Literature DB >> 21133789

The research ethics committee is not the enemy: oversight of community-based participatory research.

Leslie E Wolf1.   

Abstract

Researchers conducting community-based participatory research (CBPR) often complain about research ethics committee (REC) oversight of their research. RECs may contribute to researchers' frustrations by seemingly focusing on form over substance and by failing to communicate effectively with researchers about their mission and their specific concerns. UCSF CBPR researchers presented their views of the UCSF REC's review of its tobacco use study in "It's Like Tuskegee in Reverse: A Case Study of Ethical Tensions in Institutional Review Board Review of Community-Based Participatory Research." This article builds on that case study by providing some perspectives from the REC side, identifying how the researchers and the REC came to be at odds, and seeking to bridge the gap between the CBPR and REC worlds. In particular, the article explores the different perspectives on who are human subjects under the federal regulations in CBPR research, who counts as the community, and the purpose of REC oversight. It offers concrete suggestions for improving the relationship between CBPR researchers and RECs.

Entities:  

Mesh:

Year:  2010        PMID: 21133789     DOI: 10.1525/jer.2010.5.4.77

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  6 in total

Review 1.  Community-based participatory research and smoking cessation interventions: a review of the evidence.

Authors:  Jeannette O Andrews; Susan D Newman; Janie Heath; Lovoria B Williams; Martha S Tingen
Journal:  Nurs Clin North Am       Date:  2011-12-14       Impact factor: 1.208

2.  Awareness of Federal Regulatory Mechanisms Relevant to Community-Engaged Research: Survey of Health Disparities-Oriented NIH-Funded Investigators.

Authors:  Stephanie M Fullerton; Emily E Anderson; Ketch Cowan; Rachel C Malen; Doug Brugge
Journal:  J Empir Res Hum Res Ethics       Date:  2014-12-10       Impact factor: 1.742

3.  Governing Well in Community-Based Research: Lessons from Canada's HIV Research Sector on Ethics, Publics and the Care of the Self.

Authors:  Adrian Guta; Stuart J Murray; Carol Strike; Sarah Flicker; Ross Upshur; Ted Myers
Journal:  Public Health Ethics       Date:  2016-05-12       Impact factor: 1.940

4.  From subject to participant: ethics and the evolving role of community in health research.

Authors:  Elizabeth Bromley; Lisa Mikesell; Felica Jones; Dmitry Khodyakov
Journal:  Am J Public Health       Date:  2015-03-19       Impact factor: 9.308

Review 5.  Research ethics education for community-engaged research: a review and research agenda.

Authors:  Emily E Anderson; Stephanie Solomon; Elizabeth Heitman; James M DuBois; Celia B Fisher; Rhonda G Kost; Mary Ellen Lawless; Cornelia Ramsey; Bonnie Jones; Alice Ammerman; Lainie Friedman Ross
Journal:  J Empir Res Hum Res Ethics       Date:  2012-04       Impact factor: 1.742

Review 6.  Ethical community-engaged research: a literature review.

Authors:  Lisa Mikesell; Elizabeth Bromley; Dmitry Khodyakov
Journal:  Am J Public Health       Date:  2013-10-17       Impact factor: 9.308

  6 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.