Literature DB >> 20740097

Reducing collusion between family members and clinicians of patients referred to the palliative care team.

James Alvin Low1, Sim Lai Kiow, Norhisham Main, Koh Kim Luan, Pang Weng Sun, May Lim.   

Abstract

OBJECTIVE: Collusion refers to a secret agreement made between clinicians and family members to hide the diagnosis of a serious or life-threatening illness from the patient. Our goal was to reduce the rate of collusion among the family members of patients referred to our institution's palliative care service such that 80% of patients would be aware of their diagnosis within four weeks of referral to the service. We aimed to achieve this target within six months of starting the project.
METHODS: We undertook a clinical practice improvement project using the methodology of Brent James et al of Intermountain Health to see how we could reduce collusion among clinicians and family members of patients with advanced-stage cancers. This strategy included creating awareness among patients, family, and clinicians of the problems with collusion from the standpoint of each group; adopting an empathetic and compassionate approach to communication; using pamphlets; seeking patients' views; empowering families to reveal the truth to patients; and supporting patients and families until the last moment of each patient's life.
RESULTS: Between December 2004 and June 2008, 655 patients with advanced-stage cancers were referred to us. We were able to maintain an average awareness rate of nearly 80% of patients starting in February 2005, when we implemented awareness measures.
CONCLUSION: The deeply entrenched cultural practice of collusion can be changed with simple strategies based on the universal principles of medical ethics and best practices.

Entities:  

Year:  2009        PMID: 20740097      PMCID: PMC2911829          DOI: 10.7812/TPP/09-058

Source DB:  PubMed          Journal:  Perm J        ISSN: 1552-5767


  7 in total

1.  What is clinical practice improvement?

Authors:  R M Wilson; B T Harrison
Journal:  Intern Med J       Date:  2002 Sep-Oct       Impact factor: 2.048

Review 2.  Reluctance to disclose difficult diagnoses: a narrative review comparing communication by psychiatrists and oncologists.

Authors:  Alex J Mitchell
Journal:  Support Care Cancer       Date:  2007-07       Impact factor: 3.603

3.  Concealment of information in clinical practice: is lying less stressful than telling the truth?

Authors:  Efharis Panagopoulou; Gesthimani Mintziori; Anthony Montgomery; Dorothea Kapoukranidou; Alexis Benos
Journal:  J Clin Oncol       Date:  2008-03-01       Impact factor: 44.544

4.  Protective truthfulness: the Chinese way of safeguarding patients in informed treatment decisions.

Authors:  M C Pang
Journal:  J Med Ethics       Date:  1999-06       Impact factor: 2.903

5.  Attitudes and beliefs of palliative care physicians regarding communication with terminally ill cancer patients.

Authors:  E Bruera; C M Neumann; C Mazzocato; F Stiefel; R Sala
Journal:  Palliat Med       Date:  2000-07       Impact factor: 4.762

6.  Attitudes toward disease and prognosis disclosure and decision making for terminally ill patients in Japan, based on a nationwide random sampling survey of the general population and medical practitioners.

Authors:  Mitsunori Miyashita; Shuji Hashimoto; Masako Kawa; Yasuo Shima; Hiromi Kawagoe; Tsuneto Hase; Yae Shinjo; Keiichi Suemasu
Journal:  Palliat Support Care       Date:  2006-12

7.  Truth may hurt but deceit hurts more: communication in palliative care.

Authors:  L J Fallowfield; V A Jenkins; H A Beveridge
Journal:  Palliat Med       Date:  2002-07       Impact factor: 4.762

  7 in total
  7 in total

1.  Addressing the Concerns Surrounding Continuous Deep Sedation in Singapore and Southeast Asia: A Palliative Care Approach.

Authors:  Lalit Kumar Radha Krishna
Journal:  J Bioeth Inq       Date:  2015-07-15       Impact factor: 1.352

Review 2.  Distancing sedation in end-of-life care from physician-assisted suicide and euthanasia.

Authors:  Tze Ling Gwendoline Beatrice Soh; Lalit Kumar Radha Krishna; Shin Wei Sim; Alethea Chung Peng Yee
Journal:  Singapore Med J       Date:  2016-05       Impact factor: 1.858

3.  Use of Opioids and Sedatives at End-of-Life.

Authors:  Shin Wei Sim; Shirlynn Ho; Radha Krishna Lalit Kumar
Journal:  Indian J Palliat Care       Date:  2014-05

4.  Some Unresolved Ethical Challenges in Healthcare Decision-Making: Navigating Family Involvement.

Authors:  Sumytra Menon; Vikki A Entwistle; Alastair V Campbell; Johannes J M van Delden
Journal:  Asian Bioeth Rev       Date:  2020-03-05

5.  Perceptions of healthcare professionals towards palliative care in internal medicine wards: a cross-sectional survey.

Authors:  Jason Tay; Scott Compton; Gillian Phua; Qingyuan Zhuang; Shirlyn Neo; Guozhang Lee; Limin Wijaya; Min Chiam; Natalie Woong; Lalit Krishna
Journal:  BMC Palliat Care       Date:  2021-06-30       Impact factor: 3.234

6.  Should Patients and Family be Involved in "Do Not Resuscitate" Decisions? Views of Oncology and Palliative Care Doctors and Nurses.

Authors:  Grace M Yang; Ann K Kwee; Lalit Krishna
Journal:  Indian J Palliat Care       Date:  2012-01

7.  Benefit or Harm? A Study on Impact of Collusion on the Quality of Life among Palliative Care Patients.

Authors:  Anju Victor; Carolin Elizabeth George; Leeberk Raja Inbaraj; Gift Norman
Journal:  Indian J Palliat Care       Date:  2018 Jan-Mar
  7 in total

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