Literature DB >> 35173962

'There is family tension, but they understand…': familial and sibling relationships following the diagnosis of cerebral palsy in children in Ghana.

Joslin Alexei Dogbe1,2, Joana D A Kyeremateng1, Maxwell Peprah Opoku3, William Nketsia4, Charles Hammond2.   

Abstract

The challenges faced by parents raising children with cerebral palsy (CP) have been well explored in the literature. However, little attention has been paid to the experiences of parents raising children with CP in low-income countries, such as Ghana.
OBJECTIVE: Therefore, the objective of this study was to explore parents' experiences of raising children with CP, specifically focusing on the relationships between spouses and between children with CP and their typically developing siblings.
METHOD: Qualitative semi-structured interviews were conducted with 40 parents, who were purposively selected from the largest tertiary hospital in Ghana.
RESULTS: The results revealed that typically developing children accept their siblings with CP as their equals and even take up domestic responsibilities to lessen the burden on their parents. However, the parents reported experiencing marital and extended family conflict, financial burden and negative attitudes from spouses, resulting in family tensions.
CONCLUSION: The implications of these findings for policy-making have also been discussed. © The British Society of Developmental Disabilities 2019.

Entities:  

Keywords:  Ghana; Relationship; cerebral palsy; family; siblings

Year:  2019        PMID: 35173962      PMCID: PMC8843311          DOI: 10.1080/20473869.2019.1573572

Source DB:  PubMed          Journal:  Int J Dev Disabil        ISSN: 2047-3869


  33 in total

1.  Challenges faced by parents of children diagnosed with autism spectrum disorder.

Authors:  Amanda Ludlow; Charlotte Skelly; Poul Rohleder
Journal:  J Health Psychol       Date:  2011-10-21

2.  Child characteristics, caregiver characteristics, and environmental factors affecting the quality of life of caregivers of children with cerebral palsy.

Authors:  Mei-Hui Tseng; Kuan-Lin Chen; Jeng-Yi Shieh; Lu Lu; Chien-Yu Huang; Rune J Simeonsson
Journal:  Disabil Rehabil       Date:  2016-01-10       Impact factor: 3.033

3.  Being concerned: caregiving for Taiwanese mothers of a child with cerebral palsy.

Authors:  Yu-Ping Huang; Ursula Kellett; Winsome St John
Journal:  J Clin Nurs       Date:  2011-06-27       Impact factor: 3.036

4.  Resilience and impact of children's intellectual disability on Indian parents.

Authors:  Anugraha Merin Rajan; Romate John
Journal:  J Intellect Disabil       Date:  2017-02-07

5.  Children with cerebral palsy in Ghana: malnutrition, feeding challenges, and caregiver quality of life.

Authors:  Sarah Polack; Mel Adams; David O'banion; Marjolein Baltussen; Sandra Asante; Marko Kerac; Melissa Gladstone; Maria Zuurmond
Journal:  Dev Med Child Neurol       Date:  2018-05-07       Impact factor: 5.449

Review 6.  Parents of children with cerebral palsy: a review of factors related to the process of adaptation.

Authors:  I C M Rentinck; M Ketelaar; M J Jongmans; J W Gorter
Journal:  Child Care Health Dev       Date:  2007-03       Impact factor: 2.508

Review 7.  Cerebral palsy.

Authors:  L Andrew Koman; Beth Paterson Smith; Jeffrey S Shilt
Journal:  Lancet       Date:  2004-05-15       Impact factor: 79.321

8.  The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers.

Authors:  E Davis; A Shelly; E Waters; R Boyd; K Cook; M Davern; D Reddihough
Journal:  Child Care Health Dev       Date:  2009-08-21       Impact factor: 2.508

9.  Exploring the later life relationship between adults with cerebral palsy and their non-disabled siblings.

Authors:  Angela Dew; Gwynnyth Llewellyn; Susan Balandin
Journal:  Disabil Rehabil       Date:  2013-07-22       Impact factor: 3.033

10.  Positive change and sense of coherence in Japanese mothers of children with congenital appearance malformation.

Authors:  Tomoko Omiya; Yoshihiko Yamazaki
Journal:  Health Psychol Open       Date:  2017-09-11
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  2 in total

1.  Special educators' intentions towards supporting practice of inclusive education for students with disabilities in secondary schools in Ghana.

Authors:  Maxwell P Opoku
Journal:  Afr J Disabil       Date:  2022-03-31

2.  Nutritional needs of children with disabilities in the UAE: understanding predictors and mediators of nutritional knowledge and practices.

Authors:  Maxwell Peprah Opoku; Ashraf Moustafa; Noora Anwahi; Hala Elhoweris; Fatima Alkatheeri; Najwa Alhosani; Anwar Alameri; Shashidhar Belbase
Journal:  BMC Nutr       Date:  2022-10-04
  2 in total

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