Literature DB >> 20152586

Implementation of computer-based quality-of-life monitoring in brain tumor outpatients in routine clinical practice.

Astrid Erharter1, Johannes Giesinger, Georg Kemmler, Gabriele Schauer-Maurer, Guenter Stockhammer, Armin Muigg, Markus Hutterer, Gerhard Rumpold, Barbara Sperner-Unterweger, Bernhard Holzner.   

Abstract

CONTEXT: Computerized assessment of quality of life (QOL) in patients with brain tumors can be an essential part of quality assurance with regard to evidence-based medicine in neuro-oncology.
OBJECTIVES: The aim of this project was the implementation of a computer-based QOL monitoring tool in a neurooncology outpatient unit. A further aim was to derive reference values for QOL scores from the collected data to improve interpretability.
METHODS: Since August 2005, patients with brain tumors treated at the neuro-oncology outpatient unit of the Innsbruck Medical University were consecutively included in the study. QOL assessment (European Organisation for Research and Treatment of Cancer [EORTC] Quality of Life Questionnaire [QLQ-C30] plus the EORTC QLQ-brain cancer module [BN20]) was computer-based, using a software tool called the Computer-based Health Evaluation System.
RESULTS: A total of 110 patients with primary brain tumors (49% female; mean [standard deviation] age 47.9 [12.6] years; main diagnoses: 30.9% astrocytoma, 17.3% oligodendroglioma, 17.3% glioblastoma, 13.6% meningioma) was included in the study. On average, QOL was assessed 4.74 times per patient, 521 times in total. The user-friendly software was successfully implemented and tested. The routine QOL assessment was found to be feasible and was well accepted by both physicians and patients.
CONCLUSION: The software-generated graphic QOL profiles were found to be an important tool for screening patients for clinically relevant problems. Thus, computer-based QOL monitoring can contribute to an optimization of treatment (e.g., symptom management, psychosocial interventions) and facilitate data collection for research purposes. Copyright 2010 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.

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Year:  2010        PMID: 20152586     DOI: 10.1016/j.jpainsymman.2009.06.015

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   3.612


  30 in total

Review 1.  [The benefits of using patient-reported outcomes in cancer treatment: an overview].

Authors:  Lisa M Wintner; Johannes M Giesinger; Georg Kemmler; Monika Sztankay; Anne Oberguggenberger; Eva-Maria Gamper; Barbara Sperner-Unterweger; Bernhard Holzner
Journal:  Wien Klin Wochenschr       Date:  2012-04-27       Impact factor: 1.704

2.  Evaluating patients for psychosocial distress and supportive care needs based on health-related quality of life in primary brain tumors: a prospective multicenter analysis of patients with gliomas in an outpatient setting.

Authors:  Anne-Katrin Hickmann; Marlene Hechtner; Minou Nadji-Ohl; Mareile Janko; Ann Katrin Reuter; Karoline Kohlmann; Markus Haug; Sonja Grüninger; Monika Deininger; Oliver Ganslandt; Jochem König; Christian Rainer Wirtz; Jan Coburger; Mirjam Renovanz
Journal:  J Neurooncol       Date:  2016-09-16       Impact factor: 4.130

3.  Can electronic web-based technology improve quality of life data collection? Analysis of Radiation Therapy Oncology Group 0828.

Authors:  Benjamin Movsas; Daniel Hunt; Deborah Watkins-Bruner; W Robert Lee; Heather Tharpe; Desiree Goldstein; Joan Moore; Ian S Dayes; Sara Parise; Howard Sandler
Journal:  Pract Radiat Oncol       Date:  2013-09-16

Review 4.  The role of informatics in promoting patient-centered care.

Authors:  Claire F Snyder; Albert W Wu; Robert S Miller; Roxanne E Jensen; Elissa T Bantug; Antonio C Wolff
Journal:  Cancer J       Date:  2011 Jul-Aug       Impact factor: 3.360

Review 5.  Factors influencing quality of life in adult patients with primary brain tumors.

Authors:  Rakesh Jalali; Debnarayan Dutta
Journal:  Neuro Oncol       Date:  2012-09       Impact factor: 12.300

Review 6.  Reporting of patient-reported health-related quality of life in adults with diffuse low-grade glioma: a systematic review.

Authors:  Daniel M Fountain; Dominic Allen; Alexis J Joannides; Dipankar Nandi; Thomas Santarius; Aswin Chari
Journal:  Neuro Oncol       Date:  2016-05-18       Impact factor: 12.300

Review 7.  Symptom management and quality of life in glioma patients.

Authors:  Florien W Boele; Martin Klein; Jaap C Reijneveld; Irma M Verdonck-de Leeuw; Jan J Heimans
Journal:  CNS Oncol       Date:  2014-01

8.  Randomized controlled trial to test a computerized psychosocial cancer assessment and referral program: methods and research design.

Authors:  Erin L O'Hea; Alexandra Cutillo; Laura Dietzen; Tina Harralson; Grant Grissom; Sharina Person; Edwin D Boudreaux
Journal:  Contemp Clin Trials       Date:  2013-02-07       Impact factor: 2.226

9.  A multi-center retrospective analysis of treatment effects and quality of life in adult patients with cranial ependymomas.

Authors:  Stephan Dützmann; Bawarjan Schatlo; Alexander Lobrinus; Michael Murek; Maria Wostrack; Carolin Weiss; Karl Schaller; Andreas Raabe; Bernhard Meyer; Roland Goldbrunner; Kea Franz; Volker Seifert; Christian Senft
Journal:  J Neurooncol       Date:  2013-06-29       Impact factor: 4.130

10.  Do neurooncological patients and their significant others agree on quality of life ratings?

Authors:  Johannes M Giesinger; Miriam Golser; Astrid Erharter; Georg Kemmler; Gabriele Schauer-Maurer; Guenter Stockhammer; Armin Muigg; Markus Hutterer; Gerhard Rumpold; Bernhard Holzner
Journal:  Health Qual Life Outcomes       Date:  2009-10-09       Impact factor: 3.186

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