Literature DB >> 19646189

Investigation of quality of life and family burden issues during insulin pump therapy in children with Type 1 diabetes mellitus--a large-scale multicentre pilot study.

E Müller-Godeffroy1, S Treichel, V M Wagner.   

Abstract

AIMS: To investigate psychosocial aspects of continuous subcutaneous insulin infusion (CSII) therapy in children with Type 1 diabetes and to identify relevant and sensitive measures.
METHODS: We performed a multi-centre prospective pre-/post-study with children (53 girls, 64 boys, age 10.5 +/- 3.7 years, mean +/- sd) with Type 1 diabetes and their main carer from 18 German diabetic centres. Twenty-five children aged 8-11 years and 63 adolescents aged 12-16 years and their parents, plus 29 parents of children aged 4-7 years completed standardized questionnaires on generic and diabetes-specific quality of life (QOL), generic parenting stress, mealtime behaviour, fear of hypoglycaemia and family conflict immediately before and 6 months after transition to CSII.
RESULTS: After transition to CSII, diabetes-specific QOL of children increased significantly (P < 0.001) in all age groups, with moderate to large effect sizes (children aged 4-7 years: Cohen's effect sized = 1.3; 8-11 years: d = 0.9, adolescents 12-16 years: d = 0.6). Parents reported reduced frequency (P < 0.01, d = 0.4-0.7) and difficulty (P < 0.01, d = 0.3-0.6) of overall parenting stress and decreased worries about hypoglycaemia (P < 0.01, d = 0.4-0.6). Parents of younger children (4-7 years) reported reduced problems with nutrition management (frequency: P < 0.001, d = 1.1; difficulty: P < 0.05, d = 0.7).
CONCLUSIONS: CSII may have substantial psychosocial benefits. Controlled studies are needed.

Entities:  

Mesh:

Year:  2009        PMID: 19646189     DOI: 10.1111/j.1464-5491.2009.02707.x

Source DB:  PubMed          Journal:  Diabet Med        ISSN: 0742-3071            Impact factor:   4.359


  41 in total

1.  Experiences of Adults Using Continuous Subcutaneous Insulin Infusion: A Qualitative Study.

Authors:  Naglaa Ibrahim Mesbah; Nehad Abd-El-Raheem Taha; Zahra Nema Rahme; Faten Fawzi Sukkar; Dina Mohamed Omar
Journal:  Med Princ Pract       Date:  2019-09-27       Impact factor: 1.927

2.  Artificial Pancreas in Young Children.

Authors:  Rebecca A Ohman-Hanson; Gregory P Forlenza
Journal:  Diabetes Technol Ther       Date:  2017-05       Impact factor: 6.118

3.  Improved quality of life in unselected insulin pump-treated children with type 1 diabetes in Eastern Nebraska.

Authors:  Sara Rendell; Omofosolade Kosoko-Lasaki; Greg Penny; Cynthia T Cook; Apoorva Sharma; William P Austin; Marc Rendell
Journal:  J Diabetes Sci Technol       Date:  2013-03-01

Review 4.  Management of diabetes mellitus: is the pump mightier than the pen?

Authors:  John C Pickup
Journal:  Nat Rev Endocrinol       Date:  2012-02-28       Impact factor: 43.330

5.  Depressive Symptoms at Critical Times in Youth With Type 1 Diabetes: Following Type 1 Diabetes Diagnosis and Insulin Pump Initiation.

Authors:  Dayna E McGill; Lisa K Volkening; David M Pober; Andrew B Muir; Deborah L Young-Hyman; Lori M Laffel
Journal:  J Adolesc Health       Date:  2017-12-06       Impact factor: 5.012

6.  Development and validation of PRISM: a survey tool to identify diabetes self-management barriers.

Authors:  Elizabeth D Cox; Katie A Fritz; Kristofer W Hansen; Roger L Brown; Victoria Rajamanickam; Kaelyn E Wiles; Bryan H Fate; Henry N Young; Megan A Moreno
Journal:  Diabetes Res Clin Pract       Date:  2014-01-18       Impact factor: 5.602

Review 7.  Quality of life and technology: impact on children and families with diabetes.

Authors:  Masakazu Hirose; Elizabeth A Beverly; Katie Weinger
Journal:  Curr Diab Rep       Date:  2012-12       Impact factor: 4.810

Review 8.  Fear of hypoglycaemia in parents of young children with type 1 diabetes: a systematic review.

Authors:  Katharine Barnard; Sian Thomas; Pamela Royle; Kathryn Noyes; Norman Waugh
Journal:  BMC Pediatr       Date:  2010-07-15       Impact factor: 2.125

Review 9.  Facilitating healthy coping in patients with diabetes: a systematic review.

Authors:  Carolyn T Thorpe; Lauren E Fahey; Heather Johnson; Maithili Deshpande; Joshua M Thorpe; Edwin B Fisher
Journal:  Diabetes Educ       Date:  2012-10-16       Impact factor: 2.140

10.  Parenting stress in the infant aphakia treatment study.

Authors:  Marianne Celano; Eugenie E Hartmann; Carolyn D Drews-Botsch
Journal:  J Pediatr Psychol       Date:  2013-03-09
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