Literature DB >> 20804947

Including the perspective of the adolescent in palliative care preferences.

Kathy Christenson1, Sandra A Lybrand, Claudia Ricks Hubbard, Rosemary A Hubble, Leslie Ahsens, Phil Black.   

Abstract

Improving communication with an adolescent with a life-limiting or life-threatening disease is key to providing comprehensive care and support. A pediatric hospital in the Midwest uses a communication tool (CCCT) to facilitate conversations about the adolescent's wishes, beliefs, values, preferences and goals. Information gathered in a CCCT conversation becomes a key intervention to providing compassionate, appropriate care that is directed toward quality of life consistent with the adolescent's and family's goals. Copyright 2010 National Association of Pediatric Nurse Practitioners. Published by Mosby, Inc. All rights reserved.

Mesh:

Year:  2009        PMID: 20804947     DOI: 10.1016/j.pedhc.2009.07.001

Source DB:  PubMed          Journal:  J Pediatr Health Care        ISSN: 0891-5245            Impact factor:   1.812


  6 in total

1.  Palliative care in adolescents and young adults with cancer.

Authors:  Sheila Pritchard; Geoff Cuvelier; Mike Harlos; Ronald Barr
Journal:  Cancer       Date:  2011-05-15       Impact factor: 6.860

Review 2.  Age-Appropriate Advance Care Planning in Children Diagnosed with a Life-Limiting Condition: A Systematic Review.

Authors:  Julie Brunetta; Jurrianne Fahner; Monique Legemaat; Esther van den Bergh; Koen Krommenhoek; Kyra Prinsze; Marijke Kars; Erna Michiels
Journal:  Children (Basel)       Date:  2022-06-03

3.  The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility.

Authors:  Joachim Cohen; Kim Beernaert; Anne van Driessche; Joni Gilissen; Aline De Vleminck; Marijke Kars; Jurrianne Fahner; Jutte van der Werff Ten Bosch; Luc Deliens
Journal:  BMC Pediatr       Date:  2022-04-15       Impact factor: 2.567

4.  Barriers and Facilitators of Palliative Care and Advance Care Planning in Adults With Congenital Heart Disease.

Authors:  Jill M Steiner; Alysha Dhami; Crystal E Brown; Karen K Stout; J Randall Curtis; Ruth A Engelberg; James N Kirkpatrick
Journal:  Am J Cardiol       Date:  2020-08-28       Impact factor: 2.778

5.  Palliative care for adolescents and young adults with cancer.

Authors:  Abby R Rosenberg; Joanne Wolfe
Journal:  Clin Oncol Adolesc Young Adults       Date:  2013-03-24

Review 6.  Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis.

Authors:  Nothando Ngwenya; Charlotte Kenten; Louise Jones; Faith Gibson; Susie Pearce; Mary Flatley; Rachael Hough; L Caroline Stirling; Rachel M Taylor; Geoff Wong; Jeremy Whelan
Journal:  J Adolesc Young Adult Oncol       Date:  2017-01-11       Impact factor: 2.223

  6 in total

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