Literature DB >> 20869323

The prevention research centers' managing epilepsy well network.

Colleen K DiIorio1, Yvan A Bamps, Ariele L Edwards, Cam Escoffery, Nancy J Thompson, Charles E Begley, Ross Shegog, Noreen M Clark, Linda Selwa, Shelley C Stoll, Robert T Fraser, Paul Ciechanowski, Erica K Johnson, Rosemarie Kobau, Patricia H Price.   

Abstract

The Managing Epilepsy Well (MEW) Network was created in 2007 by the Centers for Disease Control and Prevention's (CDC) Prevention Research Centers and Epilepsy Program to promote epilepsy self-management research and to improve the quality of life for people with epilepsy. MEW Network membership comprises four collaborating centers (Emory University, University of Texas Health Science Center at Houston, University of Michigan, and University of Washington), representatives from CDC, affiliate members, and community stakeholders. This article describes the MEW Network's background, mission statement, research agenda, and structure. Exploratory and intervention studies conducted by individual collaborating centers are described, as are Network collaborative projects, including a multisite depression prevention intervention and the development of a standard measure of epilepsy self-management. Communication strategies and examples of research translation programs are discussed. The conclusion outlines the Network's role in the future development and dissemination of evidence-based epilepsy self-management programs.
Copyright © 2010 Elsevier Inc. All rights reserved.

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Year:  2010        PMID: 20869323     DOI: 10.1016/j.yebeh.2010.07.027

Source DB:  PubMed          Journal:  Epilepsy Behav        ISSN: 1525-5050            Impact factor:   2.937


  19 in total

1.  News from the CDC: translating epilepsy self-management research to practice.

Authors:  Rosemarie Kobau; Patricia H Price; Nikki A Hawkins
Journal:  Transl Behav Med       Date:  2012-06       Impact factor: 3.046

2.  Beyond pills, machines and surgery: rehabilitation after epilepsy surgery.

Authors:  Barbara C Jobst
Journal:  Epilepsy Curr       Date:  2015 Jan-Feb       Impact factor: 7.500

Review 3.  Research implications of the Institute of Medicine Report, Epilepsy Across the Spectrum: Promoting Health and Understanding.

Authors:  Dale C Hesdorffer; Vicki Beck; Charles E Begley; Malachy L Bishop; Sandra Cushner-Weinstein; Gregory L Holmes; Patricia O Shafer; Joseph I Sirven; Joan K Austin
Journal:  Epilepsia       Date:  2013-01-07       Impact factor: 5.864

4.  Summary of the 2016 Partners Against Mortality in Epilepsy (PAME) Conference.

Authors: 
Journal:  Epilepsy Curr       Date:  2016 Nov-Dec       Impact factor: 7.500

5.  Targeted Self-Management of Epilepsy and Mental Illness for individuals with epilepsy and psychiatric comorbidity.

Authors:  Martha Sajatovic; Curtis Tatsuoka; Elisabeth Welter; Adam T Perzynski; Kari Colon-Zimmermann; Jamie R Van Doren; Ashley Bukach; Mary Ellen Lawless; Eleanor R Ryan; Katherine Sturniolo; Samden Lhatoo
Journal:  Epilepsy Behav       Date:  2016-10-12       Impact factor: 2.937

6.  Self-management for adults with epilepsy: Aggregate Managing Epilepsy Well Network findings on depressive symptoms.

Authors:  Martha Sajatovic; Erica K Johnson; Robert T Fraser; Kristin A Cassidy; Hongyan Liu; Dilip K Pandey; Rakale C Quarells; Peter Scal; Samantha Schmidt; Ross Shegog; Tanya M Spruill; Mary R Janevic; Curtis Tatsuoka; Barbara C Jobst
Journal:  Epilepsia       Date:  2019-09-05       Impact factor: 5.864

7.  Correlates of quality of life among individuals with epilepsy enrolled in self-management research: From the US Centers for Disease Control and Prevention Managing Epilepsy Well Network.

Authors:  Martha Sajatovic; Curtis Tatsuoka; Elisabeth Welter; Daniel Friedman; Tanya M Spruill; Shelley Stoll; Satya S Sahoo; Ashley Bukach; Yvan A Bamps; Joshua Valdez; Barbara C Jobst
Journal:  Epilepsy Behav       Date:  2017-01-27       Impact factor: 2.937

8.  Electronic medical record analysis of emergency room visits and hospitalizations in individuals with epilepsy and mental illness comorbidity.

Authors:  Martha Sajatovic; Elisabeth Welter; Curtis Tatsuoka; Adam T Perzynski; Douglas Einstadter
Journal:  Epilepsy Behav       Date:  2015-06-25       Impact factor: 2.937

9.  Enhancing Multi-Center Patient Cohort Studies in the Managing Epilepsy Well (MEW) Network: Integrated Data Integration and Statistical Analysis.

Authors:  Xinting Hong; Chang Liu; Hasina Momotaz; Kristin Cassidy; Martha Sajatovic; Satya S Sahoo
Journal:  AMIA Annu Symp Proc       Date:  2020-03-04

10.  Insight: An ontology-based integrated database and analysis platform for epilepsy self-management research.

Authors:  Satya S Sahoo; Priya Ramesh; Elisabeth Welter; Ashley Bukach; Joshua Valdez; Curtis Tatsuoka; Yvan Bamps; Shelley Stoll; Barbara C Jobst; Martha Sajatovic
Journal:  Int J Med Inform       Date:  2016-06-23       Impact factor: 4.046

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