Literature DB >> 20163995

A short version of a HRQoL questionnaire for Italian and Japanese patients with Primary Biliary Cirrhosis.

Lorenzo Montali1, Atsushi Tanaka, Paolo Riva, Hiroki Takahashi, Claudio Cocchi, Yoshiyuki Ueno, Massimo Miglioretti, Hajime Takikawa, Luca Vecchio, Alessandra Frigerio, Ilaria Bianchi, Roberta Jorgensen, Keith D Lindor, Mauro Podda, Pietro Invernizzi.   

Abstract

BACKGROUND: The available self-report questionnaire for the quality of life in patients with primary biliary cirrhosis (PBC-40) is currently validated only in the British population but it lacks an evaluation of its dimensionality. AIMS: To validate the Italian and Japanese versions of PBC-40 and to assess the dimensionality of the original structure of PBC-40 by a confirmatory factor analysis. PBC-40 was translated to Italian and Japanese using the forward-backward method and then reviewed in focus groups in the framework of a large multicentric study.
METHODS: A sample of 290 patients with PBC (125 Italian and 165 Japanese) was administered two questionnaires previously validated for PBC-specific (PBC-40) and general quality of life (SF-36).
RESULTS: The confirmatory model failed to fit adequately the original hypothesized structure. A principal component analysis led to a seven-factor structure, with exclusion of 13 items characterized by lower load; PBC-27 questionnaire was the final instrument. The validity of the PBC-27 was supported by its strong correlation with the SF-36 scores.
CONCLUSION: We here propose an alternative structure of the quality of life questionnaire for PBC, namely PBC-27, which appears to be effective in detecting the impact of PBC on quality of life in Italian and Japanese patients. Copyright 2010 Editrice Gastroenterologica Italiana S.r.l. Published by Elsevier Ltd. All rights reserved.

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Year:  2010        PMID: 20163995     DOI: 10.1016/j.dld.2010.01.004

Source DB:  PubMed          Journal:  Dig Liver Dis        ISSN: 1590-8658            Impact factor:   4.088


  11 in total

1.  Health-related quality of life evaluated by tumor node metastasis staging system in patients with hepatocellular carcinoma.

Authors:  Cui-Xia Qiao; Xiao-Feng Zhai; Chang-Quan Ling; Qing-Bo Lang; Hui-Juan Dong; Qun Liu; Mou-Duo Li
Journal:  World J Gastroenterol       Date:  2012-06-07       Impact factor: 5.742

2.  Quality of life is significantly impaired in long-term survivors of acute liver failure and particularly in acetaminophen-overdose patients.

Authors:  Amol S Rangnekar; Caitlyn Ellerbe; Valerie Durkalski; Brendan McGuire; William M Lee; Robert J Fontana
Journal:  Liver Transpl       Date:  2013-08-18       Impact factor: 5.799

3.  The impact of fragility fractures on health-related quality of life in patients with primary sclerosing cholangitis.

Authors:  Joanna Raszeja-Wyszomirska; Robert Kucharski; Marta Zygmunt; Krzysztof Safranow; Tomasz Miazgowski
Journal:  Hepat Mon       Date:  2015-04-25       Impact factor: 0.660

4.  Expression of hepatic Fibroblast Growth Factor 19 is enhanced in Primary Biliary Cirrhosis and correlates with severity of the disease.

Authors:  Ewa Wunsch; Małgorzata Milkiewicz; Urszula Wasik; Jocelyn Trottier; Agnieszka Kempińska-Podhorodecka; Elwyn Elias; Olivier Barbier; Piotr Milkiewicz
Journal:  Sci Rep       Date:  2015-08-21       Impact factor: 4.379

5.  Translation and validation of the Serbian primary biliary cholangitis-40 questionnaire.

Authors:  Simon Zec; Dusan Popovic; Vera Matovic; Vladimir Nikolic; Ksenija Bojovic; Jasna Jovic; Ljiljana Markovic Denic; Tomica Milosavljevic; Tamara Alempijevic
Journal:  PLoS One       Date:  2017-04-13       Impact factor: 3.240

6.  ApaI polymorphism of vitamin D receptor affects health-related quality of life in patients with primary sclerosing cholangitis.

Authors:  Agnieszka Kempinska-Podhorodecka; Malgorzata Milkiewicz; Dariusz Jabłonski; Piotr Milkiewicz; Ewa Wunsch
Journal:  PLoS One       Date:  2017-04-20       Impact factor: 3.240

7.  Practical strategies for pruritus management in the obeticholic acid-treated patient with PBC: proceedings from the 2018 expert panel.

Authors:  Jennifer Pate; Juilo A Gutierrez; Catherine T Frenette; Aparna Goel; Sonal Kumar; Richard A Manch; Edward A Mena; Paul J Pockros; Sanjaya K Satapathy; Kidist K Yimam; Robert G Gish
Journal:  BMJ Open Gastroenterol       Date:  2019-02-01

8.  Quality of life in patients with primary biliary cholangitis: A cross-geographical comparison.

Authors:  Lorenzo Montali; Andrea Gragnano; Massimo Miglioretti; Alessandra Frigerio; Luca Vecchio; Alessio Gerussi; Laura Cristoferi; Vincenzo Ronca; Daphne D'Amato; Sarah Elizabeth O'Donnell; Clara Mancuso; Martina Lucà; Minami Yagi; Anna Reig; Laura Jopson; Sesé Pilar; Dave Jones; Albert Pares; George Mells; Atsushi Tanaka; Marco Carbone; Pietro Invernizzi
Journal:  J Transl Autoimmun       Date:  2021-01-06

9.  TRAF1-C5 affects quality of life in patients with primary biliary cirrhosis.

Authors:  Joanna Raszeja-Wyszomirska; Ewa Wunsch; Agnieszka Kempinska-Podhorodecka; Daniel S Smyk; Dimitrios P Bogdanos; Malgorzata Milkiewicz; Piotr Milkiewicz
Journal:  Clin Dev Immunol       Date:  2013-04-28

10.  Serum Autotaxin is a Marker of the Severity of Liver Injury and Overall Survival in Patients with Cholestatic Liver Diseases.

Authors:  Ewa Wunsch; Marcin Krawczyk; Malgorzata Milkiewicz; Jocelyn Trottier; Olivier Barbier; Markus F Neurath; Frank Lammert; Andreas E Kremer; Piotr Milkiewicz
Journal:  Sci Rep       Date:  2016-08-10       Impact factor: 4.379

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