Literature DB >> 20858061

Women front and center: the opportunities of involving women in participatory health research worldwide.

Martha Decker1, Anke Hemmerling, Fatimata Lankoande.   

Abstract

Participatory research involving communities, especially women, is increasingly recognized as a valuable and scientifically sound approach to improve the relevance of a study, the accuracy of data collection and interpretation, the adherence to study procedures, and the likelihood of adopting any resulting intervention. This approach has interdisciplinary roots dating back more than half a century. Although widely used in community-based conservation and development projects worldwide, international public health research has yet to fully embrace this inclusive approach, which requires the sharing of power with research participants and a more involved relationship building process with communities. In return, the gap between publication and public action can be narrowed because ownership of the research process by an empowered community can lay the foundation for an accelerated implementation of interventions tailored to community needs and based on research results. This article draws on the professional experiences of the authors as well as published examples of international participatory health research with women. Factors critical for the success of participatory research are discussed, including attention to initial planning, early community involvement, conceptual clarity, defined community benefits, and joint interpretation of results, as well as translation to action. It includes common challenges and strategies to overcome them, such as conflict resolution and data ownership.

Entities:  

Mesh:

Year:  2010        PMID: 20858061     DOI: 10.1089/jwh.2010.2059

Source DB:  PubMed          Journal:  J Womens Health (Larchmt)        ISSN: 1540-9996            Impact factor:   2.681


  7 in total

1.  Navigating the challenges of global reproductive health research.

Authors:  Amy L Stenson; Chisina T Kapungu; Stacie E Geller; Suellen Miller
Journal:  J Womens Health (Larchmt)       Date:  2010-09-19       Impact factor: 2.681

Review 2.  Patient and service user engagement in research: a systematic review and synthesized framework.

Authors:  Nathan D Shippee; Juan Pablo Domecq Garces; Gabriela J Prutsky Lopez; Zhen Wang; Tarig A Elraiyah; Mohammed Nabhan; Juan P Brito; Kasey Boehmer; Rim Hasan; Belal Firwana; Patricia J Erwin; Victor M Montori; M Hassan Murad
Journal:  Health Expect       Date:  2013-06-03       Impact factor: 3.377

3.  Patient Involvement in the Design of a Patient-Centered Clinical Trial to Promote Adherence to Supplemental Oxygen Therapy in COPD.

Authors:  Kristen E Holm; Richard Casaburi; Scott Cerreta; Hélène A Gussin; Julian Husbands; Janos Porszasz; Valentin Prieto-Centurion; Robert A Sandhaus; Jamie L Sullivan; Linda J Walsh; Jerry A Krishnan
Journal:  Patient       Date:  2016-06       Impact factor: 3.883

Review 4.  Patient engagement in research: a systematic review.

Authors:  Juan Pablo Domecq; Gabriela Prutsky; Tarig Elraiyah; Zhen Wang; Mohammed Nabhan; Nathan Shippee; Juan Pablo Brito; Kasey Boehmer; Rim Hasan; Belal Firwana; Patricia Erwin; David Eton; Jeff Sloan; Victor Montori; Noor Asi; Abd Moain Abu Dabrh; Mohammad Hassan Murad
Journal:  BMC Health Serv Res       Date:  2014-02-26       Impact factor: 2.655

5.  The Canadian retinoblastoma research advisory board: a framework for patient engagement.

Authors:  Maxwell J Gelkopf; Iva Avramov; Richelle Baddeliyanage; Ivana Ristevski; Sarah A Johnson; Kaitlyn Flegg; Helen Dimaras
Journal:  Res Involv Engagem       Date:  2020-02-28

6.  Missing Persons Alert: Finding the Lost "Person" in Patient-Oriented Research.

Authors:  Sandy Rao
Journal:  J Patient Exp       Date:  2022-04-11

7.  Teaming up to traverse loneliness: a co-creative journey toward a home care work model for supporting social participation among older adults.

Authors:  Therese Nordin; Anna-Britt Coe; Ingeborg Nilsson
Journal:  BMC Health Serv Res       Date:  2022-09-14       Impact factor: 2.908

  7 in total

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