Literature DB >> 21217651

A registry of registries? The US backs the idea for patients.

Monica Heger.   

Abstract

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Year:  2011        PMID： 21217651     DOI： 10.1038/nm0111-4a

Source DB:  PubMed          Journal:  Nat Med        ISSN： 1078-8956            Impact factor:   53.440


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  1 in total

1.  A prospective study of 80,000 total joint and 5000 anterior cruciate ligament reconstruction procedures in a community-based registry in the United States.

Authors:  Elizabeth W Paxton; Robert S Namba; Gregory B Maletis; Monti Khatod; Eric J Yue; Mark Davies; Richard B Low; Ronald W B Wyatt; Maria C S Inacio; T Ted Funahashi
Journal:  J Bone Joint Surg Am       Date:  2010-12       Impact factor: 5.284
  1 in total
  6 in total

1.  Donation intentions for cancer genetics research among African Americans.

Authors:  Jasmine A McDonald; Benita Weathers; Frances K Barg; Andrea B Troxel; Judy A Shea; Deborah Bowen; Carmen E Guerra; Chanita Hughes Halbert
Journal:  Genet Test Mol Biomarkers       Date:  2012-01-06

2.  If you build a rare disease registry, will they enroll and will they use it? Methods and data from the National Registry of Myotonic Dystrophy (DM) and Facioscapulohumeral Muscular Dystrophy (FSHD).

Authors:  James E Hilbert; John T Kissel; Elizabeth A Luebbe; William B Martens; Michael P McDermott; Donald B Sanders; Rabi Tawil; Charles A Thornton; Richard T Moxley
Journal:  Contemp Clin Trials       Date:  2011-11-26       Impact factor: 2.226

Review 3.  Dementia registries around the globe and their applications: A systematic review.

Authors:  Karolina Krysinska; Perminder S Sachdev; John Breitner; Miia Kivipelto; Walter Kukull; Henry Brodaty
Journal:  Alzheimers Dement       Date:  2017-05-30       Impact factor: 21.566

Review 4.  A systematic review of the impact of center volume in dialysis.

Authors:  Dawid Pieper; Tim Mathes; Mark Roger Marshall
Journal:  BMC Res Notes       Date:  2015-12-22

5.  Learning from disease registries during a pandemic: Moving toward an international federation of patient registries.

Authors:  Dmitri Wall; Raed Alhusayen; Bernd Arents; Christian Apfelbacher; Esther A Balogh; Laita Bokhari; Manja Bloem; Angela L Bosma; Tim Burton; Leslie Castelo-Soccio; Nicole Fagan; Steven R Feldman; Godfrey Fletcher; Carsten Flohr; Esther Freeman; Lars E French; Christopher E M Griffiths; George J Hruza; John R Ingram; Michael D Kappelman; Irene Lara-Corrales; Henry W Lim; Nekma Meah; Devon E McMahon; Satveer K Mahil; Ian McNicoll; Annelie Musters; Haley B Naik; Rodney Sinclair; Catherine H Smith; Phyllis Spuls; Desmond J Tobin; Katherine York; Alan D Irvine
Journal:  Clin Dermatol       Date:  2021-04-06       Impact factor: 3.541

6.  Patients' Experiences with Management of Benign Paroxysmal Positional Vertigo: Insights from the Vestibular Disorders Association Registry.

Authors:  Colin R Grove; Wagner Henrique Souza; Patricia L Gerend; Cynthia A Ryan; Michael C Schubert
Journal:  Patient Relat Outcome Meas       Date:  2022-07-06
  6 in total

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