Literature DB >> 21275654

Development of a brochure for increasing awareness of inherited breast cancer in black women.

Susan T Vadaparampil1, Gwendolyn P Quinn, Anxhela Gjyshi, Tuya Pal.   

Abstract

Low levels of awareness about hereditary breast cancer and ovarian cancer and underutilization of genetic services combined with the high incidence of early onset breast cancer in the black community underscore the urgent need to provide information about hereditary breast and ovarian cancer to black women. The primary goal of the present study was to develop a culturally targeted brochure designed to increase awareness about inherited breast cancer among black women using the principles of Learner Verification. Three focus groups were conducted with black women, including those with or without a history of breast cancer (n = 46), to evaluate the brochure. Data were analyzed through hand coding using a simple classification system placing participants' responses in the predetermined Learner Verification categories. On the basis of the feedback obtained, the brochure has been modified to improve cultural-targeting, relevance, and clarity and has been made available for dissemination. Our study illustrates the importance of obtaining feedback from the target audience when developing a culturally targeted informational brochure for black women. Further, the complexity of our subject matter (i.e., inherited breast and ovarian cancer) underscores the importance of using inviting visuals and personal vignettes, while maintaining a simple and clear message.

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Mesh:

Year:  2011        PMID: 21275654      PMCID: PMC4590212          DOI: 10.1089/gtmb.2010.0102

Source DB:  PubMed          Journal:  Genet Test Mol Biomarkers        ISSN: 1945-0257


  31 in total

1.  The association between race and attitudes about predictive genetic testing.

Authors:  Nikki Peters; Abigail Rose; Katrina Armstrong
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2004-03       Impact factor: 4.254

2.  Dilemmas of focus group recruitment and implementation: a pilot perspective.

Authors:  Isis Lioba Howatson-Jones
Journal:  Nurse Res       Date:  2007

3.  Updating and refining a study brochure for a cancer registry-based study of BRCA mutations among young African American breast cancer patients: lessons learned.

Authors:  Susan T Vadaparampil; Tuya Pal
Journal:  J Community Genet       Date:  2010-05-23

4.  Breast cancer risk perception and lifestyle behaviors among White and Black women with a family history of the disease.

Authors:  Denise Spector; Merle Mishel; Celette Sugg Skinner; Lisa A Deroo; Marcia Vanriper; Dale P Sandler
Journal:  Cancer Nurs       Date:  2009 Jul-Aug       Impact factor: 2.592

5.  Guidelines for genetic risk assessment of hereditary breast and ovarian cancer: early disagreements and low utilization.

Authors:  Douglas E Levy; Judy E Garber; Alexandra E Shields
Journal:  J Gen Intern Med       Date:  2009-05-20       Impact factor: 5.128

6.  Association between temporal orientation and attitudes about BRCA1/2 testing among women of African descent with family histories of breast cancer.

Authors:  Tiffany A Edwards; Hayley S Thompson; Naa Oyo A Kwate; Karen Brown; Margaret M McGovern; Andrea Forman; Nidhi Kapil-Pair; Lina Jandorf; Dana H Bovbjerg; Heiddis B Valdimarsdottir
Journal:  Patient Educ Couns       Date:  2008-05-13

7.  Awareness of genetic testing for increased cancer risk in the year 2000 National Health Interview Survey.

Authors:  Louise Wideroff; Susan Thomas Vadaparampil; Nancy Breen; Robert T Croyle; Andrew N Freedman
Journal:  Community Genet       Date:  2003

Review 8.  Interventions to enhance breast cancer screening, diagnosis, and treatment among racial and ethnic minority women.

Authors:  Christopher M Masi; Dionne J Blackman; Monica E Peek
Journal:  Med Care Res Rev       Date:  2007-10       Impact factor: 3.929

9.  Hereditary breast and ovarian cancer syndrome : the impact of race on uptake of genetic counseling and testing.

Authors:  Michael S Simon; Nancie Petrucelli
Journal:  Methods Mol Biol       Date:  2009

10.  Information preferences of women receiving chemotherapy for breast cancer.

Authors:  C Cowan; R Hoskins
Journal:  Eur J Cancer Care (Engl)       Date:  2007-11       Impact factor: 2.520

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  8 in total

1.  Tracking the dissemination of a culturally targeted brochure to promote awareness of hereditary breast and ovarian cancer among Black women.

Authors:  Courtney Lynam Scherr; Linda Bomboka; Alison Nelson; Tuya Pal; Susan Thomas Vadaparampil
Journal:  Patient Educ Couns       Date:  2016-10-31

2.  Development of an evidence-based information booklet to support parents of children without a diagnosis.

Authors:  Celine Lewis; Heather Skirton; Ray Jones
Journal:  J Genet Couns       Date:  2012-04-21       Impact factor: 2.537

3.  Medical mistrust influences black women's level of engagement in BRCA 1/2 genetic counseling and testing.

Authors:  Vanessa B Sheppard; Darren Mays; Thomas LaVeist; Kenneth P Tercyak
Journal:  J Natl Med Assoc       Date:  2013       Impact factor: 1.798

4.  Recruitment of a Population-Based Sample of Young Black Women with Breast Cancer through a State Cancer Registry.

Authors:  Devon Bonner; Deborah Cragun; Monique Reynolds; Susan T Vadaparampil; Tuya Pal
Journal:  Breast J       Date:  2015-12-14       Impact factor: 2.431

5.  Psychosocial impact of BRCA testing in young Black breast cancer survivors.

Authors:  Brian D Gonzalez; Aasha I Hoogland; Monica L Kasting; Deborah Cragun; Jongphil Kim; Kimlin Ashing; Cheryl L Holt; Chanita Hughes Halbert; Tuya Pal; Susan T Vadaparampil
Journal:  Psychooncology       Date:  2018-10-09       Impact factor: 3.894

6.  Protocol for the development and acceptability of a fertility-related decision aid for young women with breast cancer in Portugal.

Authors:  Vânia Gonçalves; Luzia Travado; Pedro Lopes Ferreira; Gwendolyn Quinn
Journal:  BMJ Open       Date:  2019-07-24       Impact factor: 2.692

7.  State of recent literature on communication about cancer genetic testing among Latinx populations.

Authors:  Daniel Chavez-Yenter; Wen-Ying Sylvia Chou; Kimberly A Kaphingst
Journal:  J Genet Couns       Date:  2020-11-03       Impact factor: 2.717

8.  Learner Verification: A Methodology to Create Suitable Education Materials.

Authors:  Enmanuel A Chavarria; Shannon M Christy; Vani N Simmons; Susan T Vadaparampil; Clement K Gwede; Cathy D Meade
Journal:  Health Lit Res Pract       Date:  2021-02-01
  8 in total

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