Literature DB >> 20542850

Stroke patients' and carers' perception of barriers to accessing stroke information.

Sally Eames1, Tammy Hoffmann, Linda Worrall, Stephen Read.   

Abstract

PURPOSE: Education is a key component of post stroke care, but patients and carers often report dissatisfaction with information provided. A small number of studies have reported challenges surrounding the provision of information to this population, but patients' perspectives have not been explored in detail. The aim of this study was to identify patients' and carers' perceived barriers to accessing and understanding information about stroke.
METHOD: Interviews were conducted with patients and their carers prior to and 3 months following discharge from an acute stroke unit. Transcripts were analysed using qualitative content analysis.
RESULTS: The three categories of barriers were identified: (1) limited availability and suitability of information, (2) barriers in the hospital environment, and (3) patient and carer barriers. Three themes were also identified, namely, (1) who is responsible, (2) communication, and (3) not knowing.
CONCLUSION: These results have clinical implications for the way in which health professionals coordinate and present stroke information to patients and carers. Addressing these barriers may enhance patients' and carers' access to, understanding of, and satisfaction with information about stroke.

Entities:  

Mesh:

Year:  2010        PMID: 20542850     DOI: 10.1310/tsr1702-69

Source DB:  PubMed          Journal:  Top Stroke Rehabil        ISSN: 1074-9357            Impact factor:   2.119


  16 in total

Review 1.  Needs of Stroke Survivors as Perceived by Their Caregivers: A Scoping Review.

Authors:  Shilpa Krishnan; Monique R Pappadis; Susan C Weller; Marsja Stearnes; Amit Kumar; Kenneth J Ottenbacher; Timothy A Reistetter
Journal:  Am J Phys Med Rehabil       Date:  2017-07       Impact factor: 2.159

2.  Caregivers navigating rehabilitative care for people with aphasia after stroke: a multi-lens perspective.

Authors:  Jennifer S Shafer; Paul R Shafer; Katarina L Haley
Journal:  Int J Lang Commun Disord       Date:  2019-03-18       Impact factor: 3.020

3.  Open issues in intelligent personal health record--an updated status report for 2012.

Authors:  Gang Luo
Journal:  J Med Syst       Date:  2013-04-13       Impact factor: 4.460

4.  Cardiopulmonary Exercise Testing in Stroke Rehabilitation: Benefits and Clinical Utility Perceived by Physiotherapists and Individuals with Stroke.

Authors:  Allison Sharpe; Valerie Boyes; Calvin Lee; Christopher Murtha; Justin Mah; Karen Yoshida; Susan Marzolini; Elizabeth L Inness
Journal:  Physiother Can       Date:  2021       Impact factor: 1.037

5.  Experience of Information Provision at the Stroke Unit From the Perspective of Relatives to Stroke Survivors.

Authors:  Linda Kristensson; Ann Björkdahl
Journal:  Rehabil Process Outcome       Date:  2020-08-13

6.  The impact of interactions with providers on stroke caregivers' needs.

Authors:  Kerry Rae Creasy; Barbara J Lutz; Mary Ellen Young; Ariel Ford; Crystal Martz
Journal:  Rehabil Nurs       Date:  2013 Mar-Apr       Impact factor: 1.625

7.  Investigation of Stroke Needs (INVISION) Study: Stroke Awareness and Education.

Authors:  Marissa M Ing; Kristen F Linton; Megan A Vento; Kazuma Nakagawa
Journal:  Hawaii J Med Public Health       Date:  2015-04

8.  Randomised controlled trial of an education and support package for stroke patients and their carers.

Authors:  Sally Eames; Tammy Hoffmann; Linda Worrall; Stephen Read; Andrew Wong
Journal:  BMJ Open       Date:  2013-05-08       Impact factor: 2.692

9.  Post-discharge stroke patients' information needs as input to proposing patient-centred eHealth services.

Authors:  Nadia Davoody; Sabine Koch; Ingvar Krakau; Maria Hägglund
Journal:  BMC Med Inform Decis Mak       Date:  2016-06-07       Impact factor: 2.796

10.  Barriers to medication adherence for the secondary prevention of stroke: a qualitative interview study in primary care.

Authors:  James Jamison; Jonathan Graffy; Ricky Mullis; Jonathan Mant; Stephen Sutton
Journal:  Br J Gen Pract       Date:  2016-05-23       Impact factor: 5.386

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