Literature DB >> 20686987

Medical decisional capacity among children with HIV.

Tiffany Chenneville1, Kimberly Sibille, Jorge Lujan-Zilbermann, Carina Rodriguez, Michael Brown, Patricia Emmanuel.   

Abstract

Medical decisional capacity (DC) refers to the ability to understand, appreciate, and make meaningful decisions about one's health. This is an important construct for children living with HIV whose involvement in their medical care has important implications for disease management. In this study, we assessed the relationship among DC, developmental stage, intellectual ability, and social-emotional functioning of children with and without HIV infection (n=50). We hypothesized a positive correlation between variables, but did not expect to find a difference in DC between groups. Results provided partial support for our hypotheses. There was a positive relationship between developmental stage and understanding, which is but one dimension of DC. Children with HIV infection obtained significantly lower scores on measures of intellectual and adaptive functioning, but there was no significant difference in DC between groups. Findings suggest that children living with HIV have the capacity to meaningfully participate in their healthcare despite lower intellectual and adaptive functioning.

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Mesh:

Year:  2010        PMID: 20686987      PMCID: PMC4580328          DOI: 10.1080/09540121003758499

Source DB:  PubMed          Journal:  AIDS Care        ISSN: 0954-0121


  9 in total

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Authors:  Terrence F Ackerman
Journal:  IRB       Date:  1990 Sep-Oct

2.  Meaningful participation of minors with HIV/AIDS in decisions regarding medical treatment. Balancing the rights of children, parents, and state.

Authors:  Nancy E Walker
Journal:  Int J Law Psychiatry       Date:  2002 May-Jun

Review 3.  Assessing decisional capacity for clinical research or treatment: a review of instruments.

Authors:  Laura B Dunn; Milap A Nowrangi; Barton W Palmer; Dilip V Jeste; Elyn R Saks
Journal:  Am J Psychiatry       Date:  2006-08       Impact factor: 18.112

4.  Psychological adjustment in children and families living with HIV.

Authors:  Michelle J New; Sonia S Lee; Brenda M Elliott
Journal:  J Pediatr Psychol       Date:  2006-05-11

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Authors:  T Grisso; P S Appelbaum; C Hill-Fotouhi
Journal:  Psychiatr Serv       Date:  1997-11       Impact factor: 3.084

6.  The competency of children and adolescents to make informed treatment decisions.

Authors:  L A Weithorn; S B Campbell
Journal:  Child Dev       Date:  1982-12

7.  Factors associated with parents' decision to disclose their HIV diagnosis to their children.

Authors:  L S Wiener; H B Battles; N E Heilman
Journal:  Child Welfare       Date:  1998 Mar-Apr

8.  Early neurodevelopmental markers predictive of mortality in infants infected with HIV-1.

Authors:  Antolin Llorente; Pim Brouwers; Manhattan Charurat; Laurence Magder; Kathleen Malee; Claude Mellins; Janice Ware; Joan Hittleman; Lynne Mofenson; Jesus Velez-Borras; Samuel Adeniyi-Jones
Journal:  Dev Med Child Neurol       Date:  2003-02       Impact factor: 5.449

9.  Capacity to provide informed consent for participation in schizophrenia and HIV research.

Authors:  David J Moser; Susan K Schultz; Stephan Arndt; Michelle L Benjamin; Frank W Fleming; Colleen S Brems; Jane S Paulsen; Paul S Appelbaum; Nancy C Andreasen
Journal:  Am J Psychiatry       Date:  2002-07       Impact factor: 18.112

  9 in total
  5 in total

1.  Contributions of Disease Severity, Psychosocial Factors, and Cognition to Behavioral Functioning in US Youth Perinatally Exposed to HIV.

Authors:  Katrina D Hermetet-Lindsay; Katharine F Correia; Paige L Williams; Renee Smith; Kathleen M Malee; Claude A Mellins; Richard M Rutstein
Journal:  AIDS Behav       Date:  2017-09

2.  A randomized clinical trial of adolescents with HIV/AIDS: pediatric advance care planning.

Authors:  Maureen E Lyon; Lawrence J D'Angelo; Ronald H Dallas; Pamela S Hinds; Patricia A Garvie; Megan L Wilkins; Ana Garcia; Linda Briggs; Patricia M Flynn; Sohail R Rana; Yao Iris Cheng; Jichuan Wang
Journal:  AIDS Care       Date:  2017-03-30

3.  Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature.

Authors:  Megan L Wilkins; Ronald H Dallas; Kathleen E Fanone; Maureen E Lyon
Journal:  HIV AIDS (Auckl)       Date:  2013-07-29

4.  Development and pilot evaluation of a home-based palliative care training and support package for young children in southern Africa.

Authors:  Sara Naomi Naicker; Linda Richter; Alan Stein; Laura Campbell; Joan Marston
Journal:  BMC Palliat Care       Date:  2016-04-09       Impact factor: 3.234

5.  Design and Validation of an Instrument To Measure a Minor's Maturity When Faced with Health Decisions.

Authors:  Eva Miquel; Montserrat Esquerda; Jordi Real; Mariola Espejo; Josep Pifarré
Journal:  J Bioeth Inq       Date:  2019-08-01       Impact factor: 1.352

  5 in total

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