Literature DB >> 21127427

A new instrument to measure quality of life of heart failure family caregivers.

Julie A Nauser1, Tamilyn Bakas, Janet L Welch.   

Abstract

BACKGROUND AND
PURPOSE: Family caregivers of heart failure (HF) patients experience poor physical and mental health leading to poor quality of life. Although several quality-of-life measures exist, they are often too generic to capture the unique experience of this population. The purpose of this study was to evaluate the psychometric properties of the Family Caregiver Quality of Life (FAMQOL) Scale that was designed to assess the physical, psychological, social, and spiritual dimensions of quality of life among caregivers of HF patients. SAMPLE AND METHODS: Psychometric testing of the FAMQOL with 100 HF family caregivers was conducted using item analysis, Cronbach α, intraclass correlation, factor analysis, and hierarchical multiple regression guided by a conceptual model. Caregivers were predominately female (89%), white, (73%), and spouses (62%).
RESULTS: Evidence of internal consistency reliability (α=.89) was provided for the FAMQOL, with item-total correlations of 0.39 to 0.74. Two-week test-retest reliability was supported by an intraclass correlation coefficient of 0.91. Using a 1-factor solution and principal axis factoring, loadings ranged from 0.31 to 0.78, with 41% of the variance explained by the first factor (eigenvalue=6.5). With hierarchical multiple regression, 56% of the FAMQOL variance was explained by model constructs (F8,91=16.56, P<.001). Criterion-related validity was supported by correlations with SF-36 General (r=0.45, P<.001) and Mental (r=0.59, P<.001) Health subscales and Bakas Caregiving Outcomes Scale (r=0.73, P<.001). Evidence of internal and test-retest reliability and construct and criterion validity was provided for physical, psychological, and social well-being subscales.
CONCLUSIONS: The 16-item FAMQOL is a brief, easy-to-administer instrument that has evidence of reliability and validity in HF family caregivers. Physical, psychological, and social well-being can be measured with 4-item subscales. The FAMQOL scale could serve as a valuable measure in research, as well as an assessment tool to identify caregivers in need of intervention.

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Year:  2011        PMID: 21127427     DOI: 10.1097/JCN.0b013e3181e4a313

Source DB:  PubMed          Journal:  J Cardiovasc Nurs        ISSN: 0889-4655            Impact factor:   2.083


  12 in total

1.  Communication Quality Predicts Psychological Well-Being and Satisfaction in Family Surrogates of Hospitalized Older Adults: An Observational Study.

Authors:  Alexia M Torke; Christopher M Callahan; Greg A Sachs; Lucia D Wocial; Paul R Helft; Patrick O Monahan; James E Slaven; Kianna Montz; Emily S Burke; Lev Inger
Journal:  J Gen Intern Med       Date:  2017-11-28       Impact factor: 5.128

2.  Reliability and validity of Family Caregiver Quality of Life Scale in heart failure.

Authors:  Ceren Dülgeroğlu; Aysel Gürkan
Journal:  Turk Gogus Kalp Damar Cerrahisi Derg       Date:  2018-01-09       Impact factor: 0.332

3.  Rehabilitation Enablement in Chronic Heart Failure-a facilitated self-care rehabilitation intervention in patients with heart failure with preserved ejection fraction (REACH-HFpEF) and their caregivers: rationale and protocol for a single-centre pilot randomised controlled trial.

Authors:  V Eyre; C C Lang; K Smith; K Jolly; R Davis; C Hayward; J Wingham; C Abraham; C Green; F C Warren; N Britten; C J Greaves; P Doherty; J Austin; R Van Lingen; S Singh; S Buckingham; K Paul; R S Taylor; H M Dalal
Journal:  BMJ Open       Date:  2016-10-25       Impact factor: 2.692

4.  Caregiver outcomes of the REACH-HF multicentre randomized controlled trial of home-based rehabilitation for heart failure with reduced ejection fraction.

Authors:  Jennifer Wingham; Julia Frost; Nicky Britten; Colin Greaves; Charles Abraham; Fiona C Warren; Kate Jolly; Jackie Miles; Kevin Paul; Patrick J Doherty; Sally Singh; Russell Davies; Miriam Noonan; Hasnain Dalal; Rod S Taylor
Journal:  Eur J Cardiovasc Nurs       Date:  2019-05-22       Impact factor: 3.908

5.  Caregivers of Patients with Heart Failure: Burden and the Determinants of Health-Related Quality of Life.

Authors:  Raquel Lahoz; Clare Proudfoot; Ana Filipa Fonseca; Emil Loefroth; Stefano Corda; James Jackson; Sarah Cotton; Rachel Studer
Journal:  Patient Prefer Adherence       Date:  2021-05-26       Impact factor: 2.711

6.  The Caregiver Burden Questionnaire for Heart Failure (CBQ-HF): face and content validity.

Authors:  Louise Humphrey; Karoly Kulich; Celine Deschaseaux; Steven Blackburn; Laura Maguire; Anna Strömberg
Journal:  Health Qual Life Outcomes       Date:  2013-05-25       Impact factor: 3.186

7.  Clinical effectiveness and cost-effectiveness of the Rehabilitation Enablement in Chronic Heart Failure (REACH-HF) facilitated self-care rehabilitation intervention in heart failure patients and caregivers: rationale and protocol for a multicentre randomised controlled trial.

Authors:  R S Taylor; C Hayward; V Eyre; J Austin; R Davies; P Doherty; K Jolly; J Wingham; R Van Lingen; C Abraham; C Green; F C Warren; N Britten; C J Greaves; S Singh; S Buckingham; K Paul; H Dalal
Journal:  BMJ Open       Date:  2015-12-23       Impact factor: 2.692

8.  A randomised controlled trial of a facilitated home-based rehabilitation intervention in patients with heart failure with preserved ejection fraction and their caregivers: the REACH-HFpEF Pilot Study.

Authors:  Chim C Lang; Karen Smith; Jennifer Wingham; Victoria Eyre; Colin J Greaves; Fiona C Warren; Colin Green; Kate Jolly; Russell C Davis; Patrick Joseph Doherty; Jackie Miles; Nicky Britten; Charles Abraham; Robin Van Lingen; Sally J Singh; Kevin Paul; Melvyn Hillsdon; Susannah Sadler; Christopher Hayward; Hayes M Dalal; Rod S Taylor
Journal:  BMJ Open       Date:  2018-04-09       Impact factor: 2.692

9.  Validation and preliminary data from a health-related quality of life questionnaire for owners of dogs with cardiac disease.

Authors:  Lisa M Freeman; John E Rush; Melissa A Clark; Barret J Bulmer
Journal:  J Vet Intern Med       Date:  2020-05-12       Impact factor: 3.333

10.  Patients with heart failure and their partners with chronic illness: interdependence in multiple dimensions of time.

Authors:  Laura Nimmon; Joanna Bates; Gil Kimel; Lorelei Lingard
Journal:  J Multidiscip Healthc       Date:  2018-03-15
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