Literature DB >> 20977185

In the public interest: assessing expert and stakeholder influence in public deliberation about biobanks.

Samantha MacLean1, Michael M Burgess.   

Abstract

Providing technical and experiential information without overwhelming participants' perspectives presents a major challenge to public involvement in policy decisions. This article reports the design and analysis of a case study on incorporating expert and stakeholder knowledge without including them as deliberators, while supporting deliberative participants' ability to introduce and critically assess different perspectives. Analysis of audio-recorded deliberations illustrates how expert and stakeholder knowledge was cited, criticized and incorporated into deliberations. In conclusion, separating experts and stakeholders from deliberations may be an important prima facie principle when the goal is to enhance citizen representation on technical issues and related policy.

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Mesh：

Year:  2010        PMID： 20977185     DOI： 10.1177/0963662509335410

Source DB:  PubMed          Journal:  Public Underst Sci        ISSN： 0963-6625


  8 in total

1.  Structuring public engagement for effective input in policy development on human tissue biobanking.

Authors:  Kieran C O'Doherty; A Hawkins
Journal:  Public Health Genomics       Date:  2010-04-15       Impact factor: 2.000

2.  Blueprint for a deliberative public forum on biobanking policy: were theoretical principles achievable in practice?

Authors:  Caron Molster; Susannah Maxwell; Leanne Youngs; Gaenor Kyne; Fiona Hope; Hugh Dawkins; Peter O'Leary
Journal:  Health Expect       Date:  2011-06-07       Impact factor: 3.377

3.  Deliberative engagement: an inclusive methodology for exploring professionalization.

Authors:  Jeffrey Kirby; Christy Simpson
Journal:  HEC Forum       Date:  2012-09

4.  Why and when should we use public deliberation?

Authors:  Stephanie Solomon; Julia Abelson
Journal:  Hastings Cent Rep       Date:  2012 Mar-Apr       Impact factor: 2.683

5.  Factors associated with willingness to participate in biospecimen research among Chinese Americans.

Authors:  Wanzhen Gao; Grace X Ma; Yin Tan; Carolyn Fang; JoEllen Weaver; Ming Jin; Philip Lai
Journal:  Biopreserv Biobank       Date:  2014-04       Impact factor: 2.300

6.  Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.

Authors:  Amy A Lemke; Colin Halverson; Lainie Friedman Ross
Journal:  Am J Med Genet A       Date:  2012-03-21       Impact factor: 2.802

7.  Deliberations with American Indian and Alaska Native People about the Ethics of Genomics: An Adapted Model of Deliberation Used with Three Tribal Communities in the United States.

Authors:  Erika Blacksher; Vanessa Y Hiratsuka; Jessica W Blanchard; Justin R Lund; Justin Reedy; Julie A Beans; Bobby Saunkeah; Micheal Peercy; Christie Byars; Joseph Yracheta; Krystal S Tsosie; Marcia O'Leary; Guthrie Ducheneaux; Paul G Spicer
Journal:  AJOB Empir Bioeth       Date:  2021-06-14

8.  The ASTUTE Health study protocol: deliberative stakeholder engagements to inform implementation approaches to healthcare disinvestment.

Authors:  Amber M Watt; Janet E Hiller; Annette J Braunack-Mayer; John R Moss; Heather Buchan; Janet Wale; Dagmara E Riitano; Katherine Hodgetts; Jackie M Street; Adam G Elshaug
Journal:  Implement Sci       Date:  2012-10-22       Impact factor: 7.327
  8 in total

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