Literature DB >> 26837771

The Difficulties of Informed Consent in Stem Cell Transplant.

Rachel J Cook1, Lyndsey N Runaas2.   

Abstract

Informed consent is the process by which a competent patient is provided with a sufficient amount of relevant information to make an educated decision about a procedure. The process of informed consent is designed to prioritize patients' autonomy. Stem cell transplant (SCT) is a complicated process with many possible results and requirements for on-going decision-making depending on outcomes and complications. While understanding basic theories of decision science will help the physician provide improved information at the time of consent, experiential learning by the patients as they proceed through SCT may have the strongest influence in continued patient decision-making that may or may not align with their initial informed consent.

Entities:  

Keywords:  Autonomy; Informed consent; Stem cell transplant

Mesh:

Year:  2016        PMID: 26837771     DOI: 10.1007/s11899-016-0301-x

Source DB:  PubMed          Journal:  Curr Hematol Malig Rep        ISSN: 1558-8211            Impact factor:   3.952


  19 in total

Review 1.  Numeracy skill and the communication, comprehension, and use of risk-benefit information.

Authors:  Ellen Peters; Judith Hibbard; Paul Slovic; Nathan Dieckmann
Journal:  Health Aff (Millwood)       Date:  2007 May-Jun       Impact factor: 6.301

2.  A piece of my mind. Reframing regret.

Authors:  Katie Watson
Journal:  JAMA       Date:  2014-01-01       Impact factor: 56.272

3.  Hematopoietic cell transplantation (HCT)-specific comorbidity index: a new tool for risk assessment before allogeneic HCT.

Authors:  Mohamed L Sorror; Michael B Maris; Rainer Storb; Frederic Baron; Brenda M Sandmaier; David G Maloney; Barry Storer
Journal:  Blood       Date:  2005-06-30       Impact factor: 22.113

4.  Ethics and clinical research.

Authors:  H K Beecher
Journal:  N Engl J Med       Date:  1966-06-16       Impact factor: 91.245

5.  Practice variation in physician referral for allogeneic hematopoietic cell transplantation.

Authors:  J Pidala; B M Craig; S J Lee; N Majhail; G Quinn; C Anasetti
Journal:  Bone Marrow Transplant       Date:  2012-06-18       Impact factor: 5.483

6.  On the elicitation of preferences for alternative therapies.

Authors:  B J McNeil; S G Pauker; H C Sox; A Tversky
Journal:  N Engl J Med       Date:  1982-05-27       Impact factor: 91.245

7.  Facing haematopoietic stem-cell transplantation: do patients and their physicians agree regarding the prognosis?

Authors:  Norbert Grulke; Harald Bailer
Journal:  Psychooncology       Date:  2010-10       Impact factor: 3.894

8.  Risk assessment for patients with chronic myeloid leukaemia before allogeneic blood or marrow transplantation. Chronic Leukemia Working Party of the European Group for Blood and Marrow Transplantation.

Authors:  A Gratwohl; J Hermans; J M Goldman; W Arcese; E Carreras; A Devergie; F Frassoni; G Gahrton; H J Kolb; D Niederwieser; T Ruutu; J P Vernant; T de Witte; J Apperley
Journal:  Lancet       Date:  1998-10-03       Impact factor: 79.321

9.  A risk score for mortality after allogeneic hematopoietic cell transplantation.

Authors:  Tanyalak Parimon; David H Au; Paul J Martin; Jason W Chien
Journal:  Ann Intern Med       Date:  2006-03-21       Impact factor: 25.391

Review 10.  Is 'informed consent' an 'understood consent' in hematopoietic cell transplantation?

Authors:  A D'Souza; M Pasquini; R Spellecy
Journal:  Bone Marrow Transplant       Date:  2014-09-22       Impact factor: 5.483

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  2 in total

Review 1.  Psychiatric Care in Hematopoietic Stem Cell Transplantation.

Authors:  Zev M Nakamura; Rebekah P Nash; Laura J Quillen; Daniel R Richardson; Rebecca C McCall; Eliza M Park
Journal:  Psychosomatics       Date:  2019-01-19       Impact factor: 2.386

2.  Patient and Provider Perspectives on the Impacts of Unpredictability for Patient Sensemaking: Implications for Intervention Design.

Authors:  Sarah Fadem; Lisa Mikesell
Journal:  J Patient Exp       Date:  2022-03-29
  2 in total

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