Literature DB >> 20623417

Is there an "ideal cancer" support group? Key findings from a qualitative study of three groups.

Kirsten Bell1, Joyce Lee, Sydney Foran, Sandy Kwong, John Christopherson.   

Abstract

The objective of this study was to study differently composed cancer support groups to generate insights into what groups are attractive to the widest range of participants, and how they might be best structured and composed. This study applied a qualitative design utilizing participant observation at three cancer support groups (a group for women with metastatic cancer, a colorectal cancer support group, and a group for Chinese cancer patients) and in-depth interviews (N = 23) with group members as the primary data collection methods. Despite the diverse composition of the groups, their perceived benefits were similar, and informants highlighted the information, acceptance, and understanding they received in the support group environment. However, gender and cultural differences were found in attendance patterns and the desired content of group meetings. Importantly, participants' motivations for attending cancer support groups also changed as they moved through the treatment trajectory: over time the need for information was at least partially replaced by a need for support and understanding. This study supports prior research findings that there is no ideal support group, nor is there a "magical formula" for attracting and retaining a diverse audience. However, including an educational component in support groups may increase the participation of currently underrepresented populations such as men and patients from culturally diverse backgrounds.

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Year:  2010        PMID: 20623417     DOI: 10.1080/07347332.2010.488140

Source DB:  PubMed          Journal:  J Psychosoc Oncol        ISSN: 0734-7332


  10 in total

1.  Educational and Psychosocial Support Needs in Lynch Syndrome: Implementation and Assessment of an Educational Workshop and Support Group.

Authors:  Marina J Corines; Jada G Hamilton; Emily Glogowski; Chris A Anrig; Rachael Goldberg; Kate Niehaus; Erin Salo-Mullen; Megan Harlan; Margaret R Sheehan; Magan Trottier; Asad Ahsraf; Christina Tran; Lauren Jacobs; Rohini Rau-Murthy; Anne G Lincoln; Mark E Robson; Jose G Guillem; Arnold J Markowitz; Kenneth Offit; Zsofia K Stadler
Journal:  J Genet Couns       Date:  2016-10-12       Impact factor: 2.537

2.  A qualitative analysis of the benefits and barriers of support groups for patients with brain tumours and their caregivers.

Authors:  Sasha Mallya; Maureen Daniels; Cheryl Kanter; Alyson Stone; Amanda Cipolla; Kim Edelstein; Norma D'Agostino
Journal:  Support Care Cancer       Date:  2019-10-22       Impact factor: 3.603

3.  The caregivers' perspective on the end-of-life phase of glioblastoma patients.

Authors:  Birgit Flechl; Michael Ackerl; Cornelia Sax; Stefan Oberndorfer; Bernadette Calabek; Eefje Sizoo; Jaap Reijneveld; Richard Crevenna; Mohammad Keilani; Alexander Gaiger; Karin Dieckmann; Matthias Preusser; Martin J B Taphoorn; Christine Marosi
Journal:  J Neurooncol       Date:  2013-02-15       Impact factor: 4.130

Review 4.  Self-management support from the perspective of patients with a chronic condition: a thematic synthesis of qualitative studies.

Authors:  Jolanda Dwarswaard; Ellen J M Bakker; AnneLoes van Staa; Hennie R Boeije
Journal:  Health Expect       Date:  2015-01-26       Impact factor: 3.377

5.  Deconstructing therapeutic mechanisms in cancer support groups: do we express more emotion when we tell stories or talk directly to each other?

Authors:  Rie Tamagawa; Yong Li; Theo Gravity; Karen Altree Piemme; Sue DiMiceli; Kate Collie; Janine Giese-Davis
Journal:  J Behav Med       Date:  2014-08-06

6.  Dignity and deferral narratives as strategies in facilitated technology-based support groups for people with advanced cancer.

Authors:  Annette F Street; Kate Wakelin; Amanda Hordern; Nicola Bruce; Dell Horey
Journal:  Nurs Res Pract       Date:  2012-02-22

Review 7.  The accessibility and acceptability of self-management support interventions for men with long term conditions: a systematic review and meta-synthesis of qualitative studies.

Authors:  Paul Galdas; Zoe Darwin; Lisa Kidd; Christian Blickem; Kerri McPherson; Kate Hunt; Peter Bower; Simon Gilbody; Gerry Richardson
Journal:  BMC Public Health       Date:  2014-11-27       Impact factor: 3.295

Review 8.  The Effectiveness of Support Groups in Asian Breast Cancer Patients: An Integrative Review.

Authors:  Fang-Yu Chou; Frances Lee-Lin; Lily Y Kuang
Journal:  Asia Pac J Oncol Nurs       Date:  2016 Apr-Jun

9.  "You Obviously Just Have to Put on a Brave Face": A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis.

Authors:  Caroline A Flurey; Sarah Hewlett; Karen Rodham; Alan White; Robert Noddings; John R Kirwan
Journal:  Arthritis Care Res (Hoboken)       Date:  2017-03       Impact factor: 4.794

10.  Coping Strategies, Psychological Impact, and Support Preferences of Men With Rheumatoid Arthritis: A Multicenter Survey.

Authors:  Caroline A Flurey; Sarah Hewlett; Karen Rodham; Alan White; Robert Noddings; John R Kirwan
Journal:  Arthritis Care Res (Hoboken)       Date:  2018-04-16       Impact factor: 4.794

  10 in total

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