Literature DB >> 20011555

Guidelines for genetic testing of healthy children.

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Abstract

Entities:  

Year:  2003        PMID: 20011555      PMCID: PMC2791077          DOI: 10.1093/pch/8.1.42

Source DB:  PubMed          Journal:  Paediatr Child Health        ISSN: 1205-7088            Impact factor:   2.253


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  30 in total

1.  Genetic testing in adoption. The American Society of Human Genetics Social Issues Committee and The American College of Medical Genetics Social, Ethical, and Legal Issues Committee.

Authors: 
Journal:  Am J Hum Genet       Date:  2000-03       Impact factor: 11.025

Review 2.  Psychological impact of genetic testing for Huntington's disease: an update of the literature.

Authors:  B Meiser; S Dunn
Journal:  J Neurol Neurosurg Psychiatry       Date:  2000-11       Impact factor: 10.154

Review 3.  Inappropriate genetic testing of children.

Authors:  A Fryer
Journal:  Arch Dis Child       Date:  2000-10       Impact factor: 3.791

4.  Genetic testing, legal capacity and adolescents.

Authors:  T Caulfield; B M Knoppers
Journal:  Health Law J       Date:  1998

Review 5.  The genetic testing of children for cancer susceptibility: ethical, legal, and social issues.

Authors:  A F Patenaude
Journal:  Behav Sci Law       Date:  1996

6.  The genetic testing of children. Working Party of the Clinical Genetics Society (UK)

Authors:  A Clarke
Journal:  J Med Genet       Date:  1994-10       Impact factor: 6.318

7.  GIG response to the UK Clinical Genetics Society report "The genetic testing of children".

Authors:  S Dalby
Journal:  J Med Genet       Date:  1995-06       Impact factor: 6.318

8.  A private view of heterozygosity: eight-year follow-up study on carriers of the Tay-Sachs gene detected by high school screening in Montreal.

Authors:  S Zeesman; C L Clow; L Cartier; C R Scriver
Journal:  Am J Med Genet       Date:  1984-08

9.  Discovery of children's carrier status for recessive genetic disease: some ethical issues.

Authors:  D S Davis
Journal:  Genet Test       Date:  1998

10.  Predictive testing for Huntington disease in Canada: adverse effects and unexpected results in those receiving a decreased risk.

Authors:  M Huggins; M Bloch; S Wiggins; S Adam; O Suchowersky; M Trew; M Klimek; C R Greenberg; M Eleff; L P Thompson
Journal:  Am J Med Genet       Date:  1992-02-15
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  12 in total

Review 1.  Working up policy: the use of specific disease exemplars in formulating general principles governing childhood genetic testing.

Authors:  Paula Boddington; Susan Hogben
Journal:  Health Care Anal       Date:  2006-03

2.  Researchers' perceptions of the ethical implications of pharmacogenomics research with children.

Authors:  D Avard; T Silverstein; G Sillon; Y Joly
Journal:  Public Health Genomics       Date:  2009-02-10       Impact factor: 2.000

3.  Genetic testing in asymptomatic minors: background considerations towards ESHG Recommendations.

Authors:  Pascal Borry; Gerry Evers-Kiebooms; Martina C Cornel; Angus Clarke; Kris Dierickx
Journal:  Eur J Hum Genet       Date:  2009-03-11       Impact factor: 4.246

4.  Commentary: Children and predictive genomic testing: disease prevention, research protection, and our future.

Authors:  Beth A Tarini; Kenneth P Tercyak; Benjamin S Wilfond
Journal:  J Pediatr Psychol       Date:  2011-08-04

5.  "Both Sides of the Wheelchair": The Views of Individuals with, and Parents of Individuals with Friedreich Ataxia Regarding Pre-symptomatic Testing of Minors.

Authors:  Georgia C Lowe; Louise A Corben; Rony E Duncan; Grace Yoon; Martin B Delatycki
Journal:  J Genet Couns       Date:  2015-01-17       Impact factor: 2.537

6.  Ethics in prevention science involving genetic testing.

Authors:  Celia B Fisher; Erika L Harrington McCarthy
Journal:  Prev Sci       Date:  2013-06

7.  Health-related direct-to-consumer genetic testing: a review of companies' policies with regard to genetic testing in minors.

Authors:  Pascal Borry; Heidi C Howard; Karine Sénécal; Denise Avard
Journal:  Fam Cancer       Date:  2009-06-02       Impact factor: 2.375

8.  Premature guidance about whole-genome sequencing.

Authors:  Lainie Friedman Ross; Mark A Rothstein; Ellen Wright Clayton
Journal:  Per Med       Date:  2013-08-01       Impact factor: 2.512

9.  Adolescent carrier testing in practice: the impact of legal rulings and problems with "gillick competence".

Authors:  Paula Boddington; Maggie Gregory
Journal:  J Genet Couns       Date:  2008-08-29       Impact factor: 2.537

10.  Pediatric reporting of genomic results study (PROGRESS): a mixed-methods, longitudinal, observational cohort study protocol to explore disclosure of actionable adult- and pediatric-onset genomic variants to minors and their parents.

Authors:  Juliann M Savatt; Jennifer K Wagner; Steven Joffe; Alanna Kulchak Rahm; Marc S Williams; Angela R Bradbury; F Daniel Davis; Julie Hergenrather; Yirui Hu; Melissa A Kelly; H Lester Kirchner; Michelle N Meyer; Jessica Mozersky; Sean M O'Dell; Josie Pervola; Andrea Seeley; Amy C Sturm; Adam H Buchanan
Journal:  BMC Pediatr       Date:  2020-05-15       Impact factor: 2.125

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