Literature DB >> 21285998

Neonatal screening for metabolic and endocrine disorders.

Erik Harms1, Bernhard Olgemöller.   

Abstract

BACKGROUND: Neonatal screening for treatable endocrinopathies and inborn errors of metabolism is an important preventive measure. Advances in the diagnosis and treatment of these diseases have made it necessary to expand the screening program.
METHODS: This article is based on a selective literature review and our clinical experience.
RESULTS: In 2005, neonatal screening in Germany was expanded from 3 to 14 diseases, as mandated by the responsible governmental authority (the Gemeinsamer Bundesausschuss, i.e., Joint Federal Committee). From 2005 to 2008, screening revealed diseases requiring treatment in 1932 out of a total of 2,758,633 newborns (prevalence, 1 in 1428). The expansion of the screening program resulted in a 57% increase in the overall number of cases detected and a 92% increase for metabolic diseases alone.
CONCLUSION: The German neonatal screening program for treatable endocrinopathies and inborn errors of metabolism is a complex and integrated preventive measure that has become markedly more effective as a result of its expansion in 2005.

Entities:  

Mesh:

Year:  2011        PMID: 21285998      PMCID: PMC3026398          DOI: 10.3238/arztebl.2011.0011

Source DB:  PubMed          Journal:  Dtsch Arztebl Int        ISSN: 1866-0452            Impact factor:   5.594


  13 in total

Review 1.  Laboratory integration and utilization of tandem mass spectrometry in neonatal screening: a model for clinical mass spectrometry in the next millennium.

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Journal:  Acta Paediatr Suppl       Date:  1999-12

2.  A SIMPLE PHENYLALANINE METHOD FOR DETECTING PHENYLKETONURIA IN LARGE POPULATIONS OF NEWBORN INFANTS.

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Journal:  Pediatrics       Date:  1963-09       Impact factor: 7.124

3.  Influence of phenylalanine intake on phenylketonuria.

Authors:  H BICKEL; J GERRARD; E M HICKMANS
Journal:  Lancet       Date:  1953-10-17       Impact factor: 79.321

4.  Combining immunoreactive trypsinogen and pancreatitis-associated protein assays, a method of newborn screening for cystic fibrosis that avoids DNA analysis.

Authors:  Jacques Sarles; Patrice Berthézène; Christian Le Louarn; Claude Somma; Jean-Marc Perini; Michael Catheline; Sophie Mirallié; Karine Luzet; Michael Roussey; Jean-Pierre Farriaux; Jacques Berthelot; Jean-Charles Dagorn
Journal:  J Pediatr       Date:  2005-09       Impact factor: 4.406

Review 5.  Neonatal screening for inborn errors of metabolism: cost, yield and outcome.

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Journal:  Health Technol Assess       Date:  1997       Impact factor: 4.014

6.  Guidelines for neonatal screening programmes for congenital hypothyroidism. Working group on congenital hypothyroidism of the European Society for Paediatric Endocrinology.

Authors:  A Grüters; F Delange; G Giovannelli; M Klett; P Rochiccioli; T Torresani; D Grant; O Hnikova; J Maenpää; G F Rondanini
Journal:  Eur J Pediatr       Date:  1993-12       Impact factor: 3.183

7.  [Model project for updating neonatal screening in Bavaria: concept and initial results].

Authors:  B Liebl; R Fingerhut; W Röschinger; A Muntau; I Knerr; B Olgemöller; A Zapf; A A Roscher
Journal:  Gesundheitswesen       Date:  2000-04

8.  [Neonatal screening for hypothyroidism in the Federal Republic of Germany (author's transl)].

Authors:  M Klett; D Schönberg
Journal:  Dtsch Med Wochenschr       Date:  1981-01-02       Impact factor: 0.628

Review 9.  Branched-chain organic acidurias.

Authors:  H Ogier de Baulny; J M Saudubray
Journal:  Semin Neonatol       Date:  2002-02

Review 10.  Clinical effectiveness and cost-effectiveness of neonatal screening for inborn errors of metabolism using tandem mass spectrometry: a systematic review.

