Literature DB >> 21486888

Information seeking and social support in online health communities: impact on patients' perceived empathy.

Priya Nambisan1.   

Abstract

OBJECTIVE: Many healthcare organizations (HCOs) including Kaiser Permanente, Johns Hopkins, Cleveland Medical Center, and MD Anderson Cancer Center, provide access to online health communities as part of their overall patient support services. The key objective in establishing and running these online health communities is to offer empathic support to patients. Patients' perceived empathy is considered to be critical in patient recovery, specifically, by enhancing patient's compliance with treatment protocols and the pace of healing. Most online health communities are characterized by two main functions: informational support and social support. This study examines the relative impact of these two distinct functions-that is, as an information seeking forum and as a social support forum-on patients' perceived empathy in online health communities.
DESIGN: This study tests the impact of two variables that reflect the above functions of online health communities-information seeking effectiveness and perceived social support-on perceived empathy. The model also incorporates the potential moderating effect of homophily on these relationships. MEASUREMENTS: A web-based survey was used to collect data from members of the online health communities provided by three major healthcare centers. A regression technique was used to analyze the data to test the hypotheses.
RESULTS: The study finds that it is the information seeking effectiveness rather than the social support which affects patient's perceived empathy in online health communities run by HCOs. The results indicate that HCOs that provide online health communities for their patients need to focus more on developing tools that will make information seeking more effective and efficient.

Entities:  

Mesh:

Year:  2011        PMID: 21486888      PMCID: PMC3078657          DOI: 10.1136/amiajnl-2010-000058

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  31 in total

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2.  Characteristics of online and offline health information seekers and factors that discriminate between them.

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3.  Health information, credibility, homophily, and influence via the Internet: Web sites versus discussion groups.

Authors:  Zuoming Wang; Joseph B Walther; Suzanne Pingree; Robert P Hawkins
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4.  Coping with infertility online: an examination of self-help mechanisms in an online infertility support group.

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5.  Breast and prostate cancer online discussion boards: a thematic analysis of gender differences and similarities.

Authors:  Rebecca J Gooden; Helen R Winefield
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6.  The effects of physician empathy on patient satisfaction and compliance.

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9.  Do people experience cognitive biases while searching for information?

Authors:  Annie Y S Lau; Enrico W Coiera
Journal:  J Am Med Inform Assoc       Date:  2007-06-28       Impact factor: 4.497

10.  Social uses of personal health information within PatientsLikeMe, an online patient community: what can happen when patients have access to one another's data.

Authors:  Jeana H Frost; Michael P Massagli
Journal:  J Med Internet Res       Date:  2008-05-27       Impact factor: 5.428

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2.  Does sustained participation in an online health community affect sentiment?

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3.  An online monogenic diabetes discussion group: supporting families and fueling new research.

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4.  Engaging adolescents in a computer-based weight management program: avatars and virtual coaches could help.

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5.  DisVis: Visualizing Discussion Threads in Online Health Communities.

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6.  Finding influential users of online health communities: a new metric based on sentiment influence.

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Review 8.  Understanding health decision making: An exploration of homophily.

Authors:  Donna L Berry; Traci M Blonquist; Rachel Pozzar; Manan M Nayak
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9.  Self-management of buprenorphine/naloxone among online discussion board users.

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Journal:  Subst Use Misuse       Date:  2014-06       Impact factor: 2.164

10.  Analysis of patient organizations' needs and ICT use--The APTIC project in Spain to develop an online collaborative social network.

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Journal:  Health Expect       Date:  2014-03-05       Impact factor: 3.377

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