Literature DB >> 20539151

The James Lind alliance: tackling treatment uncertainties together.

Katherine Cowan1.   

Abstract

The James Lind Alliance is a nonprofit making initiative that was established in 2004. It brings patients and clinicians together in priority-setting partnerships to identify and prioritize unanswered questions about the effects of treatments that they agree are most important. This information will help ensure that those who fund health research are aware of what matters to both patients and clinicians. Research suggests involving patients in the prioritization of research questions in this way is rare. To date, the James Lind Alliance has completed prioritization exercises on asthma and urinary incontinence. Partnerships focusing on prostate cancer and vitiligo are in progress.

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Year:  2010        PMID: 20539151     DOI: 10.1097/JAC.0b013e3181e62cda

Source DB:  PubMed          Journal:  J Ambul Care Manage        ISSN: 0148-9917


  21 in total

1.  Five years of a community pain service solution-focused pain management programme: extended data and reflections.

Authors:  Rebecca Simm; Chris Barker
Journal:  Br J Pain       Date:  2017-12-05

2.  Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement.

Authors:  Patricia A Deverka; Danielle C Lavallee; Priyanka J Desai; Laura C Esmail; Scott D Ramsey; David L Veenstra; Sean R Tunis
Journal:  J Comp Eff Res       Date:  2012-03       Impact factor: 1.744

Review 3.  Establishing local priorities for a health research agenda.

Authors:  Rebecca Whear; Jo Thompson-Coon; Kate Boddy; Helen Papworth; Julie Frier; Ken Stein
Journal:  Health Expect       Date:  2012-12-06       Impact factor: 3.377

4.  Community Priority setting for Fetal Alcohol Spectrum Disorder Research in Australia.

Authors:  A Finlay-Jones; M Symons; W Tsang; R Mullan; H Jones; A McKenzie; L Cannon; B Birda; N Reynolds; P Sargent; H Gailes; D Mayers; E J Elliott; C Bower
Journal:  Int J Popul Data Sci       Date:  2020-12-10

5.  Setting research priorities to improve the health of children and young people with neurodisability: a British Academy of Childhood Disability-James Lind Alliance Research Priority Setting Partnership.

Authors:  Christopher Morris; Doug Simkiss; Mary Busk; Maureen Morris; Amanda Allard; Jacob Denness; Astrid Janssens; Anna Stimson; Joanna Coghill; Kelly Robinson; Mark Fenton; Katherine Cowan
Journal:  BMJ Open       Date:  2015-01-28       Impact factor: 2.692

6.  A randomized controlled trial comparing in-person and wiki-inspired nominal group techniques for engaging stakeholders in chronic kidney disease research prioritization.

Authors:  Meghan J Elliott; Sharon E Straus; Neesh Pannu; Sofia B Ahmed; Andreas Laupacis; George C Chong; David R Hillier; Kate T Huffman; Andrew C Lei; Berlene V Villanueva; Donna M Young; Helen Tam-Tham; Maoliosa Donald; Erin Lillie; Braden J Manns; Brenda R Hemmelgarn
Journal:  BMC Med Inform Decis Mak       Date:  2016-08-24       Impact factor: 2.796

7.  Prioritization of themes and research questions for health outcomes in natural disasters, humanitarian crises or other major healthcare emergencies.

Authors:  E A P S G Evidence Aid Priority Setting Group
Journal:  PLoS Curr       Date:  2013-10-16

8.  Antibiotic treatment for intermittent bladder catheterisation with once daily prophylaxis (the AnTIC study): Study protocol for a randomised controlled trial.

Authors:  Catherine Brennand; Alexander von Wilamowitz-Moellendorff; Sarah Dunn; Jennifer Wilkinson; Thomas Chadwick; Laura Ternent; Yemi Oluboyede; Ruth Wood; Katherine Walton; Mandy Fader; James N'Dow; Mohamed Abdel-Fattah; Doreen McClurg; Paul Little; Paul Hilton; Anthony Timoney; Nicola Morris; Nikesh Thiruchelvam; James Larcombe; Simon Harrison; Heather Armstrong; Elaine McColl; Robert Pickard
Journal:  Trials       Date:  2016-06-04       Impact factor: 2.279

9.  What Are the Top 10 Research Questions in the Treatment of Inflammatory Bowel Disease? A Priority Setting Partnership with the James Lind Alliance.

Authors:  Ailsa L Hart; Miranda Lomer; Azmina Verjee; Karen Kemp; Omar Faiz; Ann Daly; Julie Solomon; John McLaughlin
Journal:  J Crohns Colitis       Date:  2016-08-09       Impact factor: 9.071

10.  Canadians Seeking Solutions and Innovations to Overcome Chronic Kidney Disease (Can-SOLVE CKD): Form and Function.

Authors:  Adeera Levin; Evan Adams; Brendan J Barrett; Heather Beanlands; Kevin D Burns; Helen Hoi-Lun Chiu; Kate Chong; Allison Dart; Jack Ferera; Nicolas Fernandez; Elisabeth Fowler; Amit X Garg; Richard Gilbert; Heather Harris; Rebecca Harvey; Brenda Hemmelgarn; Matthew James; Jeffrey Johnson; Joanne Kappel; Paul Komenda; Michael McCormick; Christopher McIntyre; Farid Mahmud; York Pei; Graham Pollock; Heather Reich; Norman D Rosenblum; James Scholey; Etienne Sochett; Mila Tang; Navdeep Tangri; Marcello Tonelli; Catherine Turner; Michael Walsh; Cathy Woods; Braden Manns
Journal:  Can J Kidney Health Dis       Date:  2018-01-17
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