Literature DB >> 21219224

The Americleft study: an inter-center study of treatment outcomes for patients with unilateral cleft lip and palate part 1. Principles and study design.

Ross E Long1, Ronald Hathaway, John Daskalogiannakis, Ana Mercado, Kathleen Russell, Marilyn Cohen, Gunvor Semb, William Shaw.   

Abstract

OBJECTIVE: The Americleft study is a North American initiative to undertake an intercenter outcome study for patients with repaired complete unilateral cleft lip and palate from five well-established North American cleft centers.
DESIGN: Retrospective cohort study.
SETTING: Five cleft palate centers in North America.
METHODS: This is the first paper in a series of five that outlines the overall goals of the study and sets the basis for the clinical outcome studies that are reported in the following four papers. The five centers' samples and treatment protocols as well as the methods used for each study are reported. The challenges encountered and possible mechanisms to resolve them and reduce methodological error with intercenter studies are also reviewed.

Entities:  

Mesh:

Year:  2011        PMID: 21219224     DOI: 10.1597/09-180.1

Source DB:  PubMed          Journal:  Cleft Palate Craniofac J        ISSN: 1055-6656


  22 in total

1.  Rating nasolabial appearance on three-dimensional images in cleft lip and palate: a comparison with standard photographs.

Authors:  Adam Stebel; Dries Desmedt; Ewald Bronkhorst; Mette A Kuijpers; Piotr S Fudalej
Journal:  Eur J Orthod       Date:  2015-04-21       Impact factor: 3.075

2.  Psychometric findings and normative values for the CLEFT-Q based on 2434 children and young adult patients with cleft lip and/or palate from 12 countries.

Authors:  Anne F Klassen; Karen Wy Wong Riff; Natasha M Longmire; Asteria Albert; Gregory C Allen; Mustafa Asim Aydin; Stephen B Baker; Stefan J Cano; Andrew J Chan; Douglas J Courtemanche; Marieke M Dreise; Jesse A Goldstein; Timothy E E Goodacre; Karen E Harman; Montserrat Munill; Aisling O Mahony; Mirta Palomares Aguilera; Petra Peterson; Andrea L Pusic; Rona Slator; Mia Stiernman; Elena Tsangaris; Sunil S Tholpady; Federico Vargas; Christopher R Forrest
Journal:  CMAJ       Date:  2018-04-16       Impact factor: 8.262

3.  The Americleft Speech Project: A Training and Reliability Study.

Authors:  Kathy L Chapman; Adriane Baylis; Judith Trost-Cardamone; Kelly Nett Cordero; Angela Dixon; Cindy Dobbelsteyn; Anna Thurmes; Kristina Wilson; Anne Harding-Bell; Triona Sweeney; Gregory Stoddard; Debbie Sell
Journal:  Cleft Palate Craniofac J       Date:  2014-12-22

4.  * Tissue Engineering Strategies to Improve Osteogenesis in the Juvenile Swine Alveolar Cleft Model.

Authors:  Montserrat Caballero; Donna C Jones; Zhengyuan Shan; Sajjad Soleimani; John A van Aalst
Journal:  Tissue Eng Part C Methods       Date:  2017-08-31       Impact factor: 3.056

Review 5.  Academic outcomes of children with orofacial clefts: A review of the literature and recommendations for future research.

Authors:  Joanne Constantin; George L Wehby
Journal:  Oral Dis       Date:  2022-02-03       Impact factor: 4.068

6.  Evaluation of the intercanine distance in newborns with cleft lip and palate using 3D digital casts.

Authors:  Bianca Zeponi Fernandes Mello; Viviane Mendes Fernandes; Cleide Felício Carvalho Carrara; Maria Aparecida Andrade Moreira Machado; Daniela Gamba Garib; Thais Marchini Oliveira
Journal:  J Appl Oral Sci       Date:  2013 Sep-Oct       Impact factor: 2.698

7.  Juvenile Swine Surgical Alveolar Cleft Model to Test Novel Autologous Stem Cell Therapies.

Authors:  Montserrat Caballero; Justin C Morse; Alexandra E Halevi; Omri Emodi; Michael R Pharaon; Jeyhan S Wood; John A van Aalst
Journal:  Tissue Eng Part C Methods       Date:  2015-09       Impact factor: 3.056

Review 8.  Three-dimensional imaging methods for quantitative analysis of facial soft tissues and skeletal morphology in patients with orofacial clefts: a systematic review.

Authors:  Mette A R Kuijpers; Yu-Ting Chiu; Rania M Nada; Carine E L Carels; Piotr S Fudalej
Journal:  PLoS One       Date:  2014-04-07       Impact factor: 3.240

Review 9.  Evaluation and integration of disparate classification systems for clefts of the lip.

Authors:  Kathie H Wang; Carrie L Heike; Melissa D Clarkson; Jose L V Mejino; James F Brinkley; Raymond W Tse; Craig B Birgfeld; David A Fitzsimons; Timothy C Cox
Journal:  Front Physiol       Date:  2014-05-14       Impact factor: 4.566

10.  The Americleft Project: Burden of Care from Secondary Surgery.

Authors:  Thomas J Sitzman; Constance A Mara; Ross E Long; John Daskalogiannakis; Kathleen A Russell; Ana M Mercado; Ronald R Hathaway; Adam C Carle; Gunvor Semb; William C Shaw
Journal:  Plast Reconstr Surg Glob Open       Date:  2015-08-10
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