Literature DB >> 21471426

Decision making in a crowded room: the relational significance of social roles in decisions to proceed with allogeneic stem cell transplantation.

Rowena Forsyth1, Camilla Scanlan, Stacy M Carter, Christopher F C Jordens, Ian Kerridge.   

Abstract

Researchers studying health care decision making generally focus on the interaction that unfolds between patients and health professionals. Using the example of allogeneic bone marrow transplant, in this article we identify decision making to be a relational process concurrently underpinned by patients' engagement with health professionals, their families, and broader social networks. We argue that the person undergoing a transplant simultaneously reconciles numerous social roles throughout treatment decision making, each of which encompasses a system of mutuality, reciprocity, and obligation. As individuals enter through the doorway of the consultation room and become "patients," they do not leave their roles as parents, spouses, and citizens outside in the hallway. Rather, these roles and their relational counterpoints--family members, friends, and colleagues--continue to sit alongside the patient role during clinical interactions. As such, the places that doctors and patients discuss diagnosis and treatment become "crowded rooms" of decision making.

Entities:  

Mesh:

Year:  2011        PMID: 21471426     DOI: 10.1177/1049732311405802

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  9 in total

1.  Trouble in the gap: a bioethical and sociological analysis of informed consent for high-risk medical procedures.

Authors:  Christopher F C Jordens; Kathleen Montgomery; Rowena Forsyth
Journal:  J Bioeth Inq       Date:  2013-01-04       Impact factor: 1.352

2.  Nurses' perspectives on the intersection of safety and informed decision making in maternity care.

Authors:  Carrie H Jacobson; Marya G Zlatnik; Holly Powell Kennedy; Audrey Lyndon
Journal:  J Obstet Gynecol Neonatal Nurs       Date:  2013-09-04

Review 3.  Is 'informed consent' an 'understood consent' in hematopoietic cell transplantation?

Authors:  A D'Souza; M Pasquini; R Spellecy
Journal:  Bone Marrow Transplant       Date:  2014-09-22       Impact factor: 5.483

4.  Triadic treatment decision-making in advanced cancer: a pilot study of the roles and perceptions of patients, caregivers, and oncologists.

Authors:  Thomas W LeBlanc; Nick Bloom; Steven P Wolf; Sarah G Lowman; Kathryn I Pollak; Karen E Steinhauser; Dan Ariely; James A Tulsky
Journal:  Support Care Cancer       Date:  2017-11-04       Impact factor: 3.603

5.  The Difficulties of Informed Consent in Stem Cell Transplant.

Authors:  Rachel J Cook; Lyndsey N Runaas
Journal:  Curr Hematol Malig Rep       Date:  2016-02       Impact factor: 3.952

6.  Situationally-sensitive knowledge translation and relational decision making in hyperacute stroke: a qualitative study.

Authors:  Madeleine J Murtagh; Duika L Burges Watson; K Neil Jenkings; Mabel L S Lie; Joan E Mackintosh; Gary A Ford; Richard G Thomson
Journal:  PLoS One       Date:  2012-06-01       Impact factor: 3.240

7.  "Ultimately, mom has the call": Viewing clinical trial decision making among patients with ovarian cancer through the lens of relational autonomy.

Authors:  Gladys B Asiedu; Jennifer L Ridgeway; Katherine Carroll; Aminah Jatoi; Carmen Radecki Breitkopf
Journal:  Health Expect       Date:  2018-04-14       Impact factor: 3.377

8.  Patient and Provider Perspectives on the Impacts of Unpredictability for Patient Sensemaking: Implications for Intervention Design.

Authors:  Sarah Fadem; Lisa Mikesell
Journal:  J Patient Exp       Date:  2022-03-29

Review 9.  Engaging Older Adults in Health Care Decision-Making: A Realist Synthesis.

Authors:  Jacobi Elliott; Heather McNeil; Jessica Ashbourne; Kelsey Huson; Veronique Boscart; Paul Stolee
Journal:  Patient       Date:  2016-10       Impact factor: 3.883

  9 in total

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