Literature DB >> 19929403

A pilot study of hereditary breast and ovarian knowledge among a multiethnic group of Hispanic women with a personal or family history of cancer.

Susan T Vadaparampil1, Gwendolyn P Quinn, Brent J Small, Jessica McIntyre, Claudia Aguado Loi, Zuheily Closser, Clement K Gwede.   

Abstract

PURPOSE: To examine knowledge about hereditary breast and ovarian cancer (HBOC) among Mexican, Puerto Rican, and Cuban women.
METHODS: Women (age range, 18-65 years) with a personal or family history of breast or ovarian cancer were recruited to a mixed methods study using community-based approaches. Fifty-three women participated in the study: 16 Mexicans, 20 Puerto Ricans, and 17 Cubans. The majority of women (64.2%) were born outside the United States. All questions were interviewer administered in Spanish or English. HBOC knowledge was measured using an 11-item instrument developed by the National Center for Human Genome Research. We evaluated whether differences in knowledge varied as a function of Hispanic subethnicity, demographic characteristics, and medical and acculturation characteristics using a series of one-way analysis of variances.
RESULTS: The percentage of correct responses on the knowledge instrument ranged from 9.4% to 73.6% (median number of correct responses = 45%). Knowledge did not significantly differ by Hispanic subethnicity (p = 0.51). Exploratory analysis revealed lower knowledge in women with a personal history of cancer (p = 0.03).
CONCLUSION: Our study provides important information about characteristics associated with lower levels of knowledge and specific areas related to HBOC where additional education may be warranted in the Hispanic community.

Entities:  

Mesh:

Year:  2010        PMID: 19929403      PMCID: PMC2935838          DOI: 10.1089/gtmb.2009.0088

Source DB:  PubMed          Journal:  Genet Test Mol Biomarkers        ISSN: 1945-0257


  33 in total

Review 1.  Should "acculturation" be a variable in health research? A critical review of research on US Hispanics.

Authors:  Linda M Hunt; Suzanne Schneider; Brendon Comer
Journal:  Soc Sci Med       Date:  2004-09       Impact factor: 4.634

2.  The impact of acculturation on awareness of genetic testing for increased cancer risk among Hispanics in the year 2000 National Health Interview Survey.

Authors:  Susan T Vadaparampil; Louise Wideroff; Nancy Breen; Edward Trapido
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2006-04       Impact factor: 4.254

3.  Awareness of genetic testing for cancer among United States Hispanics: the role of acculturation.

Authors:  Julia E Heck; Rebeca Franco; Janine M Jurkowski; Sherri Sheinfeld Gorin
Journal:  Community Genet       Date:  2008-01-15

4.  Impact of educational print materials on knowledge, attitudes, and interest in BRCA1/BRCA2: testing among Ashkenazi Jewish women.

Authors:  M D Schwartz; J Benkendorf; C Lerman; C Isaacs; A Ryan-Robertson; L Johnson
Journal:  Cancer       Date:  2001-08-15       Impact factor: 6.860

5.  Annual report to the nation on the status of cancer, 1975-2003, featuring cancer among U.S. Hispanic/Latino populations.

Authors:  Holly L Howe; Xiaocheng Wu; Lynn A G Ries; Vilma Cokkinides; Faruque Ahmed; Ahmedin Jemal; Barry Miller; Melanie Williams; Elizabeth Ward; Phyllis A Wingo; Amelie Ramirez; Brenda K Edwards
Journal:  Cancer       Date:  2006-10-15       Impact factor: 6.860

6.  Controlled trial of pretest education approaches to enhance informed decision-making for BRCA1 gene testing.

Authors:  C Lerman; B Biesecker; J L Benkendorf; J Kerner; A Gomez-Caminero; C Hughes; M M Reed
Journal:  J Natl Cancer Inst       Date:  1997-01-15       Impact factor: 13.506

7.  Contralateral breast cancer in BRCA1 and BRCA2 mutation carriers.

Authors:  Kelly Metcalfe; Henry T Lynch; Parviz Ghadirian; Nadine Tung; Ivo Olivotto; Ellen Warner; Olufunmilayo I Olopade; Andrea Eisen; Barbara Weber; Jane McLennan; Ping Sun; William D Foulkes; Steven A Narod
Journal:  J Clin Oncol       Date:  2004-06-15       Impact factor: 44.544

8.  Knowledge and attitudes of Hispanic women and their health care providers about breast cancer risk factors and screening.

