Literature DB >> 19709348

Sexuality and personal relationships for people with an intellectual disability. Part I: service-user perspectives.

E Healy1, B E McGuire, D S Evans, S N Carley.   

Abstract

BACKGROUND: Despite a recent ideological shift towards the recognition of sexual autonomy for people with an intellectual disability (ID), there are continuing social and cultural barriers to sexual expression. Part I of the current two-part study assessed the sexual knowledge, experiences and aspirations of service users through focus groups and also examined their perceptions of impediments to achieving sexual autonomy.
METHOD: Thirty-two participants (20 male, 12 female) attending an ID service participated in focus groups delineated by gender and age group (13-17 years; 18-30 years; 31+ years).
RESULTS: Analysis of the focus groups showed that service users, especially those over the age of 18 years, had an understanding of their sexual rights but also identified a number of social and cultural barriers that they felt prevent them from achieving sexual autonomy. Those under the age of 18 years had only rudimentary knowledge of sexuality issues, for example pregnancy and sexual anatomy, but aspired to relationships and marriage similar to those over the age of 18 years. Family and staff attitudes appeared to be very influential in the views of respondents. All service users had received some form of sex education, although the benefits of such education appeared most enduring for those over 18 years.
CONCLUSION: Service users had an understanding of their sexual rights and the social and environmental barriers that prevent them from fulfilling their rights. The provision of sex education training and promotion of positive attitudes towards appropriate sexual expression is critical to the realization of sexual autonomy for people with an ID.

Entities:  

Mesh:

Year:  2009        PMID: 19709348     DOI: 10.1111/j.1365-2788.2009.01203.x

Source DB:  PubMed          Journal:  J Intellect Disabil Res        ISSN: 0964-2633


  16 in total

1.  Mental illness, problem behaviour, needs and service use in adults with intellectual disability.

Authors:  Matthias Schützwohl; Andrea Koch; Nadine Koslowski; Bernd Puschner; Elke Voß; Hans Joachim Salize; Andrea Pfennig; Anke Vogel
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2016-03-07       Impact factor: 4.328

Review 2.  Attitudes towards sexuality and related caregiver support of people with intellectual disabilities: A systematic review on the perspectives of people with intellectual disabilities.

Authors:  Wouter de Wit; Wietske M W J van Oorsouw; Petri J C M Embregts
Journal:  J Appl Res Intellect Disabil       Date:  2021-07-08

Review 3.  Sexual and reproductive health care for women with intellectual disabilities: a primary care perspective.

Authors:  Nechama W Greenwood; Joanne Wilkinson
Journal:  Int J Family Med       Date:  2013-12-12

4.  People with Intellectual Disabilities Talk About Sexuality: Implications for the Development of Sex Education.

Authors:  D Schaafsma; G Kok; J M T Stoffelen; L M G Curfs
Journal:  Sex Disabil       Date:  2016-12-16

5.  Evidences of an Implemented Training Program in Consensual and Responsible Sexual Relations for People with Intellectual Disabilities.

Authors:  Belén Gutiérrez-Bermejo; Noelia Flores; Pedro J Amor; Cristina Jenaro
Journal:  Int J Environ Res Public Health       Date:  2021-02-26       Impact factor: 3.390

6.  Persons with Intellectual Disability: Sexual Behaviour, Knowledge and Assertiveness.

Authors:  Nina Brkić-Jovanović; Vanja Runjo; Daniela Tamaš; Sanela Slavković; Vesela Milankov
Journal:  Zdr Varst       Date:  2021-03-18

7.  Sex: What Is the Big Deal? Exploring Individuals' with Intellectual Disabilities Experiences with Sex Education.

Authors:  Rachelle Hole; Leyton Schnellert; Gloria Cantle
Journal:  Qual Health Res       Date:  2021-12-20

Review 8.  Identifying effective methods for teaching sex education to individuals with intellectual disabilities: a systematic review.

Authors:  Dilana Schaafsma; Gerjo Kok; Joke M T Stoffelen; Leopold M G Curfs
Journal:  J Sex Res       Date:  2014-08-01

9.  Living with support: Experiences of people with mild intellectual disability.

Authors:  Sanne A H Giesbers; Lex Hendriks; Andrew Jahoda; Richard P Hastings; Petri J C M Embregts
Journal:  J Appl Res Intellect Disabil       Date:  2018-10-26

10.  Family-based social capital of emerging adults with and without mild intellectual disability.

Authors:  S A H Giesbers; A H C Hendriks; R P Hastings; A Jahoda; T Tournier; P J C M Embregts
Journal:  J Intellect Disabil Res       Date:  2020-08-03
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