Literature DB >> 20063128

Family caregivers, patients and physicians: ethical guidance to optimize relationships.

Sheryl Mitnick1, Cathy Leffler, Virginia L Hood.   

Abstract

Family caregivers play a major role in maximizing the health and quality of life of more than 30 million individuals with acute and chronic illness. Patients depend on family caregivers for assistance with daily activities, managing complex care, navigating the health care system, and communicating with health care professionals. Physical, emotional and financial stress may increase caregiver vulnerability to injury and illness. Geographically distant family caregivers and health professionals in the role of family caregivers may suffer additional burdens. Physician recognition of the value of the caregiver role may contribute to a positive caregiving experience and decrease rates of patient hospitalization and institutionalization. However, physicians may face ethical challenges in partnering with patients and family caregivers while preserving the primacy of the patient-physician relationship. The American College of Physicians in conjunction with ten other professional societies offers ethical guidance to physicians in developing mutually supportive patient-physician-caregiver relationships.

Entities:  

Mesh:

Year:  2010        PMID: 20063128      PMCID: PMC2839338          DOI: 10.1007/s11606-009-1206-3

Source DB:  PubMed          Journal:  J Gen Intern Med        ISSN: 0884-8734            Impact factor:   5.128


  35 in total

Review 1.  Responding to intractable terminal suffering: the role of terminal sedation and voluntary refusal of food and fluids. ACP-ASIM End-of-Life Care Consensus Panel. American College of Physicians-American Society of Internal Medicine.

Authors:  T E Quill; I R Byock
Journal:  Ann Intern Med       Date:  2000-03-07       Impact factor: 25.391

2.  Role conflicts of physicians and their family members: rules but no rulebook.

Authors:  F M Chen; C Feudtner; L A Rhodes; L A Green
Journal:  West J Med       Date:  2001-10

3.  Strategies for culturally effective end-of-life care.

Authors:  LaVera M Crawley; Patricia A Marshall; Bernard Lo; Barbara A Koenig
Journal:  Ann Intern Med       Date:  2002-05-07       Impact factor: 25.391

Review 4.  Family support in advanced cancer.

Authors:  B A Given; C W Given; S Kozachik
Journal:  CA Cancer J Clin       Date:  2001 Jul-Aug       Impact factor: 508.702

Review 5.  A practical guide to caring for caregivers.

Authors:  S M Parks; K D Novielli
Journal:  Am Fam Physician       Date:  2000-12-15       Impact factor: 3.292

6.  Involvement in caregiving and adjustment to death of a spouse: findings from the caregiver health effects study.

Authors:  R Schulz; S R Beach; B Lind; L M Martire; B Zdaniuk; C Hirsch; S Jackson; L Burton
Journal:  JAMA       Date:  2001-06-27       Impact factor: 56.272

7.  The patient-physician relationship. Ensuring competency in end-of-life care: communication and relational skills.

Authors:  C F von Gunten; F D Ferris; L L Emanuel
Journal:  JAMA       Date:  2000-12-20       Impact factor: 56.272

8.  Caregiving as a risk factor for mortality: the Caregiver Health Effects Study.

Authors:  R Schulz; S R Beach
Journal:  JAMA       Date:  1999-12-15       Impact factor: 56.272

9.  Supporting family caregivers at the end of life: "they don't know what they don't know".

Authors:  Michael W Rabow; Joshua M Hauser; Jocelia Adams
Journal:  JAMA       Date:  2004-01-28       Impact factor: 56.272

10.  End-of-life care and the effects of bereavement on family caregivers of persons with dementia.

Authors:  Richard Schulz; Aaron B Mendelsohn; William E Haley; Diane Mahoney; Rebecca S Allen; Song Zhang; Larry Thompson; Steven H Belle
Journal:  N Engl J Med       Date:  2003-11-13       Impact factor: 91.245

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  48 in total

1.  Oncologists' assessments of lung cancer patient and family disagreements regarding treatment decision making.

Authors:  Laura A Siminoff; Lindsey Dorflinger; Amma Agyemang; Sherman Baker; Maureen Wilson-Genderson
Journal:  Lung Cancer       Date:  2012-03-08       Impact factor: 5.705

Review 2.  When physicians intervene in their relatives' health care.

Authors:  Jonathan R Scarff; Steven Lippmann
Journal:  HEC Forum       Date:  2012-06

Review 3.  Family Caregivers and Consumer Health Information Technology.

Authors:  Jennifer L Wolff; Jonathan D Darer; Kevin L Larsen
Journal:  J Gen Intern Med       Date:  2015-08-27       Impact factor: 5.128

4.  Factors affecting employment among informal caregivers assisting people with multiple sclerosis.

Authors:  Robert J Buchanan; Chunfeng Huang; Zhida Zheng
Journal:  Int J MS Care       Date:  2013

5.  Guiding principles for the care of older adults with multimorbidity: an approach for clinicians: American Geriatrics Society Expert Panel on the Care of Older Adults with Multimorbidity.

Authors: 
Journal:  J Am Geriatr Soc       Date:  2012-09-19       Impact factor: 5.562

6.  Development and testing of a decision aid on goals of care for advanced dementia.

Authors:  Seth F Einterz; Robin Gilliam; Feng Chang Lin; J Marvin McBride; Laura C Hanson
Journal:  J Am Med Dir Assoc       Date:  2014-02-06       Impact factor: 4.669

7.  Going it together: persistence of older adults' accompaniment to physician visits by a family companion.

Authors:  Jennifer L Wolff; Cynthia M Boyd; Laura N Gitlin; Martha L Bruce; Debra L Roter
Journal:  J Am Geriatr Soc       Date:  2011-12-28       Impact factor: 5.562

8.  A tool to strengthen the older patient-companion partnership in primary care: results from a pilot study.

Authors:  Jennifer L Wolff; Debra L Roter; Jeremy Barron; Cynthia M Boyd; Bruce Leff; Thomas E Finucane; Joseph J Gallo; Peter V Rabins; David L Roth; Laura N Gitlin
Journal:  J Am Geriatr Soc       Date:  2014-01-13       Impact factor: 5.562

9.  Teamwork When Conducting Family Meetings: Concepts, Terminology, and the Importance of Team-Team Practices.

Authors:  Jennifer K Walter; Robert M Arnold; Martha A Q Curley; Chris Feudtner
Journal:  J Pain Symptom Manage       Date:  2019-04-30       Impact factor: 3.612

10.  Attitudes and experiences of family involvement in cancer consultations: a qualitative exploration of patient and family member perspectives.

Authors:  Rebekah Laidsaar-Powell; Phyllis Butow; Stella Bu; Alana Fisher; Ilona Juraskova
Journal:  Support Care Cancer       Date:  2016-04-30       Impact factor: 3.603

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