Literature DB >> 21464850

Putting the pieces together: endometriosis blogs, cognitive authority, and collaborative information behavior.

Diane M Neal1, Pamela J McKenzie.   

Abstract

OBJECTIVE: A discourse analysis was conducted of peer-written blogs about the chronic illness endometriosis to understand how bloggers present information sources and make cases for and against the authority of those sources.
METHODS: Eleven blogs that were authored by endometriosis patients and focused exclusively or primarily on the authors' experiences with endometriosis were selected. After selecting segments in which the bloggers invoked forms of knowledge and sources of evidence, the text was discursively analyzed to reveal how bloggers establish and dispute the authority of the sources they invoke.
RESULTS: When discussing and refuting authority, the bloggers invoked many sources of evidence, including experiential, peer-provided, biomedical, and intuitive ones. Additionally, they made and disputed claims of cognitive authority via two interpretive repertoires: a concern about the role and interests of the pharmaceutical industry and an understanding of endometriosis as extremely idiosyncratic. Affective authority of information sources was also identified, which presented as social context, situational similarity, or aesthetic or spiritual factors.
CONCLUSIONS: Endometriosis patients may find informational value in blogs, especially for affective support and epistemic experience. Traditional notions of authority might need to be revised for the online environment. Guidelines for evaluating the authority of consumer health information, informed by established readers' advisory practices, are suggested.

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Year:  2011        PMID: 21464850      PMCID: PMC3066582          DOI: 10.3163/1536-5050.99.2.004

Source DB:  PubMed          Journal:  J Med Libr Assoc        ISSN: 1536-5050


  10 in total

1.  "Have you seen your aura lately?" examining boundary-work in holistic health pamphlets.

Authors:  Evelyn Y Ho
Journal:  Qual Health Res       Date:  2007-01

2.  Self-help groups. Introduction to the special issue.

Authors:  T J Borkman
Journal:  Am J Community Psychol       Date:  1991-10

3.  The meaning of 6.8: numeracy and normality in health information talks.

Authors:  V Adelswärd; L Sachs
Journal:  Soc Sci Med       Date:  1996-10       Impact factor: 4.634

4.  Mutual support groups in Great Britain. A survey.

Authors:  L Levy
Journal:  Soc Sci Med       Date:  1982       Impact factor: 4.634

5.  Interpretative repertoires of medication among the oldest-old.

Authors:  K Lumme-Sandt; A Hervonen; M Jylhä
Journal:  Soc Sci Med       Date:  2000-06       Impact factor: 4.634

6.  Thinking differently about thinking positive: a discursive approach to cancer patients' talk.

Authors:  S Wilkinson; C Kitzinger
Journal:  Soc Sci Med       Date:  2000-03       Impact factor: 4.634

7.  Informing evidence: claimsmaking in midwives' and clients' talk about interventions.

Authors:  Pamela J McKenzie; Tami Oliphant
Journal:  Qual Health Res       Date:  2009-11-25

8.  Constructing agency in treatment decisions: negotiating responsibility in cancer.

Authors:  Felicity L Bishop; Lucy Yardley
Journal:  Health (London)       Date:  2004-10

9.  'No one agrees except for those of us who have it': endometriosis patients as an epistemological community.

Authors:  Emma Whelan
Journal:  Sociol Health Illn       Date:  2007-11

10.  Lay information mediary behavior uncovered: exploring how nonprofessionals seek health information for themselves and others online.

Authors:  Jennie A Abrahamson; Karen E Fisher; Anne G Turner; Joan C Durrance; Tammara Combs Turner
Journal:  J Med Libr Assoc       Date:  2008-10
  10 in total
  3 in total

1.  Investigating biomedical research literature in the blogosphere: a case study of diabetes and glycated hemoglobin (HbA1c).

Authors:  Anatoliy Gruzd; Fiona A Black; Thi Ngoc Yen Le; Kathleen Amos
Journal:  J Med Libr Assoc       Date:  2012-01

2.  Therapeutic Affordances of Online Support Group Use in Women With Endometriosis.

Authors:  Amie Shoebotham; Neil S Coulson
Journal:  J Med Internet Res       Date:  2016-05-09       Impact factor: 5.428

Review 3.  Endometriosis: current challenges in modeling a multifactorial disease of unknown etiology.

Authors:  Helena Malvezzi; Eliana Blini Marengo; Sérgio Podgaec; Carla de Azevedo Piccinato
Journal:  J Transl Med       Date:  2020-08-12       Impact factor: 5.531

  3 in total

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