Literature DB >> 21326261

Ethical issues in developing pharmacogenetic research partnerships with American Indigenous communities.

B B Boyer1, D Dillard, E L Woodahl, R Whitener, K E Thummel, W Burke.   

Abstract

Pharmacogenetic research offers the potential to improve the safety and efficacy of drug prescribing. Assuring that the benefits of this research reach indigenous and other medically underserved people is an important justice concern. First, however, a legacy of mistrust, derived from traditional research practices that disempower communities, must be overcome. Linking pharmacogenetic research to collaborative, power-sharing research partnerships provides a valuable opportunity to develop new and positive precedents for genetic research in indigenous communities.

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Year:  2011        PMID： 21326261      PMCID： PMC3090734          DOI： 10.1038/clpt.2010.303

Source DB:  PubMed          Journal:  Clin Pharmacol Ther        ISSN： 0009-9236            Impact factor:   6.875


  2 in total

1.  Cultural issues in genetic research with American Indian and Alaskan Native people.

Authors:  Malcolm B Bowekaty; Dena S Davis
Journal:  IRB       Date:  2003 Jul-Aug

2.  The Center for Alaska Native Health Research Study: a community-based participatory research study of obesity and chronic disease-related protective and risk factors.

Authors:  Gerald V Mohatt; Rosemarie Plaetke; Joseph Klejka; Bret Luick; Cécile Lardon; Andrea Bersamin; Scarlett Hopkins; Michelle Dondanville; Johanna Herron; Bert Boyer
Journal:  Int J Circumpolar Health       Date:  2007-02       Impact factor: 1.228
  2 in total
  26 in total

1.  Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research.

Authors:  Nanibaa' A Garrison
Journal:  Sci Technol Human Values       Date:  2012-12-21

2.  Inclusion of diverse populations in genomic research and health services: Genomix workshop report.

Authors:  Savio S Mathew; Julian Barwell; Nasaim Khan; Ella Lynch; Michael Parker; Nadeem Qureshi
Journal:  J Community Genet       Date:  2017-07-28

3.  Pharmacogenetic research in partnership with American Indian and Alaska Native communities.

Authors:  Erica L Woodahl; Lawrence J Lesko; Scarlett Hopkins; Renee F Robinson; Kenneth E Thummel; Wylie Burke
Journal:  Pharmacogenomics       Date:  2014-06       Impact factor: 2.533

4.  Variation in genes controlling warfarin disposition and response in American Indian and Alaska Native people: CYP2C9, VKORC1, CYP4F2, CYP4F11, GGCX.

Authors:  Alison E Fohner; Renee Robinson; Joseph Yracheta; Denise A Dillard; Brian Schilling; Burhan Khan; Scarlett Hopkins; Bert Boyer; Jynene Black; Howard Wiener; Hemant K Tiwari; Adam Gordon; Deborah Nickerson; Jesse M Tsai; Federico M Farin; Timothy A Thornton; Allan E Rettie; Kenneth E Thummel
Journal:  Pharmacogenet Genomics       Date:  2015-07       Impact factor: 2.089

5.  Perceptions of pharmacogenetic research to guide tobacco cessation by patients, providers and leaders in a tribal healthcare setting.

Authors:  Jaedon P Avey; Vanessa Y Hiratsuka; Julie A Beans; Susan Brown Trinidad; Rachel F Tyndale; Renee F Robinson
Journal:  Pharmacogenomics       Date:  2016-02-12       Impact factor: 2.533

6.  Why personalized medicine will fail if we stay the course.

Authors:  Edward Ramos; Shawneequa L Callier; Charles N Rotimi
Journal:  Per Med       Date:  2012-11       Impact factor: 2.512

7.  Perspectives on communication and engagement with regard to collecting biospecimens and family health histories for cancer research in a rural Alaska Native community.

Authors:  Lisa G Dirks; Jennifer L Shaw; Vanessa Y Hiratsuka; Julie A Beans; Janet J Kelly; Denise A Dillard
Journal:  J Community Genet       Date:  2019-01-30

8.  Partnership with the Confederated Salish and Kootenai Tribes: Establishing an Advisory Committee for Pharmacogenetic Research.

Authors:  Chelsea T Morales; LeeAnna I Muzquiz; Kevin Howlett; Bernie Azure; Brenda Bodnar; Vernon Finley; Tony Incashola; Cheryl Mathias; Cindi Laukes; Patrick Beatty; Wylie Burke; Mark A Pershouse; Elizabeth A Putnam; Susan Brown Trinidad; Rosalina James; Erica L Woodahl
Journal:  Prog Community Health Partnersh       Date:  2016

9.  Pharmacogenetics in American Indian populations: analysis of CYP2D6, CYP3A4, CYP3A5, and CYP2C9 in the Confederated Salish and Kootenai Tribes.

Authors:  Alison Fohner; LeeAnna I Muzquiz; Melissa A Austin; Andrea Gaedigk; Adam Gordon; Timothy Thornton; Mark J Rieder; Mark A Pershouse; Elizabeth A Putnam; Kevin Howlett; Patrick Beatty; Kenneth E Thummel; Erica L Woodahl
Journal:  Pharmacogenet Genomics       Date:  2013-08       Impact factor: 2.089

10.  Ethics and Community Involvement in Syntheses Concerning American Indian, Alaska Native, or Native Hawaiian Health: A Systematic Review.

Authors:  Matthew O Gribble; Deana M Around Him
Journal:  AJOB Empir Bioeth       Date:  2014-01-01
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