Literature DB >> 20597744

Narrating disability, narrating religious practice: reconciliation and fragile X syndrome.

Marsha Michie1, Debra Skinner.   

Abstract

This article examines the place of religion in the narratives of mothers of children with fragile X syndrome. In semistructured interviews, a majority of women combined narratives of religious practice with illness narratives, interpreting their children's disabilities within a religious framework. Informed by Arthur Frank's (1995) concept of "wounded storytellers," the authors articulate a reconciliation narrative that mothers commonly used to describe their transition from viewing disability as a burden or challenge to seeing it as a blessing, or as a part of God's purpose or plan for their lives. The authors discuss the significance of narrative for better understanding religious perspectives on disability and conclude with the implications of these findings for practitioners and future research.

Entities:  

Mesh:

Year:  2010        PMID: 20597744      PMCID: PMC3129695          DOI: 10.1352/1934-9556-48.2.99

Source DB:  PubMed          Journal:  Intellect Dev Disabil        ISSN: 1934-9491


  25 in total

1.  Quality of life in families of children with disabilities.

Authors:  H Bode; K Weidner; M Storck
Journal:  Dev Med Child Neurol       Date:  2000-05       Impact factor: 5.449

2.  Families and intellectual disability.

Authors:  Jan Blacher; Cameron L Neece; Emilie Paczkowski
Journal:  Curr Opin Psychiatry       Date:  2005-09       Impact factor: 4.741

3.  Forbidden suffering: the Pollyanna syndrome of the disabled and their families.

Authors:  B Saetersdal
Journal:  Fam Process       Date:  1997-12

4.  Role of religion in the lives of Latino families of young children with developmental delays.

Authors:  D G Skinner; V Correa; M Skinner; D B Bailey
Journal:  Am J Ment Retard       Date:  2001-07

5.  Religious connectedness among urban African American families who have a child with disabilities.

Authors:  J Rogers-Dulan
Journal:  Ment Retard       Date:  1998-04

6.  Adaptation of Hispanic families to a member with mental retardation.

Authors:  T Heller; R Markwardt; L Rowitz; B Farber
Journal:  Am J Ment Retard       Date:  1994-11

7.  Communication in young children with fragile X syndrome: a qualitative study of mothers' perspectives.

Authors:  Nancy Brady; Debra Skinner; Joanne Roberts; Elizabeth Hennon
Journal:  Am J Speech Lang Pathol       Date:  2006-11       Impact factor: 2.408

8.  Religion, spirituality, and genetics: mapping the terrain for research purposes.

Authors:  Larry R Churchill
Journal:  Am J Med Genet C Semin Med Genet       Date:  2009-02-15       Impact factor: 3.908

9.  Perceived quality of life in mothers of children with fragile X syndrome.

Authors:  Anne C Wheeler; Debra G Skinner; Donald B Bailey
Journal:  Am J Ment Retard       Date:  2008-05

10.  A place for genetic uncertainty: parents valuing an unknown in the meaning of disease.

Authors:  Ian Whitmarsh; Arlene M Davis; Debra Skinner; Donald B Bailey
Journal:  Soc Sci Med       Date:  2007-06-11       Impact factor: 4.634

View more
  8 in total

1.  Enacting genetic responsibility: experiences of mothers who carry the fragile X gene.

Authors:  Kelly Raspberry; Debra Skinner
Journal:  Sociol Health Illn       Date:  2010-11-05

2.  Parenting young children with and without Fragile X syndrome.

Authors:  Audra Sterling; Leah Barnum; Debra Skinner; Steven F Warren; Kandace Fleming
Journal:  Am J Intellect Dev Disabil       Date:  2012-05

3.  Negotiating desires and options: how mothers who carry the fragile X gene experience reproductive decisions.

Authors:  Kelly Amanda Raspberry; Debra Skinner
Journal:  Soc Sci Med       Date:  2011-02-03       Impact factor: 4.634

4.  Experiences of parents with a child with Down syndrome in Pakistan and their views on termination of pregnancy.

Authors:  Shenaz Ahmed; Louise D Bryant; Mushtaq Ahmed; Hussain Jafri; Yasmin Raashid
Journal:  J Community Genet       Date:  2012-10-23

5.  Prenatal diagnosis and termination of pregnancy: perspectives of South African parents of children with Down syndrome.

Authors:  Chantelle Jennifer Scott; Merle Futter; Ambroise Wonkam
Journal:  J Community Genet       Date:  2012-10-25

6.  The effects of optimism, religion, and hope on mood and anxiety disorders in women with the FMR1 premutation.

Authors:  E P Lowell; B L Tonnsen; D B Bailey; J E Roberts
Journal:  J Intellect Disabil Res       Date:  2017-10

Review 7.  Lived Experiences of Fragile X Syndrome Caregivers: A Scoping Review of Qualitative Studies.

Authors:  Karen Kengne Kamga; Jantina De Vries; Seraphin Nguefack; Syntia Nchangwi Munung; Ambroise Wonkam
Journal:  Front Neurol       Date:  2020-02-27       Impact factor: 4.086

8.  Explanatory models for the cause of Fragile X Syndrome in rural Cameroon.

Authors:  Karen Kengne Kamga; Jantina De Vries; Séraphin Nguefack; Nchangwi Syntia Munung; Ambroise Wonkam
Journal:  J Genet Couns       Date:  2021-06-17       Impact factor: 2.717

  8 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.