Literature DB >> 20658424

We can handle this: parents' use of religion in the first year following their child's diagnosis with cystic fibrosis.

Daniel H Grossoehme1, Judy Ragsdale, Jamie L Wooldridge, Sian Cotton, Michael Seid.   

Abstract

The diagnosis of a child's life-shortening disease leads many American parents to utilize religious beliefs. Models relating religious constructs to health have been proposed. Still lacking are inductive models based on parent experience. The specific aims of this study were: 1. develop a grounded theory of parental use of religion in the year after diagnosis; 2. describe whether parents understand a relationship between their religious beliefs and their follow-through with their child's at-home treatment regimen. Fifteen parent interviews were analyzed using grounded theory method. Parents used religion to make meaning of their child's cystic fibrosis (CF) diagnosis. Parents imagined God as active, benevolent, and interventionist; found hope in their beliefs; felt supported by God; and related religion to their motivation to adhere to their child's treatment plan. Religious beliefs are clinically significant in working with many parents of children recently diagnosed with CF. Interventions that improve adherence to treatment may be enhanced by including religious aspects.

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Mesh:

Year:  2010        PMID: 20658424      PMCID: PMC4609440          DOI: 10.1080/08854726.2010.480833

Source DB:  PubMed          Journal:  J Health Care Chaplain        ISSN: 0885-4726


  35 in total

1.  Taking a spiritual history allows clinicians to understand patients more fully.

Authors:  C Puchalski; A L Romer
Journal:  J Palliat Med       Date:  2000       Impact factor: 2.947

2.  Coping processes in a multidisciplinary healthcare team--a comparison of nurses in cancer care and hospital chaplains.

Authors:  M Ekedahl; Y Wengström
Journal:  Eur J Cancer Care (Engl)       Date:  2008-01       Impact factor: 2.520

3.  Husbands' perspective of living with wives' ovarian cancer.

Authors:  Julie Ann Ponto; Debra Barton
Journal:  Psychooncology       Date:  2008-12       Impact factor: 3.894

4.  Red flags and religious coping: identifying some religious warning signs among people in crisis.

Authors:  K I Pargament; B J Zinnbauer; A B Scott; E M Butter; J Zerowin; P Stanik
Journal:  J Clin Psychol       Date:  1998-01

5.  Dynamics of a stressful encounter: cognitive appraisal, coping, and encounter outcomes.

Authors:  S Folkman; R S Lazarus; C Dunkel-Schetter; A DeLongis; R J Gruen
Journal:  J Pers Soc Psychol       Date:  1986-05

6.  Spirituality's role in chronic disease self-management: sanctification of the body in families dealing with cystic fibrosis.

Authors:  Daniel H Grossoehme; Rhonda VanDyke; Michael Seid
Journal:  J Health Care Chaplain       Date:  2008

7.  Religious/spiritual coping in childhood cystic fibrosis: a qualitative study.

Authors:  Sara M Pendleton; Kristina S Cavalli; Kenneth I Pargament; Samya Z Nasr
Journal:  Pediatrics       Date:  2002-01       Impact factor: 7.124

8.  The relevance of spirituality, religion and personal beliefs to health-related quality of life: themes from focus groups in Britain.

Authors:  Kathryn A O'Connell; Suzanne M Skevington
Journal:  Br J Health Psychol       Date:  2005-09

9.  Religiosity and coping in mothers of children diagnosed with cancer: an exploratory analysis.

Authors:  T David Elkin; Scott A Jensen; Lacy McNeil; Mary Elizabeth Gilbert; Jeanette Pullen; Linda McComb
Journal:  J Pediatr Oncol Nurs       Date:  2007 Sep-Oct       Impact factor: 1.636

Review 10.  Evidence-based practice recommendations for nutrition-related management of children and adults with cystic fibrosis and pancreatic insufficiency: results of a systematic review.

Authors:  Virginia A Stallings; Lori J Stark; Karen A Robinson; Andrew P Feranchak; Hebe Quinton
Journal:  J Am Diet Assoc       Date:  2008-05
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  16 in total

1.  "A remarkable experience of god, shaping us as a family": parents' use of faith following child's rare disease diagnosis.

Authors:  Hillary N Purcell; Allison Whisenhunt; Joy Cheng; Sophia Dimitriou; Lisa R Young; Daniel H Grossoehme
Journal:  J Health Care Chaplain       Date:  2015

2.  "I didn't know it existed before you called": protestant clergy experience, education and perceptions regarding genetics.

Authors:  Jennifer Lemons; Judy Ragsdale; Lisa Vaughn; Daniel Grossoehme
Journal:  J Genet Couns       Date:  2012-10-10       Impact factor: 2.537

3.  Increased congregational support for parents of children with cystic fibrosis.

Authors:  Rhonda D Szczesniak; Yuanshu Zou; J Denise Wetzel; Neal Krause; Daniel H Grossoehme
Journal:  J Relig Health       Date:  2015-04

Review 4.  Overview of qualitative research.

Authors:  Daniel H Grossoehme
Journal:  J Health Care Chaplain       Date:  2014

5.  Testing the Validity of a Protocol to Screen for Spiritual Struggle among Parents of Children with Cystic Fibrosis.

Authors:  Daniel H Grossoehme; George Fitchett
Journal:  Res Soc Sci Study Relig       Date:  2013

6.  Use of the Daily Phone Diary to Study Religiosity and Mood: Convergent Validity.

Authors:  Rhonda D Szczesniak; Yuanshu Zou; Sophia M Dimitriou; Alexandra L Quittner; Daniel H Grossoehme
Journal:  J Health Care Chaplain       Date:  2016-11-21

7.  Adherence Determinants in Cystic Fibrosis: Cluster Analysis of Parental Psychosocial, Religious, and/or Spiritual Factors.

Authors:  Daniel H Grossoehme; Rhonda D Szczesniak; LaCrecia L Britton; Christopher M Siracusa; Alexandra L Quittner; Barbara A Chini; Sophia M Dimitriou; Michael Seid
Journal:  Ann Am Thorac Soc       Date:  2015-06

8.  Using spirituality after an adult CF diagnosis: cognitive reframing and adherence motivation.

Authors:  Daniel H Grossoehme; Judith R Ragsdale; Sian Cotton; Melenie A Meyers; John P Clancy; Michael Seid; Patricia M Joseph
Journal:  J Health Care Chaplain       Date:  2012

9.  "I honestly believe god keeps me healthy so i can take care of my child": parental use of faith related to treatment adherence.

Authors:  Daniel H Grossoehme; Sian Cotton; Judy Ragsdale; Alexandra L Quittner; Gary McPhail; Michael Seid
Journal:  J Health Care Chaplain       Date:  2013

10.  Chaplaincy and narrative theory: a response to Risk's case study.

Authors:  Daniel H Grossoehme
Journal:  J Health Care Chaplain       Date:  2013
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