Literature DB >> 28641721

Effective Self-Management Interventions for Patients With Lupus: Potential Impact of Peer Mentoring.

Edith M Williams1, Leonard Egede2, Trevor Faith3, James Oates4.   

Abstract

Systemic lupus erythematosus (SLE) is associated with significant mortality, morbidity and cost for the individual patient and society. In the United States, African Americans (AAs) have 3-4 times greater prevalence of lupus, risk of developing lupus at an earlier age and lupus-related disease activity, organ damage and mortality compared with whites. Evidence-based self-management interventions that incorporate both social support and health education have reduced pain, improved function and delayed disability among patients with lupus. However, AAs and women are still disproportionately affected by lupus. This article presents the argument that peer mentoring may be an especially effective intervention approach for AA women with SLE. SLE peers with a track record of success in lupus management and have a personal perspective that clinicians often lack. This commonality and credibility can establish trust, increase communication and, in turn, decrease disparities in healthcare outcomes.
Copyright © 2017 Southern Society for Clinical Investigation. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  African American; Peer mentoring; Systemic lupus erythematosus; Women

Mesh:

Year:  2017        PMID: 28641721      PMCID: PMC6249683          DOI: 10.1016/j.amjms.2017.01.011

Source DB:  PubMed          Journal:  Am J Med Sci        ISSN: 0002-9629            Impact factor:   2.378


  209 in total

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Journal:  Arthritis Care Res (Hoboken)       Date:  2014-06       Impact factor: 4.794

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Journal:  Arthritis Rheum       Date:  1997-01

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Authors:  Hermine I Brunner; Tina M Sherrard; Marisa S Klein-Gitelman
Journal:  Arthritis Rheum       Date:  2006-04-15

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Journal:  Arch Intern Med       Date:  1998-06-08

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Authors:  H H Hart; R R Grigor; D E Caughey
Journal:  Ann Rheum Dis       Date:  1983-10       Impact factor: 19.103

Review 10.  Understanding the epidemiology and progression of systemic lupus erythematosus.

Authors:  Guillermo J Pons-Estel; Graciela S Alarcón; Lacie Scofield; Leslie Reinlib; Glinda S Cooper
Journal:  Semin Arthritis Rheum       Date:  2009-01-10       Impact factor: 5.532

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  9 in total

1.  Peer-to-Peer Mentoring for African American Women With Lupus: A Feasibility Pilot.

Authors:  Edith M Williams; J Madison Hyer; Ramakrishnan Viswanathan; Trevor D Faith; Delia Voronca; Mulugeta Gebregziabher; Jim C Oates; Leonard Egede
Journal:  Arthritis Care Res (Hoboken)       Date:  2018-04-18       Impact factor: 4.794

2.  Cost-effectiveness of a peer mentoring intervention to improve disease self-management practices and self-efficacy among African American women with systemic lupus erythematosus: analysis of the Peer Approaches to Lupus Self-management (PALS) pilot study.

Authors:  E M Williams; C L Dismuke; T D Faith; B L Smalls; E Brown; J C Oates; L E Egede
Journal:  Lupus       Date:  2019-06-05       Impact factor: 2.911

3.  Development of a digital toolkit to improve quality of life of patients with systemic lupus erythematosus.

Authors:  Jerik Leung; Laura Kloos; Alfred Hj Kim; Elizabeth A Baker
Journal:  Digit Health       Date:  2021-08-10

4.  The Care-coordination Approach to Learning Lupus Self-Management: a patient navigator intervention for systemic lupus inpatients.

Authors:  Ashley A White; Aissatou Ba; Trevor Daniel Faith; Viswanathan Ramakrishnan; Clara L Dismuke-Greer; Jim C Oates; Edith Marie Williams
Journal:  Lupus Sci Med       Date:  2021-05

5.  My life with lupus: contextual responses of African-American women with systemic lupus participating in a peer mentoring intervention to improve disease self-management.

Authors:  Trevor D Faith; Minnjuan Flournoy-Floyd; Kasim Ortiz; Leonard E Egede; Jim C Oates; Edith M Williams
Journal:  BMJ Open       Date:  2018-11-08       Impact factor: 2.692

6.  Peer approaches to self-management (PALS): comparing a peer mentoring approach for disease self-management in African American women with lupus with a social support control: study protocol for a randomized controlled trial.

Authors:  Edith M Williams; Leonard Egede; Jim C Oates; Clara L Dismuke; Viswanathan Ramakrishnan; Trevor D Faith; Hetlena Johnson; Jillian Rose
Journal:  Trials       Date:  2019-08-23       Impact factor: 2.279

7.  Investigating the role of health information technology in the control and management of Systemic Lupus Erythematosus (SLE): a systematic review.

Authors:  Khadijeh Moulaei; Elham Rajaei; Leila Ahmadian; Reza Khajouei
Journal:  BMC Med Inform Decis Mak       Date:  2022-10-08       Impact factor: 3.298

8.  Structural and health system determinants of health outcomes in systemic lupus erythematosus: Understanding the mechanisms underlying health disparities.

Authors:  Jerik Leung; Lily McMorrow; Rhonda BeLue; Elizabeth A Baker
Journal:  Front Public Health       Date:  2022-09-30

9.  Factors associated with self-reported capacity to walk, jog and run in individuals with systemic lupus erythematosus.

Authors:  Gizem İrem Kinikli; Susanne Pettersson; Sevilay Karahan; Iva Gunnarsson; Elisabet Svenungsson; Carina Boström
Journal:  Arch Rheumatol       Date:  2020-12-10       Impact factor: 1.472

  9 in total

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