Literature DB >> 21287413

Bad news about bad news: the disclosure of risks to insurability in research consent processes.

Victoria Smith Apold1, Jocelyn Downie.   

Abstract

One of the phenomena associated with research is "incidental findings," that is, unexpected findings made during the research, and outside the scope of the research, which have potential health importance. One underappreciated risk of incidental findings is the potential loss of the research subject's insurability; or if a research subject fails to disclose incidental findings when applying for insurance, the insurance contract may be voidable by the insurer. In this article, we seek to explain the insurability risks associated with incidental findings and to make recommendations for how researchers and research ethics committees should address the issue of disclosure of these risks.

Mesh:

Year:  2011        PMID: 21287413     DOI: 10.1080/08989621.2011.542681

Source DB:  PubMed          Journal:  Account Res        ISSN: 0898-9621            Impact factor:   2.622


  6 in total

1.  Informed consent and genomic incidental findings: IRB chair perspectives.

Authors:  Christian M Simon; Janet K Williams; Laura Shinkunas; Debra Brandt; Sandra Daack-Hirsch; Martha Driessnack
Journal:  J Empir Res Hum Res Ethics       Date:  2011-12       Impact factor: 1.742

2.  Impact of Next Generation Sequencing on the Organization and Funding of Returning Research Results: Survey of Canadian Research Ethics Boards Members.

Authors:  Iris Jaitovich Groisman; Beatrice Godard
Journal:  PLoS One       Date:  2016-05-11       Impact factor: 3.240

Review 3.  Discovery and informing research participants of incidental findings detected in brain magnetic resonance imaging studies: Review and multi-institutional study.

Authors:  Kyoko Takashima; Yoshiyuki Takimoto; Eisuke Nakazawa; Yoshinori Hayashi; Atsushi Tsuchiya; Misao Fujita; Akira Akabayashi
Journal:  Brain Behav       Date:  2017-03-29       Impact factor: 2.708

4.  Reviews of functional MRI: the ethical dimensions of methodological critique.

Authors:  James Anderson; Ania Mizgalewicz; Judy Illes
Journal:  PLoS One       Date:  2012-08-28       Impact factor: 3.240

Review 5.  Use of next generation sequencing technologies in research and beyond: are participants with mental health disorders fully protected?

Authors:  Iris Jaitovich Groisman; Ghislaine Mathieu; Beatrice Godard
Journal:  BMC Med Ethics       Date:  2012-12-20       Impact factor: 2.652

6.  Breast Cancer Risk Estimation and Personal Insurance: A Qualitative Study Presenting Perspectives from Canadian Patients and Decision Makers.

Authors:  Gratien Dalpé; Ida Ngueng Feze; Shahad Salman; Yann Joly; Julie Hagan; Emmanuelle Lévesque; Véronique Dorval; Jolyane Blouin-Bougie; Nabil Amara; Michel Dorval; Jacques Simard
Journal:  Front Genet       Date:  2017-09-21       Impact factor: 4.599

  6 in total

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