Literature DB >> 20161675

Education and personalized genomics: deciphering the public's genetic health report.

Neil E Lamb1, Richard M Myers, Chris Gunter.   

Abstract

Where do members of the public turn to understand what genetic tests mean in terms of their own health? Now that genome-wide association studies and complete genome sequencing are widely available, the importance of education in personalized genomics cannot be overstated. Although some media have introduced the concept of genetic testing to better understand health and disease, the public's understanding of the scope and impact of genetic variation has not kept up with the pace of the science or technology. Unfortunately, the likely sources to which the public turn to for guidance - their physician and the media - are often no better prepared. We examine several venues for information, including print and online guides for both lay and health-oriented audiences, and summarize selected resources in multiple formats. We also note on the roadblocks to progress and discuss ways to remove them, as urgent action is needed to connect people with their genomes in a meaningful way.

Entities:  

Year:  2009        PMID: 20161675      PMCID: PMC2821046          DOI: 10.2217/pme.09.57

Source DB:  PubMed          Journal:  Per Med        ISSN: 1741-0541            Impact factor:   2.512


  22 in total

1.  Key Internet genetics resources for the clinician.

Authors:  Wendy R Uhlmann; Alan E Guttmacher
Journal:  JAMA       Date:  2008-03-19       Impact factor: 56.272

2.  Lessons learned about integrating a medical school curriculum: perceptions of students, faculty and curriculum leaders.

Authors:  Jessica H Muller; Sharad Jain; Helen Loeser; David M Irby
Journal:  Med Educ       Date:  2008-08       Impact factor: 6.251

3.  Educational needs in genetic medicine: primary care perspectives.

Authors:  Susan B Trinidad; Kelly Fryer-Edwards; Anthony Crest; Penny Kyler; Michele A Lloyd-Puryear; Wylie Burke
Journal:  Community Genet       Date:  2008-03-26

4.  The Strongest boy in the world: How genetic information is reshaping our lives.

Authors:  E J Wood
Journal:  Biochem Mol Biol Educ       Date:  2006-09       Impact factor: 1.160

5.  The current status of medical genetics instruction in US and Canadian medical schools.

Authors:  Virginia Carol Thurston; Paula Sue Wales; Mary Alice Bell; Laura Torbeck; James Joseph Brokaw
Journal:  Acad Med       Date:  2007-05       Impact factor: 6.893

6.  Predicting human height by Victorian and genomic methods.

Authors:  Yurii S Aulchenko; Maksim V Struchalin; Nadezhda M Belonogova; Tatiana I Axenovich; Michael N Weedon; Albert Hofman; Andre G Uitterlinden; Manfred Kayser; Ben A Oostra; Cornelia M van Duijn; A Cecile J W Janssens; Pavel M Borodin
Journal:  Eur J Hum Genet       Date:  2009-02-18       Impact factor: 4.246

7.  Genetics education in medical school: a qualitative study exploring educational experiences and needs.

Authors:  Deanna E Telner; June C Carroll; Yves Talbot
Journal:  Med Teach       Date:  2008       Impact factor: 3.650

8.  Health care provider and consumer awareness, perceptions, and use of direct-to-consumer personal genomic tests, United States, 2008.

Authors:  Katherine Kolor; Tiebin Liu; Jeanette St Pierre; Muin J Khoury
Journal:  Genet Med       Date:  2009-08       Impact factor: 8.822

9.  Direct to consumer genetic testing: Avoiding a culture war.

Authors:  James P Evans; Robert C Green
Journal:  Genet Med       Date:  2009-08       Impact factor: 8.822

10.  The use of role-play to enhance medical student understanding of genetic counseling.

Authors:  Dawn E McIlvried; Sandra K Prucka; Matthew Herbst; Christina Barger; Nathaniel H Robin
Journal:  Genet Med       Date:  2008-10       Impact factor: 8.822

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  3 in total

1.  Biotech 101: an educational outreach program in genetics and biotechnology.

Authors:  Kelly M East; Adam M Hott; Nancy P Callanan; Neil E Lamb
Journal:  J Genet Couns       Date:  2012-03-02       Impact factor: 2.537

2.  Personalised medicine in Canada: a survey of adoption and practice in oncology, cardiology and family medicine.

Authors:  Katherine Bonter; Clarissa Desjardins; Nathan Currier; Jason Pun; Fredrick D Ashbury
Journal:  BMJ Open       Date:  2011-07-29       Impact factor: 2.692

Review 3.  Genomics Education in the Era of Personal Genomics: Academic, Professional, and Public Considerations.

Authors:  Kiara V Whitley; Josie A Tueller; K Scott Weber
Journal:  Int J Mol Sci       Date:  2020-01-24       Impact factor: 5.923

  3 in total

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