Literature DB >> 20733012

Adolescents living with cancer: the role of computer-mediated support groups.

Laura Elwell1, Sarah Grogan, Neil Coulson.   

Abstract

The present study sought to explore the types of social support being provided to adolescents with cancer accessing a computer-mediated support group. Three hundred and ninety-three messages posted to a computer-mediated support group aimed at adolescents with cancer were coded for instances of informational and emotional support and then subjected to thematic analysis. Analysis revealed frequent instances of both informational and emotional support provision and sub-themes included 'treatment concerns', 'losing friends' and 'struggling with school'. Adolescents were also found to be frequently accessing the group to make requests for social support. It is concluded that health professionals need to tailor the services they provide to adolescent patients more appropriately.

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Mesh：

Year:  2010        PMID： 20733012     DOI： 10.1177/1359105310371398

Source DB:  PubMed          Journal:  J Health Psychol        ISSN： 1359-1053


  12 in total

1.  Peer Support and Mentorship in a US Rare Disease Community: Findings from the Cystinosis in Emerging Adulthood Study.

Authors:  Maya Doyle
Journal:  Patient       Date:  2015-02       Impact factor: 3.883

2.  Web-based self-management for young cancer survivors: consideration of user requirements and barriers to implementation.

Authors:  Louise Moody; Andrew Turner; Jane Osmond; Louise Hooker; Joanna Kosmala-Anderson; Lynn Batehup
Journal:  J Cancer Surviv       Date:  2014-09-19       Impact factor: 4.442

3.  Using social media for support and feedback by mental health service users: thematic analysis of a twitter conversation.

Authors:  Andrew Shepherd; Caroline Sanders; Michael Doyle; Jenny Shaw
Journal:  BMC Psychiatry       Date:  2015-02-19       Impact factor: 3.630

4.  Stroke survivors and their families receive information and support on an individual basis from an online forum: descriptive analysis of a population of 2348 patients and qualitative study of a sample of participants.

Authors:  Anna De Simoni; Andrew Shanks; Chantal Balasooriya-Smeekens; Jonathan Mant
Journal:  BMJ Open       Date:  2016-04-06       Impact factor: 2.692

5.  "I Always Vet Things": Navigating Privacy and the Presentation of Self on Health Discussion Boards Among Individuals with Long-Term Conditions.

Authors:  Ellen Brady; Julia Segar; Caroline Sanders
Journal:  J Med Internet Res       Date:  2016-10-13       Impact factor: 5.428

6.  "You get to know the people and whether they're talking sense or not": Negotiating trust on health-related forums.

Authors:  Ellen Brady; Julia Segar; Caroline Sanders
Journal:  Soc Sci Med       Date:  2016-06-18       Impact factor: 4.634

7.  Accessing support and empowerment online: The experiences of individuals with diabetes.

Authors:  Ellen Brady; Julia Segar; Caroline Sanders
Journal:  Health Expect       Date:  2017-07-18       Impact factor: 3.377

8.  Online support community for adolescents and young adults (AYAs) with cancer: user statistics, evaluation, and content analysis.

Authors:  Suzanne Ej Kaal; Olga Husson; Fleur van Dartel; Karin Hermans; Rosemarie Jansen; Eveliene Manten-Horst; Petra Servaes; Tom H van de Belt; Lucien Jlpg Engelen; Judith B Prins; Suzan Verberne; Winette Ta van der Graaf
Journal:  Patient Prefer Adherence       Date:  2018-12-06       Impact factor: 2.711

9.  Prevalence, Motivations, and Social, Mental Health and Health Consequences of Cyberbullying Among School-Aged Children and Youth: Protocol of a Longitudinal and Multi-Perspective Mixed Method Study.

Authors:  Faye Mishna; Lauren B McInroy; Ashley Lacombe-Duncan; Payal Bhole; Melissa Van Wert; Kaitlin Schwan; Arija Birze; Joanne Daciuk; Tanya Beran; Wendy Craig; Debra J Pepler; Judith Wiener; Mona Khoury-Kassabri; David Johnston
Journal:  JMIR Res Protoc       Date:  2016-05-24

10.  Peer Communication in Online Mental Health Forums for Young People: Directional and Nondirectional Support.

Authors:  Julie Prescott; Terry Hanley; Katalin Ujhelyi
Journal:  JMIR Ment Health       Date:  2017-08-02
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