Literature DB >> 21343152

Exploring the reasons urban and rural-dwelling older adults participate in memory research.

Amanda Hunsaker1, C Elizabeth Sarles, Daniel Rosen, Jennifer H Lingler, Marla Bonacile Johnson, Lisa Morrow, Judith Saxton.   

Abstract

This study examines how underrepresented older urban and rural-dwelling individuals conceptualize participation in cognitive impairment studies. Nine focus groups were held with urban and rural-dwelling older adults who had participated in a community-based memory screening study. Expected and experienced benefits of research participation were motivators for study participation in all focus groups. Results indicate that participation in memory research was believed to lead to an understanding of memory function. Focus group participants expressed an active interest in research on dementia, and viewed research participation as a way to address memory concerns and provide a benefit to society.

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Year:  2011        PMID: 21343152      PMCID: PMC3088766          DOI: 10.1177/1533317511399569

Source DB:  PubMed          Journal:  Am J Alzheimers Dis Other Demen        ISSN: 1533-3175            Impact factor:   2.035


  27 in total

1.  Research evaluation and diagnosis of probable Alzheimer's disease over the last two decades: I.

Authors:  O L Lopez; J T Becker; W Klunk; J Saxton; R L Hamilton; D I Kaufer; R A Sweet; C Cidis Meltzer; S Wisniewski; M I Kamboh; S T DeKosky
Journal:  Neurology       Date:  2000-12-26       Impact factor: 9.910

2.  Distrust, race, and research.

Authors:  Giselle Corbie-Smith; Stephen B Thomas; Diane Marie M St George
Journal:  Arch Intern Med       Date:  2002-11-25

3.  Recruitment of rural community-dwelling older adults: barriers, challenges, and strategies.

Authors:  M C Dibartolo; S McCrone
Journal:  Aging Ment Health       Date:  2003-03       Impact factor: 3.658

4.  The influence of risk and monetary payment on the research participation decision making process.

Authors:  J P Bentley; P G Thacker
Journal:  J Med Ethics       Date:  2004-06       Impact factor: 2.903

5.  Caregivers' attitudes toward their family members' participation in Alzheimer disease research: implications for recruitment and retention.

Authors:  C M Connell; B A Shaw; S B Holmes; N L Foster
Journal:  Alzheimer Dis Assoc Disord       Date:  2001 Jul-Sep       Impact factor: 2.703

6.  Urban-rural differences in a memory disorders clinical population.

Authors:  S B Wackerbarth; M M Johnson; W R Markesbery; C D Smith
Journal:  J Am Geriatr Soc       Date:  2001-05       Impact factor: 5.562

Review 7.  Issues affecting minority participation in research studies of Alzheimer disease.

Authors:  Kathleen A Welsh; Edna Ballard; Florence Nash; Kate Raiford; Lindy Harrell
Journal:  Alzheimer Dis Assoc Disord       Date:  1994       Impact factor: 2.703

8.  Identifying undiagnosed dementia in residential care veterans: comparing telemedicine to in-person clinical examination.

Authors:  Molly M Shores; Peggy Ryan-Dykes; Rhonda M Williams; Bless Mamerto; Tatiana Sadak; Marcella Pascualy; Bradford L Felker; Mercedes Zweigle; Paul Nichol; Elaine R Peskind
Journal:  Int J Geriatr Psychiatry       Date:  2004-02       Impact factor: 3.485

9.  Consent and refusal in dementia research: conceptual and practical considerations.

Authors:  J Cohen-Mansfield
Journal:  Alzheimer Dis Assoc Disord       Date:  2003 Apr-Jun       Impact factor: 2.703

10.  Understanding why older people participate in clinical trials: the experience of the Scottish PROSPER participants.

Authors:  Elizabeth P Tolmie; Moira M B Mungall; Greig Louden; Grace M Lindsay; Allan Gaw
Journal:  Age Ageing       Date:  2004-05-19       Impact factor: 10.668

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  2 in total

1.  Older Rural- and Urban-Dwelling Appalachian Adults With Mild Cognitive Impairment.

Authors:  Meghan K Mattos; Beth E Snitz; Jennifer H Lingler; Lora E Burke; Lorraine M Novosel; Susan M Sereika
Journal:  J Rural Health       Date:  2016-08-10       Impact factor: 4.333

2.  Participation of rural patients in clinical trials at a multisite academic medical center.

Authors:  Adil E Bharucha; Chung Il Wi; Sushmitha Grama Srinivasan; Hyuckjae Choi; Phillip H Wheeler; Jennifer R Stavlund; Daniel A Keller; Kent R Bailey; Young J Juhn
Journal:  J Clin Transl Sci       Date:  2021-07-12
  2 in total

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