Authors:  Michelle N Strecker; Aimee J Williams; Melissa Bondy; Dennis A Johnston; Hope Northrup
Journal:  Community Genet       Date:  2002

9.  Cancer statistics for Hispanics, 2003.

Authors:  Kathryn O'Brien; Vilma Cokkinides; Ahmedin Jemal; Cheryll J Cardinez; Taylor Murray; Alicia Samuels; Elizabeth Ward; Michael J Thun
Journal:  CA Cancer J Clin       Date:  2003 Jul-Aug       Impact factor: 508.702

10.  BRCA1 and BRCA2 mutations in women of different ethnicities undergoing testing for hereditary breast-ovarian cancer.

Authors:  Michael J Hall; Julia E Reid; Lynn A Burbidge; Dmitry Pruss; Amie M Deffenbaugh; Cynthia Frye; Richard J Wenstrup; Brian E Ward; Thomas A Scholl; Walter W Noll
Journal:  Cancer       Date:  2009-05-15       Impact factor: 6.860

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  18 in total

1.  Developing strategies for reducing cancer disparities via cross-institutional collaboration: outreach efforts for the partnership between the Ponce School of Medicine and the Moffitt Cancer Center.

Authors:  Clement K Gwede; Eida Castro; Thomas H Brandon; Jessica McIntyre; Cathy D Meade; Teresita Munoz-Antonia; Vani N Simmons; Susan T Vadaparampil; Julio Jimenez; Gwendolyn P Quinn
Journal:  Health Promot Pract       Date:  2011-12-12

Review 2.  Genetic counseling for hereditary breast and ovarian cancer among Puerto Rican women living in the United States.

Authors:  Courtney L Scherr; Elsa Vasquez; Gwendolyn P Quinn; Susan T Vadaparampil
Journal:  Rev Recent Clin Trials       Date:  2014

3.  Important considerations for recruiting women to cancer genetics studies in Puerto Rico.

Authors:  Euna M August; Gwen P Quinn; Rossybelle Perales; Zuheily Closser; Julie Dutil; Marieva Puig; Susan T Vadaparampil
Journal:  J Cancer Educ       Date:  2012-03       Impact factor: 2.037

4.  Challenges in recruiting Mexican women for cancer genetics research.

Authors:  Gwendolyn P Quinn; Jessica Q McIntyre; Susan T Vadaparampil
Journal:  J Community Genet       Date:  2010-12-01

5.  A pilot study of knowledge and interest of genetic counseling and testing for hereditary breast and ovarian cancer syndrome among Puerto Rican women.

Authors:  Susan T Vadaparampil; Gwendolyn P Quinn; Julie Dutil; Marieva Puig; Teri L Malo; Jessica McIntyre; Rossybelle Perales; Euna M August; Zuheily Closser
Journal:  J Community Genet       Date:  2011-07-12

6.  Targeted Ovarian Cancer Education for Hispanic Women: A Pilot Program in Arizona.

Authors:  Matthew Schlumbrecht; Ranay Yarian; Kristine Salmon; Christine Niven; Diljeet Singh
Journal:  J Community Health       Date:  2016-06

7.  Effective Referral of Low-Income Women at Risk for Hereditary Breast and Ovarian Cancer to Genetic Counseling: A Randomized Delayed Intervention Control Trial.

Authors:  Rena J Pasick; Galen Joseph; Susan Stewart; Celia Kaplan; Robin Lee; Judith Luce; Sharon Davis; Titas Marquez; Tung Nguyen; Claudia Guerra
Journal:  Am J Public Health       Date:  2016-08-23       Impact factor: 9.308

8.  Insights into BRCA1/2 Genetic Counseling from Ethnically Diverse Latina Breast Cancer Survivors.

Authors:  Neha Rajpal; Juliana Muñoz; Beth N Peshkin; Kristi D Graves
Journal:  J Genet Couns       Date:  2017-04-04       Impact factor: 2.537

Review 9.  Genetic risk assessments in individuals at high risk for inherited breast cancer in the breast oncology care setting.

Authors:  Tuya Pal; Susan T Vadaparampil
Journal:  Cancer Control       Date:  2012-10       Impact factor: 3.302

10.  Patient Perceptions of Telephone vs. In-Person BRCA1/BRCA2 Genetic Counseling.

Authors:  Beth N Peshkin; Scott Kelly; Rachel H Nusbaum; Morgan Similuk; Tiffani A DeMarco; Gillian W Hooker; Heiddis B Valdimarsdottir; Andrea D Forman; Jessica Rispoli Joines; Claire Davis; Shelley R McCormick; Wendy McKinnon; Kristi D Graves; Claudine Isaacs; Judy Garber; Marie Wood; Lina Jandorf; Marc D Schwartz
Journal:  J Genet Couns       Date:  2015-10-12       Impact factor: 2.537

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