Literature DB >> 20842714

Measuring process of arthritis care: a proposed set of quality measures for the process of care in juvenile idiopathic arthritis.

Daniel J Lovell1, Murray H Passo, Timothy Beukelman, Suzanne L Bowyer, Beth S Gottlieb, Michael Henrickson, Norman T Ilowite, Yukiko Kimura, Esi Morgan DeWitt, Jill Segerman, Leonard D Stein, Janalee Taylor, Richard K Vehe, Edward H Giannini.   

Abstract

OBJECTIVE: The ability to assess quality of care is a necessary component of continuous quality improvement. The assessment typically is accomplished by determination of compliance with a defined set of quality measures (QMs). The objective of this effort was to establish a set of QMs for the assessment of the process of care in juvenile idiopathic arthritis (JIA).
METHODS: A 12-member working group composed of representatives from the American College of Rheumatology, American Academy of Pediatrics, American Board of Pediatrics, and Association of Rheumatology Health Professionals was assembled to guide the project. Delphi questionnaires were sent to 237 health professionals involved in the care of children with JIA. A total of 471 items in 23 domains were identified. The working group met via 4 live e-meetings during which results from the Delphi questionnaires were distilled to a reduced draft set. Each working group member selected a proposed QM to investigate and present evidence from the literature as to its attributes and appropriateness for inclusion into the set. Nominal group technique was used to come to consensus on a proposed set of QMs.
RESULTS: The proposed set contains 12 QMs within 4 health care domains. Each QM consists of a statement of 1) the assessment to be completed, 2) when the first assessment should be completed and a suggested frequency of assessment during followup, 3) recommendations of appropriate tools or methods of assessment, and 4) initial performance goals.
CONCLUSION: Implementation of the proposed QM set will improve the process of care, facilitate continuous quality improvement, and eventuate in improved health outcomes of children with JIA.
Copyright © 2011 by the American College of Rheumatology.

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Year:  2011        PMID: 20842714      PMCID: PMC3016458          DOI: 10.1002/acr.20348

Source DB:  PubMed          Journal:  Arthritis Care Res (Hoboken)        ISSN: 2151-464X            Impact factor:   4.794


  13 in total

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Authors:  J H Barlow; K L Shaw; C C Wright
Journal:  Arthritis Rheum       Date:  2001-04

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Authors:  C Bombardier; P Tugwell
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5.  Prevalence and complications of uveitis in juvenile idiopathic arthritis in a population-based nation-wide study in Germany: suggested modification of the current screening guidelines.

Authors:  A Heiligenhaus; M Niewerth; G Ganser; C Heinz; K Minden
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7.  Ophthalmologic examinations in children with juvenile rheumatoid arthritis.

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8.  Measuring quality in arthritis care: methods for developing the Arthritis Foundation's quality indicator set.

Authors:  Catherine H MacLean; Kenneth G Saag; Daniel H Solomon; Sally C Morton; Sarah Sampsel; John H Klippel
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9.  Development and preliminary validation of a self-efficacy measure for use among parents of children with juvenile idiopathic arthritis.

Authors:  J H Barlow; K L Shaw; C C Wright
Journal:  Arthritis Care Res       Date:  2000-08

10.  Measurement of health status in children with juvenile rheumatoid arthritis.

Authors:  G Singh; B H Athreya; J F Fries; D P Goldsmith
Journal:  Arthritis Rheum       Date:  1994-12
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Journal:  Arthritis Care Res (Hoboken)       Date:  2012-03       Impact factor: 4.794

2.  Pilot study of reproductive health counseling in a pediatric rheumatology clinic.

Authors:  Tova Ronis; Jennifer Frankovich; Sophia Yen; Christy Sandborg; Peter Chira
Journal:  Arthritis Care Res (Hoboken)       Date:  2014-04       Impact factor: 4.794

3.  Pediatric rheumatology: Strengths and challenges of a new guide for treating JIA.

Authors:  Philip J Hashkes
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4.  Self-reported pain and disease symptoms persist in juvenile idiopathic arthritis despite treatment advances: an electronic diary study.

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Journal:  Arthritis Rheumatol       Date:  2014-02       Impact factor: 10.995

5.  All together now: findings from a PCORI workshop to align patient-reported outcomes in the electronic health record.

Authors:  Roxanne E Jensen; Claire F Snyder; Ethan Basch; Lori Frank; Albert W Wu
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Review 6.  Improving care delivery and outcomes in pediatric rheumatic diseases.

Authors:  Julia G Harris; Catherine A Bingham; Esi M Morgan
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Review 7.  Assessment and management of pain in juvenile idiopathic arthritis.

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8.  Evaluation of quality indicators and disease damage in childhood-onset systemic lupus erythematosus patients.

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Review 9.  Assessment and management of pain in juvenile idiopathic arthritis.

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10.  Determinants of health-related quality of life impairment in Egyptian children and adolescents with juvenile idiopathic arthritis: Sharkia Governorate.

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