389.2011.554302

Source DB:  PubMed          Journal:  Soc Work Health Care        ISSN: 0098-1389


  10 in total

1.  Cytokine balance and behavioral intervention; findings from the Peer Approaches to Lupus Self-Management (PALS) project.

Authors:  Edith M Williams; J Madison Hyer; Ramakrishnan Viswanathan; Trevor D Faith; Leonard Egede; Jim C Oates; Gailen D Marshall
Journal:  Hum Immunol       Date:  2017-07-14       Impact factor: 2.850

2.  Socioeconomic Predictors of Incident Depression in Systemic Lupus Erythematosus.

Authors:  Natalie Mccormick; Laura Trupin; Edward H Yelin; Patricia P Katz
Journal:  Arthritis Care Res (Hoboken)       Date:  2017-12-08       Impact factor: 4.794

Review 3.  Effective Self-Management Interventions for Patients With Lupus: Potential Impact of Peer Mentoring.

Authors:  Edith M Williams; Leonard Egede; Trevor Faith; James Oates
Journal:  Am J Med Sci       Date:  2017-02-03       Impact factor: 2.378

4.  How do women with lupus manage fatigue? A focus group study.

Authors:  Anne Ørnholt Kier; Julie Midtgaard; Karin Sørig Hougaard; Anja Berggreen; Gunhild Bukh; Renata Baronaite Hansen; Lene Dreyer
Journal:  Clin Rheumatol       Date:  2016-05-25       Impact factor: 2.980

Review 5.  Patient-reported outcome measures for systemic lupus erythematosus clinical trials: a review of content validity, face validity and psychometric performance.

Authors:  Laura Holloway; Louise Humphrey; Louise Heron; Claire Pilling; Helen Kitchen; Lise Højbjerre; Martin Strandberg-Larsen; Brian Bekker Hansen
Journal:  Health Qual Life Outcomes       Date:  2014-07-22       Impact factor: 3.186

6.  How do patients with systemic autoimmune rheumatic disease perceive the use of their medications: a systematic review and thematic synthesis of qualitative research.

Authors:  Hans Haag; Tim Liang; J Antonio Avina-Zubieta; Mary A De Vera
Journal:  BMC Rheumatol       Date:  2018-04-02

7.  Peer approaches to self-management (PALS): comparing a peer mentoring approach for disease self-management in African American women with lupus with a social support control: study protocol for a randomized controlled trial.

Authors:  Edith M Williams; Leonard Egede; Jim C Oates; Clara L Dismuke; Viswanathan Ramakrishnan; Trevor D Faith; Hetlena Johnson; Jillian Rose
Journal:  Trials       Date:  2019-08-23       Impact factor: 2.279

8.  Exploring intentional medication non-adherence in patients with systemic lupus erythematosus: the role of physician-patient interactions.

Authors:  Jerik Leung; Elizabeth A Baker; Alfred H J Kim
Journal:  Rheumatol Adv Pract       Date:  2021-01-24

9.  The Patient Experience of Fatigue in Systemic Lupus Erythematosus: A Conceptual Model.

Authors:  Sophie Cleanthous; Sara Strzok; Birgit Haier; Stefan Cano; Thomas Morel
Journal:  Rheumatol Ther       Date:  2021-10-08

10.  Kynurenine pathway is altered in patients with SLE and associated with severe fatigue.

Authors:  Karolina Åkesson; Susanne Pettersson; Sara Ståhl; Izabella Surowiec; Mattias Hedenström; Susanna Eketjäll; Johan Trygg; Per-Johan Jakobsson; Iva Gunnarsson; Elisabet Svenungsson; Helena Idborg
Journal:  Lupus Sci Med       Date:  2018-05-23
  10 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.