Literature DB >> 19933909

Paradoxes in advance care planning: the complex relationship of oncology patients, their physicians, and advance medical directives.

Lindsay A Dow1, Robin K Matsuyama, V Ramakrishnan, Laura Kuhn, Elizabeth B Lamont, Laurel Lyckholm, Thomas J Smith.   

Abstract

PURPOSE: Many seriously ill patients with cancer do not discuss prognosis or advance directives (ADs), which may lead to inappropriate and/or unwanted aggressive care at the end of life. Ten years ago, patients with cancer said they would not like to discuss ADs with their oncologist but would be willing to discuss them with an admitting physician. We assessed whether this point of view still held. PATIENTS AND METHODS: Semi-structured interviews were conducted with 75 consecutively admitted patients with cancer in the cancer inpatient service.
RESULTS: Of those enrolled, 41% (31 of 75) had an AD. Nearly all (87%, 65 of 75) thought it acceptable to discuss ADs with the admitting physician with whom they had no prior relationship, and 95% (62 of 65) thought that discussing AD issues was very or somewhat important. Only 7% (5 of 75) had discussed ADs with their oncologist, and only 23% (16 of 70) would like to discuss ADs with their oncologist. When specifically asked which physician they would choose, 48% (36 of 75) of patients would prefer their oncologist, and 35% (26 of 75) would prefer their primary care physician.
CONCLUSION: Fewer than half of seriously ill patients with cancer admitted to an oncology service have an AD. Only 23% (16 of 70) would like to discuss their ADs with their oncologist but nearly all supported a policy of discussing ADs with their admitting physician. However, fully 48% (36 of 75) actually preferred to discuss advance directives with their oncologist if AD discussion was necessary. We must educate patients on why communicating their ADs is beneficial and train primary care physicians, house staff, hospitalists, and oncologists to initiate these difficult discussions.

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Mesh:

Year:  2009        PMID: 19933909      PMCID: PMC2815718          DOI: 10.1200/JCO.2009.24.6397

Source DB:  PubMed          Journal:  J Clin Oncol        ISSN: 0732-183X            Impact factor:   44.544


  26 in total

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Authors:  D E Meier; A L Back; R S Morrison
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5.  Cancer patient preferences for communication of prognosis in the metastatic setting.

Authors:  Rebecca G Hagerty; Phyllis N Butow; Peter A Ellis; Elizabeth A Lobb; Susan Pendlebury; Natasha Leighl; David Goldstein; Sing Kai Lo; Martin H N Tattersall
Journal:  J Clin Oncol       Date:  2004-05-01       Impact factor: 44.544

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Authors:  Amy M Sullivan; Matthew D Lakoma; Robin K Matsuyama; Laurie Rosenblatt; Robert M Arnold; Susan D Block
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7.  Lack of concordance between physician and patient: reports on end-of-life care discussions.

Authors:  Susan DesHarnais; Rickey E Carter; Winnie Hennessy; Jerome E Kurent; Cindy Carter
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8.  Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment.

Authors:  Alexi A Wright; Baohui Zhang; Alaka Ray; Jennifer W Mack; Elizabeth Trice; Tracy Balboni; Susan L Mitchell; Vicki A Jackson; Susan D Block; Paul K Maciejewski; Holly G Prigerson
Journal:  JAMA       Date:  2008-10-08       Impact factor: 56.272

9.  The status of medical education in end-of-life care: a national report.

Authors:  Amy M Sullivan; Matthew D Lakoma; Susan D Block
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10.  The discussion about advance directives. Patient and physician opinions regarding when and how it should be conducted. End of Life Study Group.

Authors:  S C Johnston; M P Pfeifer; R McNutt
Journal:  Arch Intern Med       Date:  1995-05-22
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  53 in total

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Authors:  Alaina J Brown; Megan Johnson Shen; Diana Urbauer; Jolyn Taylor; Patricia A Parker; Cindy Carmack; Lauren Prescott; Elizabeth Kolawole; Carly Rosemore; Charlotte Sun; Lois Ramondetta; Diane C Bodurka
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3.  Seriously ill hospitalized patients' perspectives on the benefits and harms of two models of hospital CPR discussions.

Authors:  Wendy G Anderson; Jenica W Cimino; Bernard Lo
Journal:  Patient Educ Couns       Date:  2013-08-19

4.  Is there a right not to know?

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5.  Communication and palliative care in a 64-year-old man with pancreatic adenocarcinoma.

Authors:  Andrew S Epstein; Ghassan K Abou-Alfa; Ali Shamseddine; Ashwaq Al-Olayan; Celina Ang; Mohamed Naghy; Maeve A Lowery; Eileen M O'Reilly
Journal:  Gastrointest Cancer Res       Date:  2012-07

6.  Building on Individual, State, and Federal Initiatives for Advance Care Planning, an Integral Component of Palliative and End-of-Life Cancer Care.

Authors:  Andrew S Epstein; Angelo E Volandes; Eileen M O'Reilly
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7.  Advance care planning as a shared endeavor: completion of ACP documents in a multidisciplinary cancer program.

Authors:  Melissa A Clark; Miles Ott; Michelle L Rogers; Mary C Politi; Susan C Miller; Laura Moynihan; Katina Robison; Ashley Stuckey; Don Dizon
Journal:  Psychooncology       Date:  2015-10-21       Impact factor: 3.894

8.  Dancing around death: hospitalist-patient communication about serious illness.

Authors:  Wendy G Anderson; Susan Kools; Audrey Lyndon
Journal:  Qual Health Res       Date:  2012-10-03

9.  Oncologist Experience Implementing Goals of Care Discussions in Everyday Ambulatory Oncology Practice: Implications for Education.

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10.  Understanding how cancer patients actualise, relinquish, and reject advance care planning: implications for practice.

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