Literature DB >> 20733502

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium.

Ellen Wright Clayton1, Maureen Smith, Stephanie M Fullerton, Wylie Burke, Catherine A McCarty, Barbara A Koenig, Amy L McGuire, Laura M Beskow, Lynn Dressler, Amy A Lemke, Erin M Ramos, Laura Lyman Rodriguez.   

Abstract

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Year:  2010        PMID： 20733502      PMCID： PMC3090678          DOI： 10.1097/GIM.0b013e3181efdbd0

Source DB:  PubMed          Journal:  Genet Med        ISSN： 1098-3600            Impact factor:   8.822


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  33 in total

1.  Involving study populations in the review of genetic research.

Authors:  R R Sharp; M W Foster
Journal:  J Law Med Ethics       Date:  2000       Impact factor: 1.718

2.  How (not) to protect genomic data privacy in a distributed network: using trail re-identification to evaluate and design anonymity protection systems.

Authors:  Bradley Malin; Latanya Sweeney
Journal:  J Biomed Inform       Date:  2004-06       Impact factor: 6.317

Review 3.  Integrating ethics and science in the International HapMap Project.

Authors: 
Journal:  Nat Rev Genet       Date:  2004-06       Impact factor: 53.242

4.  Community engagement and informed consent in the International HapMap project.

Authors:  Charles Rotimi; Mark Leppert; Ichiro Matsuda; Changqing Zeng; Houcan Zhang; Clement Adebamowo; Ike Ajayi; Toyin Aniagwu; Missy Dixon; Yoshimitsu Fukushima; Darryl Macer; Patricia Marshall; Chibuzor Nkwodimmah; Andy Peiffer; Charmaine Royal; Eiko Suda; Hui Zhao; Vivian Ota Wang; Jean McEwen
Journal:  Community Genet       Date:  2007

5.  Medicine. Reestablishing the researcher-patient compact.

Authors:  Isaac S Kohane; Kenneth D Mandl; Patrick L Taylor; Ingrid A Holm; Daniel J Nigrin; Louis M Kunkel
Journal:  Science       Date:  2007-05-11       Impact factor: 47.728

6.  Grappling with groups: protecting collective interests in biomedical research.

Authors:  Richard R Sharp; Morris W Foster
Journal:  J Med Philos       Date:  2007 Jul-Aug

7.  Common consent.

Authors: 
Journal:  Nature       Date:  2009-08-20       Impact factor: 49.962

Review 8.  Disclosure of genetic information obtained through research.

Authors:  Kimberly A Quaid; Nenette M Jessup; Eric M Meslin
Journal:  Genet Test       Date:  2004

9.  Assessing the understanding of biobank participants.

Authors:  K E Ormond; A L Cirino; I B Helenowski; R L Chisholm; W A Wolf
Journal:  Am J Med Genet A       Date:  2009-02       Impact factor: 2.802

10.  Subjects matter: a survey of public opinions about a large genetic cohort study.

Authors:  David Kaufman; Juli Murphy; Joan Scott; Kathy Hudson
Journal:  Genet Med       Date:  2008-11       Impact factor: 8.822
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  32 in total

1.  Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience.

Authors:  Amy L McGuire; Melissa Basford; Lynn G Dressler; Stephanie M Fullerton; Barbara A Koenig; Rongling Li; Cathy A McCarty; Erin Ramos; Maureen E Smith; Carol P Somkin; Carol Waudby; Wendy A Wolf; Ellen Wright Clayton
Journal:  Genome Res       Date:  2011-06-01       Impact factor: 9.043

Review 2.  Using electronic health records to drive discovery in disease genomics.

Authors:  Isaac S Kohane
Journal:  Nat Rev Genet       Date:  2011-05-18       Impact factor: 53.242

Review 3.  Identifiability in biobanks: models, measures, and mitigation strategies.

Authors:  Bradley Malin; Grigorios Loukides; Kathleen Benitez; Ellen Wright Clayton
Journal:  Hum Genet       Date:  2011-07-08       Impact factor: 4.132

4.  EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California.

Authors:  Sarah B Garrett; Barbara A Koenig; Arleen Brown; Jen R Hult; Elizabeth A Boyd; Sarah Dry; Daniel Dohan
Journal:  Clin Transl Sci       Date:  2015-01-10       Impact factor: 4.689

5.  Patient preferences toward an interactive e-consent application for research using electronic health records.

Authors:  Christopher A Harle; Elizabeth H Golembiewski; Kiarash P Rahmanian; Janice L Krieger; Dorothy Hagmajer; Arch G Mainous; Ray E Moseley
Journal:  J Am Med Inform Assoc       Date:  2018-03-01       Impact factor: 4.497

6.  Enabling phenotypic big data with PheNorm.

Authors:  Sheng Yu; Yumeng Ma; Jessica Gronsbell; Tianrun Cai; Ashwin N Ananthakrishnan; Vivian S Gainer; Susanne E Churchill; Peter Szolovits; Shawn N Murphy; Isaac S Kohane; Katherine P Liao; Tianxi Cai
Journal:  J Am Med Inform Assoc       Date:  2018-01-01       Impact factor: 4.497

7.  Reporting incidental findings in genomic scale clinical sequencing--a clinical laboratory perspective: a report of the Association for Molecular Pathology.

Authors:  Madhuri Hegde; Sherri Bale; Pinar Bayrak-Toydemir; Jane Gibson; Linda Jo Bone Jeng; Loren Joseph; Jordan Laser; Ira M Lubin; Christine E Miller; Lainie F Ross; Paul G Rothberg; Alice K Tanner; Patrik Vitazka; Rong Mao
Journal:  J Mol Diagn       Date:  2015-02-12       Impact factor: 5.568

8.  Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.

Authors:  Ingrid A Holm; Brittany R Iles; Sonja I Ziniel; Phoebe L Bacon; Sarah K Savage; Kurt D Christensen; Elissa R Weitzman; Robert C Green; Noelle L Huntington
Journal:  J Empir Res Hum Res Ethics       Date:  2015-10       Impact factor: 1.742

9.  Community engagement in US biobanking: multiplicity of meaning and method.

Authors:  K M Haldeman; R J Cadigan; A Davis; A Goldenberg; G E Henderson; D Lassiter; E Reavely
Journal:  Public Health Genomics       Date:  2014-02-19       Impact factor: 2.000

10.  Merging Electronic Health Record Data and Genomics for Cardiovascular Research: A Science Advisory From the American Heart Association.

Authors:  Jennifer L Hall; John J Ryan; Bruce E Bray; Candice Brown; David Lanfear; L Kristin Newby; Mary V Relling; Neil J Risch; Dan M Roden; Stanley Y Shaw; James E Tcheng; Jessica Tenenbaum; Thomas N Wang; William S Weintraub
Journal:  Circ Cardiovasc Genet       Date:  2016-03-14
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