Literature DB >> 20538181

Measuring the quality of end-of-life care.

Ruth A Engelberg1, Lois Downey, Marjorie D Wenrich, Jan D Carline, Gerard A Silvestri, Danae Dotolo, Elizabeth L Nielsen, J Randall Curtis.   

Abstract

CONTEXT: Although there is a documented need to improve end-of-life care, there are few validated and brief questionnaires that are available as outcome measures for use in improving that care.
OBJECTIVES: To examine the measurement characteristics of the Quality of End-of-Life Care (QEOLC) questionnaire.
METHODS: In a multisite, cross-sectional study of a mailed questionnaire, patients with life-limiting illnesses, their families, and nurses completed the QEOLC questionnaire. Patients and nurses were identified by physicians, and families were identified by participating patients. Physicians included general internists, oncologists, cardiologists, and pulmonologists from the Southeast and Pacific Northwest of the United States.
RESULTS: Eight hundred one patients, 310 of their families, and 885 nurses were identified by 85 physicians. Using structural equation modeling techniques corrected for clustering under physicians, we identified a patient-specific factor based on 11 items, a family-specific factor based on 22 items, a nurse-specific factor based on 11 items, and a common single-factor solution based on 10 items. Construct validity was supported by significant associations in the hypothesized direction between the identified QEOLC factors and each of the following: physician palliative care knowledge, patients' and families' ratings of overall quality of care, and patients' levels of symptom distress.
CONCLUSION: Although continued testing in heterogeneous samples is necessary, the current study supported the construct validity of the QEOLC questionnaire to assess physician skill at end-of-life care, thereby providing valid measures of quality end-of-life care. Furthermore, this approach is a model for development and validation of patient- and family-centered assessments of quality of care. Copyright 2010 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.

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Mesh:

Year:  2010        PMID: 20538181     DOI: 10.1016/j.jpainsymman.2009.11.313

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   3.612


  16 in total

1.  Internal medicine trainee self-assessments of end-of-life communication skills do not predict assessments of patients, families, or clinician-evaluators.

Authors:  Robert P Dickson; Ruth A Engelberg; Anthony L Back; Dee W Ford; J Randall Curtis
Journal:  J Palliat Med       Date:  2012-04-04       Impact factor: 2.947

2.  Incidence and Risk Model Development for Severe Tachypnea Following Terminal Extubation.

Authors:  Corey R Fehnel; Miguel Armengol de la Hoz; Leo A Celi; Margaret L Campbell; Khalid Hanafy; Ala Nozari; Douglas B White; Susan L Mitchell
Journal:  Chest       Date:  2020-04-28       Impact factor: 9.410

3.  Nurses' identification of important yet under-utilized end-of-life care skills for patients with life-limiting or terminal illnesses.

Authors:  Lynn F Reinke; Sarah E Shannon; Ruth Engelberg; Danae Dotolo; Gerard A Silvestri; J Randall Curtis
Journal:  J Palliat Med       Date:  2010-06       Impact factor: 2.947

4.  Factors Predicting Bereaved Caregiver Perception of Quality of Care in the Final Week of Life: Implications for Health Care Providers.

Authors:  Philip C Higgins; Melissa M Garrido; Holly G Prigerson
Journal:  J Palliat Med       Date:  2015-07-17       Impact factor: 2.947

5.  Quality of hospice care: comparison between rural and urban residents.

Authors:  Marianne Baernholdt; Cathy L Campbell; Ivora D Hinton; Guofen Yan; Erica Lewis
Journal:  J Nurs Care Qual       Date:  2015 Jul-Sep       Impact factor: 1.597

6.  Improving Outcomes Measurement in Palliative Care: The Lasting Impact of Randy Curtis and his Collaborators.

Authors:  Christopher E Cox; Deepshikha Charan Ashana; Nita Khandelwal; Arif H Kamal; Ruth A Engelberg
Journal:  J Pain Symptom Manage       Date:  2022-06       Impact factor: 5.576

7.  Race, income, and education: associations with patient and family ratings of end-of-life care and communication provided by physicians-in-training.

Authors:  Ann C Long; Ruth A Engelberg; Lois Downey; Erin K Kross; Lynn F Reinke; Laura Cecere Feemster; Danae Dotolo; Dee W Ford; Anthony L Back; J Randall Curtis
Journal:  J Palliat Med       Date:  2014-03-04       Impact factor: 2.947

8.  Effect of communication skills training for residents and nurse practitioners on quality of communication with patients with serious illness: a randomized trial.

Authors:  J Randall Curtis; Anthony L Back; Dee W Ford; Lois Downey; Sarah E Shannon; Ardith Z Doorenbos; Erin K Kross; Lynn F Reinke; Laura C Feemster; Barbara Edlund; Richard W Arnold; Kim O'Connor; Ruth A Engelberg
Journal:  JAMA       Date:  2013-12-04       Impact factor: 56.272

9.  Enhancing legacy in palliative care: study protocol for a randomized controlled trial of Dignity Therapy focused on positive outcomes.

Authors:  Lori P Montross-Thomas; Scott A Irwin; Emily A Meier; Jarred V Gallegos; Shahrokh Golshan; Eric Roeland; Helen McNeal; Diane Munson; Laura Rodseth
Journal:  BMC Palliat Care       Date:  2015-09-21       Impact factor: 3.234

10.  End-of-life practices in Danish ICUs: development and validation of a questionnaire.

Authors:  Hanne Irene Jensen; Jette Ammentorp; Mogens Erlandsen; Helle Ording
Journal:  BMC Anesthesiol       Date:  2012-08-01       Impact factor: 2.217

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