Literature DB >> 21338028

The right to withdraw from research.

G Owen Schaefer1, Alan Wertheimer.   

Abstract

The right to withdraw from participation in research is recognized in virtually all national and international guidelines for research on human subjects. It is therefore surprising that there has been little justification for that right in the literature. We argue that the right to withdraw should protect research participants from information imbalance, inability to hedge, inherent uncertainty, and untoward bodily invasion, and it serves to bolster public trust in the research enterprise. Although this argument is not radical, it provides a useful way to determine how the right should be applied in various cases.

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Year:  2010        PMID: 21338028

Source DB:  PubMed          Journal:  Kennedy Inst Ethics J        ISSN: 1054-6863


  6 in total

1.  Withdrawing from research: a rethink in the context of research biobanks.

Authors:  Søren Holm
Journal:  Health Care Anal       Date:  2011-09

2.  Participants' responsibilities in clinical research.

Authors:  David B Resnik; Elizabeth Ness
Journal:  J Med Ethics       Date:  2012-07-19       Impact factor: 2.903

3.  Specimen collection for induced pluripotent stem cell research: harmonizing the approach to informed consent.

Authors:  Justin Lowenthal; Scott Lipnick; Mahendra Rao; Sara Chandros Hull
Journal:  Stem Cells Transl Med       Date:  2012-05-08       Impact factor: 6.940

4.  Ethical Considerations Related to Return of Results from Genomic Medicine Projects: The eMERGE Network (Phase III) Experience.

Authors:  Robyn Fossey; David Kochan; Erin Winkler; Joel E Pacyna; Janet Olson; Stephen Thibodeau; John J Connolly; Margaret Harr; Meckenzie A Behr; Cynthia A Prows; Beth Cobb; Melanie F Myers; Nancy D Leslie; Bahram Namjou-Khales; Hila Milo Rasouly; Julia Wynn; Alexander Fedotov; Wendy K Chung; Ali Gharavi; Janet L Williams; Lynn Pais; Ingrid Holm; Sharon Aufox; Maureen E Smith; Aaron Scrol; Kathleen Leppig; Gail P Jarvik; Georgia L Wiesner; Rongling Li; Mary Stroud; Jordan W Smoller; Richard R Sharp; Iftikhar J Kullo
Journal:  J Pers Med       Date:  2018-01-03

Review 5.  Human infection challenge studies in endemic settings and/or low-income and middle-income countries: key points of ethical consensus and controversy.

Authors:  Euzebiusz Jamrozik; Michael J Selgelid
Journal:  J Med Ethics       Date:  2020-05-07       Impact factor: 2.903

6.  The evolution of withdrawal: negotiating research relationships in biobanking.

Authors:  Karen Melham; Linda Briceno Moraia; Colin Mitchell; Michael Morrison; Harriet Teare; Jane Kaye
Journal:  Life Sci Soc Policy       Date:  2014-10-05
  6 in total

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