Authors:  A Pandor; J Eastham; C Beverley; J Chilcott; S Paisley
Journal:  Health Technol Assess       Date:  2004-03       Impact factor: 4.014

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  10 in total

1.  Incidence of sickle cell disease in an unselected cohort of neonates born in Berlin, Germany.

Authors:  Stephan Lobitz; Claudia Frömmel; Annemarie Brose; Jeannette Klein; Oliver Blankenstein
Journal:  Eur J Hum Genet       Date:  2014-01-08       Impact factor: 4.246

2.  Correspondence (letter to the editor): Comment on the positive predictive value.

Authors:  Christian Wolter
Journal:  Dtsch Arztebl Int       Date:  2011-04-22       Impact factor: 5.594

3.  One-year evaluation of a neonatal screening program for cystic fibrosis in Switzerland.

Authors:  Corina S Rueegg; Claudia E Kuehni; Sabina Gallati; Matthias Baumgartner; Toni Torresani; Juerg Barben
Journal:  Dtsch Arztebl Int       Date:  2013-05-17       Impact factor: 5.594

4.  Expanded Newborn Screening Program in Slovenia using Tandem Mass Spectrometry and Confirmatory Next Generation Sequencing Genetic Testing.

Authors:  Barbka Repič Lampret; Žiga Iztok Remec; Ana Drole Torkar; Mojca Žerjav Tanšek; Andraz Šmon; Vanesa Koračin; Vanja Čuk; Daša Perko; Blanka Ulaga; Ana Marija Jelovšek; Maruša Debeljak; Jernej Kovač; Tadej Battelino; Urh Grošelj
Journal:  Zdr Varst       Date:  2020-10-18

5.  Newborn screening for sickle cell disease: technical and legal aspects of a German pilot study with 38,220 participants.

Authors:  Claudia Frömmel; Annemarie Brose; Jeannette Klein; Oliver Blankenstein; Stephan Lobitz
Journal:  Biomed Res Int       Date:  2014-07-23       Impact factor: 3.411

6.  Newborn Screening in Slovenia.

Authors:  Andraž Šmon; Urh Grošelj; Mojca Žerjav Tanšek; Ajda Biček; Adrijana Oblak; Mirjana Zupančič; Ciril Kržišnik; Barbka Repič Lampr Et; Simona Murko; Sergej Hojker; Tadej Battelino
Journal:  Zdr Varst       Date:  2015-03-13

7.  Selective Screening for Metabolic Disorders in the Slovenian Pediatric Population.

Authors:  Barbka Repič Lampret; Simona Murko; Mojca Žerjav Tanšek; Katarina Trebušak Podkrajšek; Maruša Debeljak; Andraž Šmon; Tadej Battelino
Journal:  J Med Biochem       Date:  2014-10-08       Impact factor: 3.402

Review 8.  Review of 11 national policies for rare diseases in the context of key patient needs.

Authors:  Safiyya Dharssi; Durhane Wong-Rieger; Matthew Harold; Sharon Terry
Journal:  Orphanet J Rare Dis       Date:  2017-03-31       Impact factor: 4.123

9.  Diagnosis of inborn errors of metabolism within the expanded newborn screening in the Madrid region.

Authors:  Álvaro Martín-Rivada; Laura Palomino Pérez; Pedro Ruiz-Sala; Rosa Navarrete; Ana Cambra Conejero; Pilar Quijada Fraile; Ana Moráis López; Amaya Belanger-Quintana; Elena Martín-Hernández; Marcello Bellusci; Elvira Cañedo Villaroya; Silvia Chumillas Calzada; María Teresa García Silva; Ana Bergua Martínez; Sinziana Stanescu; Mercedes Martínez-Pardo Casanova; Miguel L F Ruano; Magdalena Ugarte; Belén Pérez; Consuelo Pedrón-Giner
Journal:  JIMD Rep       Date:  2022-01-27

10.  Global impact of COVID-19 on newborn screening programmes.

Authors:  Vanesa Koracin; Matej Mlinaric; J Gerard Loeber; Tadej Battelino; James R Bonham; Urh Groselj
Journal:  BMJ Glob Health       Date:  2022-03
  10 in total

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