Literature DB >> 21126162

Responding to the challenges of parenting a child with cerebral palsy: a focus group.

Koa Whittingham1, Diana Wee, Matthew Sanders, Roslyn Boyd.   

Abstract

PURPOSE: To explore the unique parenting challenges that parents of children with cerebral palsy (CP) face and to explore the feasibility of a new parenting intervention, Stepping Stones Triple P (SSTP), for this population.
METHOD: Focus groups were conducted with parents of children with CP (n = 8) and health professionals with experience in working with families of children with CP (n = 5). The discussion was transcribed verbatim and a descriptive thematic analysis was performed.
RESULTS: Parents stated that knowing whether a particular behaviour is the result of CP or a behavioural issue is challenging. Parents were also keen to promote communication, independence and socialisation in their child. In addition, parents also discussed the challenges of parenting under time pressure, with additional parenting tasks, under public scrutiny and with grief. Both parents and professionals found SSTP to be a feasible and appropriate intervention for parents of children with CP.
CONCLUSIONS: The parents of children with CP in this study faced a range of parenting challenges that may be effectively targeted by a parenting intervention. In addition, parents and health professionals found SSTP content acceptable and feasible for use with parents of children with CP.

Entities:  

Mesh:

Year:  2010        PMID: 21126162     DOI: 10.3109/09638288.2010.535090

Source DB:  PubMed          Journal:  Disabil Rehabil        ISSN: 0963-8288            Impact factor:   3.033


  7 in total

1.  The acceptability of parenting strategies for grandparents providing care to their grandchildren.

Authors:  James N Kirby; Matthew R Sanders
Journal:  Prev Sci       Date:  2014-10

2.  'There is family tension, but they understand…': familial and sibling relationships following the diagnosis of cerebral palsy in children in Ghana.

Authors:  Joslin Alexei Dogbe; Joana D A Kyeremateng; Maxwell Peprah Opoku; William Nketsia; Charles Hammond
Journal:  Int J Dev Disabil       Date:  2019-02-10

3.  How are parental practices and attitudes towards corporal punishment related to child academic, developmental, or psychological-emotional dysfunctioning?

Authors:  Roberto Grujicic; Oliver Toskovic; Ljiljana B Lazarević; Vanja Mandic-Maravic; Marija Mitkovic-Voncina; Ana Radanović; Jelena Radosavljev-Kircanski; Marina Videnović; Tatjana Pekmezovic; Milica Pejovic Milovancevic
Journal:  Eur Child Adolesc Psychiatry       Date:  2022-08-10       Impact factor: 5.349

4.  Associations between child disabilities and caregiver discipline and violence in low- and middle-income countries.

Authors:  Charlene Hendricks; Jennifer E Lansford; Kirby Deater-Deckard; Marc H Bornstein
Journal:  Child Dev       Date:  2013-07-29

5.  Experiences of primary caregivers of children with cerebral palsy across the trajectory of diagnoses in Ghana.

Authors:  Joana D A Kyeremateng; Anthony Edusei; Joslin A Dogbe; Maxwell P Opoku; William Nketsia; Charles Hammond; Sally A Afriyie
Journal:  Afr J Disabil       Date:  2019-09-25

6.  Health-Related Quality of Life and Family Functioning of Primary Caregivers of Children with Cerebral Palsy in Malaysia.

Authors:  Kelvin Ying; Hans Van Rostenberghe; Garry Kuan; Mohammad Haris Amirul Mohd Yusoff; Siti Hawa Ali; Nik Soriani Yaacob
Journal:  Int J Environ Res Public Health       Date:  2021-02-28       Impact factor: 3.390

7.  Children with Developmental Disabilities in Low- and Middle-Income Countries: More Neglected and Physically Punished.

Authors:  Andrea Bizzego; Mengyu Lim; Greta Schiavon; Gianluca Esposito
Journal:  Int J Environ Res Public Health       Date:  2020-09-25       Impact factor: 3.390

  7 in total

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