UNLABELLED: Palliative care programmes have the potential to affect several health outcomes for children and families, including reducing decisional conflict. METHOD: A telephone survey was conducted with 140 parents of children with life-limiting illnesses enrolled in Florida's publicly funded paediatric palliative care programme (Partners in Care: Together for Kids). RESULTS: Multivariate results suggest that parents with less than a high school education had decisional conflict scores (DCS) that were 13 points higher (p<0.05) than parents with some college education. In addition, parents who indicated that they had recently made a decision for their children had DCS scores that were 7 points higher (p<0.05) than parents who indicated they had not. DISCUSSION: Our findings suggest that paediatric palliative care programmes should treat parents with lower educational levels as being particularly vulnerable and should consider allocating additional resources to them when a decision for their children is imminent.
UNLABELLED: Palliative care programmes have the potential to affect several health outcomes for children and families, including reducing decisional conflict. METHOD: A telephone survey was conducted with 140 parents of children with life-limiting illnesses enrolled in Florida's publicly funded paediatric palliative care programme (Partners in Care: Together for Kids). RESULTS: Multivariate results suggest that parents with less than a high school education had decisional conflict scores (DCS) that were 13 points higher (p<0.05) than parents with some college education. In addition, parents who indicated that they had recently made a decision for their children had DCS scores that were 7 points higher (p<0.05) than parents who indicated they had not. DISCUSSION: Our findings suggest that paediatric palliative care programmes should treat parents with lower educational levels as being particularly vulnerable and should consider allocating additional resources to them when a decision for their children is imminent.
Authors: Margaret H Barlet; Peter A Ubel; Kevin P Weinfurt; Hannah C Glass; Kathryn I Pollak; Debra H Brandon; Monica E Lemmon Journal: J Pediatr Date: 2022-02-26 Impact factor: 6.314
Authors: Sarah Mitchell; Karina Bennett; Andrew Morris; Anne-Marie Slowther; Jane Coad; Jeremy Dale Journal: Palliat Med Date: 2019-08-21 Impact factor: 4.762