Literature DB >> 21409481

We were chosen as a family: parents' evolving use of religion when their child has cystic fibrosis.

Daniel H Grossoehme1, Judith R Ragsdale, Amy Snow, Michael Seid.   

Abstract

Parental coping with new CF diagnoses often includes religion; however, little is known about how the use of religion changes over time. Longitudinal grounded theory method, in which parents were interviewed twice the 2 years after their child's diagnosis, was used. Parents constructed the meaning that parenting a child with CF is their vocation, in accordance with "God's plan." A shift from isolation to an outward focus and reentry into the community was clear. The use of faith evolved over time and continues to be a source of support and hope for parents. Clinical implications of parental religion are discussed.

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Year:  2012        PMID: 21409481      PMCID: PMC4609445          DOI: 10.1007/s10943-011-9477-5

Source DB:  PubMed          Journal:  J Relig Health        ISSN: 0022-4197


  10 in total

Review 1.  Advances in the conceptualization and measurement of religion and spirituality. Implications for physical and mental health research.

Authors:  Peter C Hill; Kenneth I Pargament
Journal:  Am Psychol       Date:  2003-01

2.  Reports of alcohol-related harm: telephone versus face-to-face interviews.

Authors:  L T Midanik; T K Greenfield; J D Rogers
Journal:  J Stud Alcohol       Date:  2001-01

3.  Religious coping and problem-solving by couples faced with prostate cancer.

Authors:  S M Yoshimoto; S Ghorbani; J M Baer; K W Cheng; R Banthia; V L Malcarne; G R Sadler; C M Ko; H L Greenbergs; J W Varni
Journal:  Eur J Cancer Care (Engl)       Date:  2006-12       Impact factor: 2.520

4.  The provision of hospital chaplaincy in the United States: a national overview.

Authors:  Wendy Cadge; Jeremy Freese; Nicholas A Christakis
Journal:  South Med J       Date:  2008-06       Impact factor: 0.954

5.  Ways of coping with cystic fibrosis: implications for treatment adherence.

Authors:  J Abbott; M Dodd; L Gee; K Webb
Journal:  Disabil Rehabil       Date:  2001-05-20       Impact factor: 3.033

6.  Religious/spiritual coping in childhood cystic fibrosis: a qualitative study.

Authors:  Sara M Pendleton; Kristina S Cavalli; Kenneth I Pargament; Samya Z Nasr
Journal:  Pediatrics       Date:  2002-01       Impact factor: 7.124

7.  Parental depression following the early diagnosis of cystic fibrosis: a matched, prospective study.

Authors:  Claire Glasscoe; Gillian A Lancaster; Rosalind L Smyth; Jonathan Hill
Journal:  J Pediatr       Date:  2007-02       Impact factor: 4.406

Review 8.  Psychological interventions for cystic fibrosis.

Authors:  C A Glasscoe; A L Quittner
Journal:  Cochrane Database Syst Rev       Date:  2003

9.  Differences in young people's reports of sexual behaviors according to interview methodology: a randomized trial in India.

Authors:  Michelle J Hindin; Saifuddin Ahmed
Journal:  Am J Public Health       Date:  2007-11-29       Impact factor: 9.308

10.  Through a mother's lens: a qualitative analysis reveals how temporal experience shifts when a boy born preterm has cystic fibrosis.

Authors:  Claire Glasscoe; Jonathan A Smith
Journal:  Clin Child Psychol Psychiatry       Date:  2008-10       Impact factor: 2.544

  10 in total
  13 in total

1.  Coping, Attributions, and Health Functioning Among Adolescents with Chronic Illness and Their Parents: Reciprocal Relations Over Time.

Authors:  Christina M D'Angelo; Sylvie Mrug; Daniel Grossoehme; David C Schwebel; Nina Reynolds; Kimberly Guion Reynolds
Journal:  J Clin Psychol Med Settings       Date:  2019-12

2.  "A remarkable experience of god, shaping us as a family": parents' use of faith following child's rare disease diagnosis.

Authors:  Hillary N Purcell; Allison Whisenhunt; Joy Cheng; Sophia Dimitriou; Lisa R Young; Daniel H Grossoehme
Journal:  J Health Care Chaplain       Date:  2015

3.  "I didn't know it existed before you called": protestant clergy experience, education and perceptions regarding genetics.

Authors:  Jennifer Lemons; Judy Ragsdale; Lisa Vaughn; Daniel Grossoehme
Journal:  J Genet Couns       Date:  2012-10-10       Impact factor: 2.537

4.  Evolution of Pediatric Chronic Disease Treatment Decisions: A Qualitative, Longitudinal View of Parents' Decision-Making Process.

Authors:  Ellen A Lipstein; Maria T Britto
Journal:  Med Decis Making       Date:  2015-04-21       Impact factor: 2.583

5.  Increased congregational support for parents of children with cystic fibrosis.

Authors:  Rhonda D Szczesniak; Yuanshu Zou; J Denise Wetzel; Neal Krause; Daniel H Grossoehme
Journal:  J Relig Health       Date:  2015-04

6.  Using spirituality after an adult CF diagnosis: cognitive reframing and adherence motivation.

Authors:  Daniel H Grossoehme; Judith R Ragsdale; Sian Cotton; Melenie A Meyers; John P Clancy; Michael Seid; Patricia M Joseph
Journal:  J Health Care Chaplain       Date:  2012

7.  "I honestly believe god keeps me healthy so i can take care of my child": parental use of faith related to treatment adherence.

Authors:  Daniel H Grossoehme; Sian Cotton; Judy Ragsdale; Alexandra L Quittner; Gary McPhail; Michael Seid
Journal:  J Health Care Chaplain       Date:  2013

8.  Chaplaincy and narrative theory: a response to Risk's case study.

Authors:  Daniel H Grossoehme
Journal:  J Health Care Chaplain       Date:  2013

9.  Parent routines for managing cystic fibrosis in children.

Authors:  Daniel H Grossoehme; Stephanie Spear Filigno; Meredith Bishop
Journal:  J Clin Psychol Med Settings       Date:  2014-06

10.  Dyadic Adjustment and Spiritual Activities in Parents of Children with Cystic Fibrosis.

Authors:  Daniel H Grossoehme; Rhonda Szczesniak; Caitlin Dodd; Lisa Opipari-Arrigan
Journal:  Religions (Basel)       Date:  2014-04-11
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