Literature DB >> 20694760

Resilience, childhood disability and the Internet--case report.

Marianne B Sutton1, Stefanie Windischbauer, Evelyne Magali St John Sutton, Dietmar Weixler.   

Abstract

We describe a family with a severely disabled child who demonstrates many of the characteristics of resilient families: strong relationships, good communication, and profound love of the disabled child. But this family has a characteristic that is infrequently described in the literature yet common in practice: the mother initiated many medical decisions based on knowledge gathered on the Internet. Parental education on the Internet can now allow families to gain a sense of mastery over their child's disease.

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Year:  2010        PMID: 20694760     DOI: 10.1007/s10354-010-0777-2

Source DB:  PubMed          Journal:  Wien Med Wochenschr        ISSN: 0043-5341


  10 in total

1.  A qualitative investigation of changes in the belief systems of families of children with autism or Down syndrome.

Authors:  G A King; L Zwaigenbaum; S King; D Baxter; P Rosenbaum; A Bates
Journal:  Child Care Health Dev       Date:  2006-05       Impact factor: 2.508

Review 2.  The ketogenic diet: one decade later.

Authors:  John M Freeman; Eric H Kossoff; Adam L Hartman
Journal:  Pediatrics       Date:  2007-03       Impact factor: 7.124

Review 3.  Facilitating family resilience with childhood illness and disability.

Authors:  John S Rolland; Froma Walsh
Journal:  Curr Opin Pediatr       Date:  2006-10       Impact factor: 2.856

4.  Child, parent and family factors as predictors of adjustment for siblings of children with a disability.

Authors:  R Giallo; S Gavidia-Payne
Journal:  J Intellect Disabil Res       Date:  2006-12

5.  Quality of life of cancer patients receiving inpatient and home-based palliative care.

Authors:  Louise Peters; Ken Sellick
Journal:  J Adv Nurs       Date:  2006-03       Impact factor: 3.187

6.  Understanding parents' approaches to care and treatment of children with cancer when standard therapy has failed.

Authors:  Myra Bluebond-Langner; Jean Bello Belasco; Ann Goldman; Carmen Belasco
Journal:  J Clin Oncol       Date:  2007-06-10       Impact factor: 44.544

Review 7.  'Is my child developing normally?': a critical review of web-based resources for parents.

Authors:  Nia Williams; Sabena Mughal; Mitch Blair
Journal:  Dev Med Child Neurol       Date:  2008-12       Impact factor: 5.449

8.  Evidence of resilience in families of children with autism.

Authors:  M Bayat
Journal:  J Intellect Disabil Res       Date:  2007-09

9.  Patient-oriented methotrexate information sites on the Internet: a review of completeness, accuracy, format, reliability, credibility, and readability.

Authors:  Andrew E Thompson; Sara L Graydon
Journal:  J Rheumatol       Date:  2009-01       Impact factor: 4.666

10.  Why patients go online: multiple sclerosis, the internet, and physician-patient communication.

Authors:  M Cameron Hay; Cynthia Strathmann; Eli Lieber; Kimberly Wick; Barbara Giesser
Journal:  Neurologist       Date:  2008-11       Impact factor: 1.398

  10 in total

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