Literature DB >> 19711491

A descriptive analysis of state legislation and policy addressing clinical trials participation.

Claudia R Baquet1, Shiraz I Mishra, Armin D Weinberg.   

Abstract

OBJECTIVES: This report describes state policy and legislation related to clinical trials participation and Maryland's model to enhance clinical trial availability and participation.
METHODS: Descriptive review of state policy and legislation related to coverage for clinical trials costs based on data from the National Cancer Institute (NCI) State Cancer Legislative Database, the American Cancer Society, and NCI; additionally, discussion of Maryland's comprehensive multilevel clinical trial model comprising policy initiatives, community engagement, research, education, and infrastructure support.
RESULTS: Twenty-four states have mandated clinical trial coverage through specific legislation or agreements since 1994. Covered benefits varied among the states.
CONCLUSIONS: Besides cost and insurance barriers, there is a need to address important patient, physician and researcher, and structural barriers to clinical trial participation. Maryland provides a comprehensive model to address the multi-faceted clinical trial participation determinants as it tracks state and federal policy, documents trial barriers, and conducts community education.

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Year:  2009        PMID: 19711491      PMCID: PMC3626735          DOI: 10.1353/hpu.0.0156

Source DB:  PubMed          Journal:  J Health Care Poor Underserved        ISSN: 1049-2089


  44 in total

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2.  Participation of minorities in cancer research: the influence of structural, cultural, and linguistic factors.

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3.  Recruitment and retention of minority women in cancer screening, prevention, and treatment trials.

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Journal:  Ann Epidemiol       Date:  2000-11       Impact factor: 3.797

4.  The effects of knowledge, attitudes, and significant others on decisions to enroll in a clinical trial on osteoporosis: implications for recruitment of older African-American women.

Authors:  C G Unson; N Dunbar; L Curry; L Kenyon; K Prestwood
Journal:  J Natl Med Assoc       Date:  2001-10       Impact factor: 1.798

5.  Underrepresentation of patients 65 years of age or older in cancer-treatment trials.

Authors:  L F Hutchins; J M Unger; J J Crowley; C A Coltman; K S Albain
Journal:  N Engl J Med       Date:  1999-12-30       Impact factor: 91.245

6.  Clinical trials: are they a good buy?

Authors:  C L Bennett; J R Adams; K S Knox; A M Kelahan; S M Silver; J S Bailes
Journal:  J Clin Oncol       Date:  2001-12-01       Impact factor: 44.544

7.  Racial differences in factors that influence the willingness to participate in medical research studies.

Authors:  Vickie L Shavers; Charles F Lynch; Leon F Burmeister
Journal:  Ann Epidemiol       Date:  2002-05       Impact factor: 3.797

8.  Recruiting elderly African-American women in cancer prevention and control studies: a multifaceted approach and its effectiveness.

Authors:  K Zhu; S Hunter; L J Bernard; K Payne-Wilks; C L Roland; R S Levine
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9.  Randomized clinical trials in oncology: understanding and attitudes predict willingness to participate.

Authors:  P M Ellis; P N Butow; M H Tattersall; S M Dunn; N Houssami
Journal:  J Clin Oncol       Date:  2001-08-01       Impact factor: 44.544

10.  How sociodemographics, presence of oncology specialists, and hospital cancer programs affect accrual to cancer treatment trials.

Authors:  Warren B Sateren; Edward L Trimble; Jeffrey Abrams; Otis Brawley; Nancy Breen; Leslie Ford; Mary McCabe; Richard Kaplan; Malcolm Smith; Richard Ungerleider; Michaele C Christian
Journal:  J Clin Oncol       Date:  2002-04-15       Impact factor: 44.544

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3.  Clinical trial awareness among racial/ethnic minorities in HINTS 2007: sociodemographic, attitudinal, and knowledge correlates.

Authors:  Aisha Langford; Ken Resnicow; Lawrence An
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4.  Clinical trial agreements and insurance policies - role of the EC.

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Journal:  Perspect Clin Res       Date:  2022-06-30
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